Swollen lymph on left side of neck

Hi everyone,

my name is Charlotte and over the last few weeks I have been reading some posts on here and I thought I would join in and try and get a bit of reassurance/stories from other users.

Around 3 weeks ago I went to the doctors because I had 2 lumps on the left side of my neck, one hard and one quite soft, located directly underneath; my doctor ordered blood tests which have come back normal except for high bilirubin and low globulin which are being repeated in a month (full blood count, urea and electrolytes etc - don’t think there were any Tumor marker tests) and she also booked me in for an ultrasound which is next Tuesday. But I am really struggling to think of anything positive that could come from hard lymph with no other signs of infection, when tonight I was having a feel and noticed another node on the right side of my neck and I have gone into total melt down. I am on the verge of a panic attack, I’m terrified of dying and leaving my child and baby and I can only think of the worse. Positive stories will help or anyone in the same boat who can advice me. I know I can’t do anything to stop this but I can’t help but feel ‘dirty’? With these hard lumps in my neck, I just want them to go away. I will update as and when. Thanks for listening. 

  • Hi 

    thank you for responding! googling definitely has panicked me a bit so i stopped doing that, but i'm still just a bit worried as i just don't feel myself and this just doesn't feel normal for me.

    i managed to get another phone call appointment today. i asked for a specific gp but got a different one. this new doctor i've never met told im "probably fine" but should make an appointment with the doctor i seen first as she was the one who was concerned about it. that doesn't make much sense to me and again, this doctor didn't ask to see the rash or ask any questions about it or the lumps. i feel like i'm being fobbed off repeatedly when i'm really panicked already. i've been so so itchy and i'm covered in rashes and bruises with now 6 swollen lymph nodes and no appetite at all. 

    im not sure how or if i should push for further tests and i'm getting so anxious as i just keep feeling worse and worse. 

    hope you are well x 

  •  

    Hi Av123,

    I am sorry to hear about your concerns and would definitely advise you to stay well clear of Google, as this will only worry you considerably more and serve no useful purpose. When the doctor you spoke to today has advised you to see the doctor who was concerned about your symptoms in the first place, you should do this. Write down all these additional symptoms that you now have and ask to be referred for further tests.

    Sometimes we have to push our doctors to get referred, but the only way to be sure that all is ok is to get things checked out.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Oh bless you, it sounds like you are feeling really under the weather. Does the GP think your symptoms are related to an infection. Interestingly I had a rash too, other than that I felt quite well? I think if it was me, I would push for a second opinion given that you are feeling so anxious and if nothing else it would help with your feelings of anxiety xx

  • I hope you're feeling ok av123 I know how awful the anxiety is but I think push for further tests because you're the one dealing with this everyday and you need to know what's going on! you've got this! xx 

  • hi Riley 

    just thought I'd let you know my biopsy day is June 21st a little while away but because it's not urgent and I've paid to go private but I'll be so happy to have this thing out of my neck! I'm really having some dark thoughts about it had a cry with my mum yesterday thinking they'll send it off and find all sorts. However she's reasurred me it's always been there and she remembers me being sick as a kid and me saying my lump is there again in my neck and how sickly I was as a child constant sore throats coughs you name it.  But the lymph node has had no growth still same little pea size it was when I found it nearly 5 weeks ago Well I say 5 weeks but my mum says years but I had a night sweat the other night panicked and realised I had four cans of red bull and vodka that day so that was defiantly it but yeah been battling with my thoughts a lot these days but I keep reminding myself if it was something serious lymphoma in my age group grows very rapidly! Hope you're well and feeling positive! 

  • Hi Emily 

    I have my ENT consultation tomorrow and I'm going to try to ask for comparison scans in 2-3 months time. Do you have private health insurance or is the biopsy affordable? My lymph is still the same with no change at all, although I do have a headache and sore throat, no doubt linked to the emotional rollercoaster this journey has been and a combination of work pressure. My friend is a doctor who used to be an ENT surgeon, he seemed to be assured by my results, which seem to be similar to yours. Is it too rude to ask your age range? It would be good to set up a WhatsApp group if that's allowed within the forum T's and C's xx

  • Hi Riley, 

    Sharing personal details, such as phone numbers, is not allowed on the forum but you can share such information via private messaging. To find out more and how to get started just click here.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thank you Steph, it's good to know that there is a private messaging facilitity, I definitely hadn't realised.  Also thank you for confirming the terms and conditions xx

  • So ENT follow up today, I was assured that I am in a low category for ENT cancers, I asked for additional regarding these risks and it is apparently linked to age, smoking and drinking habits. The Doctor said that my lymph node is fibrous and would never go down. He kindly agreed to follow up with a further ultrasound in a few months time. I've added a photo as I feel I've got to know you, I have also sent friend requests now I know how to do them. How is everyone? Xxx