Apologies in advance for the long post i'm about to write, I don't have anyone i can really share this with as i dont want to worry them.
My symptoms started in March 2018, I had inconsistent bowel movement, abdominal pain, heart burn, losing weight, tiredness, constipation and feeling bloated. I spotted blood in my stool and that's when i went to see the GP. The doctor at the time requested for blood and stool sample, both came back clear. I went to A&E the same month when i experienced alot of pain around my tummy area. The doctor there took some bloods and said they were fine and sent me home saying it was most likely IBS. I accepted the diagnosis, i mean doctors should know right.
My symptoms persisted but i ignored it and dismissed it as IBS. I only started to take my health more seriously in Dec 2018 when the pain started to get worse and i also started to experience pain in my neck, shoulders and collar bone. My main doctor dismissed the pain as IBS and me pulling a musle or hurting myself despite telling him I haven't. He then asked if I felt stressed or had anxiety about my health, I rebooked myself and saw a locum who took my health more seriously. She reordered bloods which came back clear but she said she wanted to rule out stomach cancer so referred me to a specialist. I stressed myself out thinking it was stomach cancer and i wasted so much time ignoring symptoms. I finally had an endoscopy in Jan 2019 (camera down the throat) which showed i had erosive gastritis. Not the best but at least it wasnt cancer so i was happy, finally a reason for my pains i thought. I was prescribed meds to take every day but my pain still persisted and i was still losing weight and my bowel movements were still the same. Since March 2018 i have lost twp stones.
I had a follow up appointment for my endoscopy and during the appointment i mentioned my continued weight loss and abdominal pain, she requested for another stool sample. My main doctor (the one who thought i had possible health anxiety) spoke to me about my results, he pretty much said i dont understand why we requested a stool sample for you, there was no reason to...but it came back abnormal.....seriously i was lucky i didnt see him for my follow up!). He said its on the high side but nothing to worry about. I ignored him and booked an appointment to see another doctor who referred me to get a colonoscopy which isnt until next week.
I've been googling, watching and reading patient stories about bowel cancer and people who've had less symptoms than me have been diagnosed with stage 4 cancer. I have pretty much convinced myself that i'm at an advanced stage as my neck and shoulder pain have gotten worse, i'm now also experiencing back pain too, it must have already spreaded i keep thinking.
I keep kicking myself for accepting the IBS diagnosis last year and wasting 10 months of precious time when symptoms were not as strong. I have two kids under three and it upsets me so much that if it's true, then they will not remember me at this age. My husband keeps telling me to stop googling and stressing myself out because the doctor hasnt given me a diagnosis yet, but i just cant help it.
I find a lot of similarities in other peoples stories when it comes to being fobbed off with IBS without any real checks carried out, and not being screened because of our age. Its crazy to think how a doctors diagnosis can change someones life so much.
i really hope to god i'm just being over dramatic and praying that it's just in my head and i really dont have bowel cancer. Pray for me :(
Thank you for listening if you managed to read this far, i really appreciate your time. I just needed to let it all out. x