Convinced myself i have bowel cancer

Apologies in advance for the long post i'm about to write, I don't have anyone i can really share this with as i dont want to worry them.

My symptoms started in March 2018, I had inconsistent bowel movement, abdominal pain, heart burn, losing weight, tiredness, constipation and feeling bloated. I spotted blood in my stool and that's when i went to see the GP. The doctor at the time requested for blood and stool sample, both came back clear. I went to A&E the same month when i experienced alot of pain around my tummy area. The doctor there took some bloods and said they were fine and sent me home saying it was most likely IBS. I accepted the diagnosis, i mean doctors should know right.

My symptoms persisted but i ignored it and dismissed it as IBS. I only started to take my health more seriously in Dec 2018 when the pain started to get worse and i also started to experience pain in my neck, shoulders and collar bone. My main doctor dismissed the pain as IBS and me pulling a musle or hurting myself despite telling him I haven't. He then asked if I felt stressed or had anxiety about my health, I rebooked myself and saw a locum who took my health more seriously. She reordered bloods which came back clear but she said she wanted to rule out stomach cancer so referred me to a specialist. I stressed myself out thinking it was stomach cancer and i wasted so much time ignoring symptoms. I finally had an endoscopy in Jan 2019 (camera down the throat) which showed i had erosive gastritis. Not the best but at least it wasnt cancer so i was happy, finally a reason for my pains i thought. I was prescribed meds to take every day but my pain still persisted and i was still losing weight and my bowel movements were still the same. Since March 2018 i have lost twp stones.

I had a follow up appointment for my endoscopy and during the appointment i mentioned my continued weight loss and abdominal pain, she requested for another stool sample. My main doctor (the one who thought i had possible health anxiety) spoke to me about my results, he pretty much said i dont understand why we requested a stool sample for you, there was no reason to...but it came back abnormal.....seriously i was lucky i didnt see him for my follow up!). He said its on the high side but nothing to worry about. I ignored him and booked an appointment to see another doctor who referred me to get a colonoscopy which isnt until next week. 

I've been googling, watching and reading patient stories about bowel cancer and people who've had less symptoms than me have been diagnosed with stage 4 cancer. I have pretty much convinced myself that i'm at an advanced stage as my neck and shoulder pain have gotten worse, i'm now also experiencing back pain too, it must have already spreaded i keep thinking. 

I keep kicking myself for accepting the IBS diagnosis last year and wasting 10 months of precious time when symptoms were not as strong. I have two kids under three and it upsets me so much that if it's true, then they will not remember me at this age. My husband keeps telling me to stop googling and stressing myself out because the doctor hasnt given me a diagnosis yet, but i just cant help it.

I find a lot of similarities in other peoples stories when it comes to being fobbed off with IBS without any real checks carried out, and not being screened because of our age. Its crazy to think how a doctors diagnosis can change someones life so much.

i really hope to god i'm just being over dramatic and praying that it's just in my head and i really dont have bowel cancer. Pray for me :(

Thank you for listening if you managed to read this far, i really appreciate your time. I just needed to let it all out. x

  • Hi Telemando,

    Sorry I didn’t see ‘read more’ until after i posted.

    I’m really happy you found what your triggers are and you’re no longer suffering!! I guess it’s a case of trial and error for everyone. Since I’ve got erosive gastritis I’ve been eating very bland but still have pains so I might have to test out the foods I’m eating one at a time and see if that helps.

    Thanks again!

    SMx

  • The process I went through is called the FODMAP diet. It is not something you can do by yourself - you need professional help, and randomly removing foods from your diet in the hope you might hit a trigger is highly unlikely to be effective; I would have sworn blind that my trigger foods were not the cause of my problem, because I ate them so frequently (more confirmation bias, I now see)

    With the aid of a dietician, I went on a highly restricted diet for three months, then cautiously re-introduced food groups until I found the culprits.  The three month diet was difficult, and my foods were highly limited.  However, after three months without the trigger foods, when I tried them there was an immediate reaction.  I now know that I can tolerate lactose in small quantities, sufficient to put milk in a cup of tea or coffee, but no more lattes. I'm also highly triggered by mushrooms and beans, both of which I miss badly, but when I accidentally ate some mushrooms a few weeks back, I was in the bathroom all night! 

    If, as I think will happen, you get the all clear after your tests, I recommend you ask to be referred to a dietician and ask the dietician about the FODMAP food plan. It will be hard work, and you can't do it by yourself, but there should be a payoff down the line.  In my case, my bowels are once again under my control, and not the other way round. I'm no longer on antispasmodics, simply watching what I eat and drink is sufficient.

     

  • Hi Scaredmummy,

    Sorry, my email was down for a while there.  Just wanted to check in and see how you're doing with distracting yourself.  Mind you, if you're on here that kind of doesn't work :D

    And again, your worry is natural, just best not to let it get the better of you.

    LJx

  • Hey scared, I’m experiencing similar symptoms and I’d love to hear how you got on?

  • I’ve also got similar symptoms and feel like I am not being taken seriously 

  • Hi

    Also check for H. Pylori...

    I have had very similar symptoms over the past year, and like you convinced my self that it was something very serious. 

    Abdominal pains, knawing pain in stomach area, knawing pain lowest part of ribs on both sides, general abdominal pains, sometimes worse than other times, and also a back ache. Also had weight loss, about 1 stone over past 4 months, to the point ppl were asking if I was OK. 

    Also, on waking in mornings, my spit was also dark brown / black. Only first thing, after that perfectly clear. 

    Spent alot of time researching what it could be, and anxiety was through the roof! Regular palpitations and pounding heart!

    Gave me alot of anxiety, and like you didn't want to share with family for fear of worrying them. 

    Had blood tests, all clear. Had abdominal ultrasound, also all good, and just had Ct results back, also all fine. Stool stamples were not possible due to current coronavirus fears. 

    I did come across h pylori (a stomach bacterial infection) during my "research". Decided to check for this. Fortunately, you can buy a home testing kit from amazon (I got the one step test for £5) and this came back positive! 

    I spoke to the doctor about the test results, and he put me on antibiotics and a PPI. It's been 4 days, and my symptoms are already getting better. 

    I think my weight loss was actually down to my stress and anxiety. I'm consciously eating alot more to put on weight. I don't think my back ache is related to any of the other issues, It was just a back ache. 

    So, if not done, ask your doctor to do a h pylori test, you never know! 

    Wishing you all the best.

     

  • Hi do you have any update please? I'm going through similar symptoms. I'm awaiting on a colonoscopy but I've been told I may not be prioritised (I'm 28)

  • Hello, have tou had any news back on your results as i'm going through the same symptoms and am worried sick! Thanks

  • Same as me,  I'm having panic attacks I'm that worried. I'm waiting on results 

  • Did you have the coloscopy? How long do you have to wait?