Swollen lymph on left side of neck

Hi everyone,

my name is Charlotte and over the last few weeks I have been reading some posts on here and I thought I would join in and try and get a bit of reassurance/stories from other users.

Around 3 weeks ago I went to the doctors because I had 2 lumps on the left side of my neck, one hard and one quite soft, located directly underneath; my doctor ordered blood tests which have come back normal except for high bilirubin and low globulin which are being repeated in a month (full blood count, urea and electrolytes etc - don’t think there were any Tumor marker tests) and she also booked me in for an ultrasound which is next Tuesday. But I am really struggling to think of anything positive that could come from hard lymph with no other signs of infection, when tonight I was having a feel and noticed another node on the right side of my neck and I have gone into total melt down. I am on the verge of a panic attack, I’m terrified of dying and leaving my child and baby and I can only think of the worse. Positive stories will help or anyone in the same boat who can advice me. I know I can’t do anything to stop this but I can’t help but feel ‘dirty’? With these hard lumps in my neck, I just want them to go away. I will update as and when. Thanks for listening. 

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  • Hey beautiful 

     

    Whatever haooens your not alone. Please keep posting. You got this ok. Your stronger than you fee ️

  • Hello

    I'm awaiting an ultrasound for a raised neck lymph node, I've been referred on the 2 week pathway, after waiting and watching for 4 weeks.  I had a telephone assessment yesterday with ENT and I'm feeling so scared, I feel so anxious that I sense that I can't swallow, this came on suddenly (I've had this on occasion before when highly stressed). I don't have any signs of infection

    xx.  
     


     

     

  • I hope you're feeling ok av123 I know how awful the anxiety is but I think push for further tests because you're the one dealing with this everyday and you need to know what's going on! you've got this! xx 

  • hi Riley 

    just thought I'd let you know my biopsy day is June 21st a little while away but because it's not urgent and I've paid to go private but I'll be so happy to have this thing out of my neck! I'm really having some dark thoughts about it had a cry with my mum yesterday thinking they'll send it off and find all sorts. However she's reasurred me it's always been there and she remembers me being sick as a kid and me saying my lump is there again in my neck and how sickly I was as a child constant sore throats coughs you name it.  But the lymph node has had no growth still same little pea size it was when I found it nearly 5 weeks ago Well I say 5 weeks but my mum says years but I had a night sweat the other night panicked and realised I had four cans of red bull and vodka that day so that was defiantly it but yeah been battling with my thoughts a lot these days but I keep reminding myself if it was something serious lymphoma in my age group grows very rapidly! Hope you're well and feeling positive! 

  • Hi Emily 

    I have my ENT consultation tomorrow and I'm going to try to ask for comparison scans in 2-3 months time. Do you have private health insurance or is the biopsy affordable? My lymph is still the same with no change at all, although I do have a headache and sore throat, no doubt linked to the emotional rollercoaster this journey has been and a combination of work pressure. My friend is a doctor who used to be an ENT surgeon, he seemed to be assured by my results, which seem to be similar to yours. Is it too rude to ask your age range? It would be good to set up a WhatsApp group if that's allowed within the forum T's and C's xx

  • Hi Riley, 

    Sharing personal details, such as phone numbers, is not allowed on the forum but you can share such information via private messaging. To find out more and how to get started just click here.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thank you Steph, it's good to know that there is a private messaging facilitity, I definitely hadn't realised.  Also thank you for confirming the terms and conditions xx

  • So ENT follow up today, I was assured that I am in a low category for ENT cancers, I asked for additional regarding these risks and it is apparently linked to age, smoking and drinking habits. The Doctor said that my lymph node is fibrous and would never go down. He kindly agreed to follow up with a further ultrasound in a few months time. I've added a photo as I feel I've got to know you, I have also sent friend requests now I know how to do them. How is everyone? Xxx

  •  

    Hi Riley,

    I am so glad to hear that although your lymph node is still swollen and will never go down, that it is fibrous. It sounds as if your consultant is pretty sure that there is nothing for you to worry about. I am glad to hear that he has agreed to carry out a further ultrasound in a few months and hope that you feel more reassured now.

    Kind regards,

    Jolamine xx

  • Thank you Jolamine I definitely feel more reassured, the ENT doctor explained that this is very common and they come across this fairly often. I hope you are well, did you get your ultrasound results back? Xx

  •  

    Hi Reilly,

    The ultrasound results were ok thanks, but the firroscan showed further liver damage. However, it wasn't a huge change thank goodness.

    Jolamine xx

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