Thank you for the tip, I will do that just now. It is exhausting and frustrating ️ xx

Hi there,

That must be mentally and physically exhausting, what a horrible thing to have to experience, so sorry!

I used to do work for an endometriosis charity so I know that long-term bleeding can occur with endometriosis, however, endometriosis can keep itself well hidden.  It would usually be possible to spot it in a hysteroscopy but the colour of some of the adhesions means they can be missed unless your surgeon is particularly good with endometriosis (sadly lots aren't, teaching on that condition is still relatively poor in the NHS).  I only mention it as it might be worth suggesting it to them if they haven't mentioned it already.

Given all the tests you've had I'm struggling to see how they would miss cervical cancer, although I totally understand your fear.  But I would suggest it's highly unlikely they will have missed something like that.  Given the number of conditions women can get in our reproductive areas and how hard some of them are to diagnosis my best bet would be that you have one of those.  Still, given your concerns do make a point of asking them if they think it could be cervical cancer, that way then can explain to you clearly what they have done to rule that out as a possibility.  That should help put your mind at rest.

If they aren't coming up with any answers it might be worth asking to be referred to a specialist centre for gynaecological conditions.  I know most gynaecologists are very good at what they do but specialist centres exist for a reason!

Are you still awaiting any test results?  Do you have an appointment pending?

LJx

It is extremely exhausting I am sick of it. I do suffer from a few different things. I have fibromyalgia, depression, anxiety, asthma, PTSD, pcos. What worries me is that no one has aby answers at all after three years of this back and forth to hospital, doctors, gynaecologists at two different hospitals, had scams as well but everything always comes back to them saying there isn't anything been found. But surely there has to be a reason why for 3 years I have had this continuous bleeding, and this horrible pain in the general area, in to the bottom of my back. I am waiting to book a appointment with my doctor but my surgery is very busy. Had a smear in december but everything came back fine. I didn't initially think cervical cancer, I don't know what I thought too be honest, maybe that it would go away but never has. Also had the marina coil fitted to see if it helped but it hasn't. Tried various different medications over the three years.

Lx

I feel your frustration and don't blame you at all, you have been through the mill and you are right to want answers for what is happening.  And yes there does have to be a reason for it, it cannot just be 'one of these things' or anything like that, something is wrong even if it is something that is non-threatening and could be easily fixed (once diagnosed).

I have just come back from dinner with a friend who had really heavy bleeding on and off for 3 years and wasn't getting answers either.  Her issue was different to yours in that with no warning she would suddenly have a massive bleed that would make it through the pads she was inevitably wearing every day just in case, so she'd be out in public and suddenly have a pool of blood at her feet.

I'm glad you've been properly tested in terms of cervical cancer, so you probably don't need to worry about that.  Still, you do need answers.  I can also sympathise with you in terms of depression and the pain of fibromyalgia, anxiety etc. it's amazing when you think what some of us go through for years and just get on with things somehow.

When you do get your next appointment it might be worth having a very open and frank discussion about how much this affecting your quality of life and how you need an answer.  People don't always feel able to do this with GPs but it's not about being aggressive or pushy, just being firm.

Let me know how you get on?

LJx

hi, it sounds like your biggest is the worry is have the doctors missed cancer.. make sure your body is alkaine and not acidic lots of research ive done all come back with the same result "no type of cancer can live in a alkaline body,  and get your iodine levels checked ,

While I totally understand that you are trying to help I have to say that you cannot make your body alkaline.  Blood is actually slightly alkaline anyway, but you can't make it more alkaline.

You cannot change the acidity level of any part of your body except your urine.  Your body knows what state it is meant to be in and controls its acidity levels within a healthy narrow range.  If you try to alter it with an alkaline diet it just means you will have alkaline urine as your body will dispose of the excess through your urine.

It's true that cancer cells cannot live in an alkaline environment, but neither can any of the other cells in your body.  If it was possible to make your body more alkaline it would kill you, which is why your body doesn't let you do it.

There are many fake treatments out there for cancer sadly and most people that spread them do so genuinely trying to be helpful (as opposed to those that come up with them who are just in it for the money).  Sadly there are cases of people dying because they followed these myths and turned down proven treatment.  The myths have all been thoroughly debunked but sadly still get touted around.  It is especially worrying as many of the claimed cures are actually dangerous.  Some that have been mentioned to me by friends would cause my cancer to grow faster!  Cancer isn't one disease after all, it is hundreds of different diseases.

I would always point people towards Cancer Research's own page on Complementary and Alternative Therapy https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/complementary-alternative-therapies 

Best wishes,  LJx

I will let you know. The only thing I do use that isn't from my doctor is CBD oil that helps take the edge off in the morning and at night. I wouldn't try any myth cures or anything. I need to wait until Wednesday to call to try get an appointment, but I will just have to be firm and ask the question I suppose. Yeah it's amazing really what the human body and mind goes through and puts up with, but to others things would be to much some folks just have a million things on there back and others I just couldn't cope with that. Thank you for helping me xx