Hello,

Sorry that you’re going through this worry at the moment. I am currently going through the exact same. I have 8 lymph nodes that I can feel, 3 on the base of the back of my neck have defiantly been there for about 2 years. Recently found more above my collar bone and sides of neck and behind ear. All pea sized, soft and very moveable. I haven’t been ill recently which sparked my worry.

I went to the doctors on Wednesday who felt them all, had to point him to some as he couldn’t feel them but found them eventually. Said it was unlikely anything sinister but referred me to have an ultrasound so I’m waiting for an appointment to come through. He didn’t tell me if it was going through as urgent.

my anxiety is also through the roof I have no other symptoms apart from being tired but I have a one and half year old and I am also 10 weeks pregnant. I feel so worried about all of this and can only think the worse all information I can find points to cancer. 

how did you get on at the doctors?

I went ant to the 

Hi sorry so late at posting again I didn't think anyone would've text me on this lol , the doctor that day said she couldn't feel the one which I think is around 2cm , she kept trying but couldn't feel it which was very frustrating because I know it's deffinatley there and but the other ones she could feel she said felt normal, I also discussed with her my health anxiety and she referred me for CBT which I haven't had yet I just hope when I do it's going to help with this horrendous anxiety, still got all the same nodes now , haven't changed in size I don't think but still worry me daily

Yeah I have thought it was that for years but since having this lump i linked them together (health anxiety) not good lol x

Hi, just read your post, sorry you are on here and are waiting for results. Last May I had a lump in my neck, when I got my ultrasound and biopsy done , they said my paritoid gland was ok but submandibular gland looked suspicious the doctor doing the ultrasound said not to worry as it could be a thyroid problem., the biopsy came back with a rare form of lymphoma. I had treatment which ended in November. I had hardly any saliva but I have an auto immune disease as well and just thought it was that. Unfortunately six weeks of remission, the same lump came back again on the submandibular gland, more biopsies and unfortunately my cancer was back. It was too soon to have more treatment so as I feel well enough, I am on active watch and wait as it’s an indolent blood cancer. Hope this post doesn’t worry you too much, most biopsies do come back with a negative result. Guess I was the unlucky percent. Hope everything goes ok, even if it is the worse result, I coped very well on the chemo. Keep us posted.

Hi 

so sorry to hear what you’ve been through, hope you can start treatment again soon and beat this nasty thing , if you don’t mind me asking how old are you and what was your lump like as in hard/soft big/small? Also did you have any other symptoms with your first lump , was it growing in size? You don’t see many people come back to this forum with a diagnosis most of the time so the only questions you can ask is google and the results are always worrying! 

Take care x

Hi, my lump was hard and it was quite large, it wasn’t movable and you could see it easily, I also lost a lot of weight, had night sweats and had terrible fatigue which again I thought it was my autoimmune problem. After the biopsy the lump did go down a bit in size but didn’t go away till after 3rd chemo. The lump I have now is pea size but you could see it easily on the ultrasound, my hope is I don’t get any of the B symptoms like the last time for a long time, after I had my ct scan, it showed enlarged nodes under my arm and at each side of my lungs and kidneys, I am 65 now. Hope this helps you.

Hi scones 

thank you so much for answering my questions really appreciate it, Im quite a hypochondriac and I’ve had this lump in my neck for 2 years but I don’t think it’s grown and I haven’t had any symptoms but with what I’ve read online I’m just scared it’s some sort of indolent slow growing lymphoma , I have some other lymph nodes in my neck which are quite small , I know this would be rare as I’m only 22 but I have an ent app in 3 weeks so hopefully will get to the bottom of it , I really hope you don’t get any b symptoms too , please keep us updated x

Hi, you are young but at least you getting it checked out. If you don’t have any other symptoms they prob wudnt treat it just now. Try not to worry, if the ENT consultant is worried he will do further testing

Thank you for your support , I look forward to my app to try and get to the end of this , did they say how long yours had been there ? 

Oh Ewar

It really is horrible just the thought isn’t i?!I also have children and all I can think of is them,my twins will be two in July and my oldest daughter will be 4 in July so I understand your fear. Google is not good ( but hard not to at the same time)and I’ve read nothing good about Sebaceous Carcinoma as it’s such an unknown rare type of skin cancer, I also read it’s often misdiagnosed which also makes me worry eye drs are missing something...Praying that neither of us have this! Good that your going to Dr this week and hopefully you will get an ultrasound too! Every time I’ve had an ultrasound they tell me my lymph nodes are just reactive but now it ( the submandibular one) has actually grown the ENT says even though it looks just reactive it is too big so wants to do an excisional biopsy to see what it is if antibiotics didn’t bring it down which unfortunately antibiotics did nothing.My neck also throbs around this lymph node , sometimes feels like it’s pulling on something,it almost makes me wonder if it throbs because it’s growing bigger again?I also feel a very hard but smaller one towards the back of my neck in what I understand is posterior triangle?They said it’s just a small one it’s nothing but it’s very hard so that Also scares me.

goodluck with your eyelid biopsy this week I will be thinking of you! I will definitely keep you updated I hope so much this lymph node has not grown again in last two weeks

take care

Miks

Hi Scones

im sorry to hear that your cancer is back, i hope you can begin treatment again soon and that you are soon in remission again.

To be honest I haven’t even thought of Lymphoma I just keep thinking it is a metastatic node that has come from perhaps my eye as I’ve had problems with my right eye but I guess I won’t know exactly until after the biopsy. I do have nodes on both sides that are reported to be reactive but the largest is now 2.5cm you can’t see it from just looking at my neck but can feel it easily if I run my fingers over it. It isn’t hard or soft it’s kind of firm and a bit squishy, it’s movable but it kind of throbs a lot atm. These nodes have been “ reactive”since March last year but this one submandibular lymph node was always the biggest, it stayed stable at 1.5cm for a long time which is why no one seemed too concerned as it wasn’t growing,but in February this year I had a horrible sore throat lost my voice for a few days and was in a lot of pain with my throat especially every time I  swolled. After that I noticed that the lymph node seemed bigger ( this was in March now)so went back to Dr who said my lymph tissue was irritated in throat and lymph node was now 2cm so sent back to ENT but just told it was  reactive still because of throat it should go down again, that didn’t sit well with me as I knew it didn’t go down so fast forward to beginning of May and I went to a new ENT who did another ultrasound and said it’s 2.5cm( long) x1.8cmcm, he said all the criteria they use on ultrasound show a benign lymph node except size,(it’s too big )so  said we should try antibiotics and I come back in two weeks for a follow up U/S and if not smaller then an excisional biopsy. Antibiotics have donebnothing ,my neck still throbs on this side and I guess it’s either bigger or same size. My appointment is Thursday and I’m extremely worried. I am 42 have had a squamous cell carcinoma off my stomach in 2015  which said it was all gone ( good differences the biopsy report says)as well as two basal cell carcinoma off my nose in 2016, so I’m a bit worried about these lymph nodes in my neck.I have had no other symptoms such as night sweats etc.

sorry for the long winded post I always seem to go on and on

wishing you a lovely Sunday 

take care

Miks

Hi Miks,

How did your appointment go today? I hope it went well. Update from me, no biopsy as the eye doctor said he thinks it's residual material from the chalazion I had drained and 'there is nothing to biopsy and no actual lump'. I should be pleased with this but just wanted a bit of scientific proof really. I should trust the doctor though as he had a really good look through the microscope and all around my eye. He also felt my lymph nodes and seemed concerned that the GP hadn't referred me for a scan. She has now but said it could take up to 12 weeks, she clearly wasn't too concerned by the nodes. She put me on antibiotics to try and reduce the swelling but no such luck! Will have to chase for a scan so I don't go out of my mind with worry! Hoping your appointment went well!

Hi Miks,

How did your appointment go today? I hope it went well. Update from me, no biopsy as the eye doctor said he thinks it's residual material from the chalazion I had drained and 'there is nothing to biopsy and no actual lump'. I should be pleased with this but just wanted a bit of scientific proof really. I should trust the doctor though as he had a really good look through the microscope and all around my eye. He also felt my lymph nodes and seemed concerned that the GP hadn't referred me for a scan. She has now but said it could take up to 12 weeks, she clearly wasn't too concerned by the nodes. She put me on antibiotics to try and reduce the swelling but no such luck! Will have to chase for a scan so I don't go out of my mind with worry! Hoping your appointment went well!

Hi Ewar

Appointment went just as I thought, Ultrasound showed no reduction in lymph node after antibiotics Actually only by 3mm which they say is nothing and that we have to do the excisional biopsy now as that’s the only way to know what it is. The chief ENT dr gave me no clues as to what we are looking for as he just said he doesn’t know as it’s nothing obvious they can see and again said the ultrasound findings look benign/ reactive except the size is too big. It measures 2.39 x0.4 x0.3 I’m not really sure I understand the measurements  and how they do it except it’s 2.39 cm long by 0.4  wide???but it’s oval with hilius etc like a reactive lymph node? So long story short no idea still what is in my lymph nodes! They are just taking one as all the others are under 1cm. The biopsy is on May 31st and I will be in hospital for 4 days. I’m so scared I really don’t like anything hospital wise  and I’m certainly not brave when it comes to needles etc,even when I had my children I couldn’t wait to get home! I will keep you updated after biopsy! 

It’s great news though you don’t need a biopsy! I understand how you feel second guessing the drs I’ve done that too which has finally lead me to where I am  today!My eye dr also isn’t concerned but I can’t shake the feeling this is related to my eye too. Good idea to investigate the lymph node further if it hasn’t gone down and hopefully then you can get some peace of mind! 

Right im off to enjoy these next two weeks as much as I can with my kids in case I don’t get a good biopsy result!

take care and please keep me updated with you too, wish you all the best!

Miks77

Sorry to hear you have to be in hospital for a little while but really good news that you will finally get an answer! Will be thinking of you on the 31st. x

Good luck with the biopsy, hope they have answers for you, keep us informed x

Hi Miks just a quick message to say I hope your op went ok and you're recovering well :) 

Hi Ewar!

thanks for the message I’m still in hospital but going home tomorrow! The excisional biopsy really wasn’t so bad and not much pain afterwards at all,I just have seem to have caught a viral throat infection so it’s very painful to swallow atm hopefully it clears up soon. I will find out tomorrow when I need to come back for the results, this waiting for results is really the worst part!!!Did you book an ultrasound yet? I hope your feeling ok! I will let you know once my biopsy results come in. 

Take care

Miks xx

Ah I'm glad it wasn't too bad and that you're out of hospital! I have my ultrasound tomorrow. Feeling very nervous as two more lymph nodes have popped up in the submanibular area, which means I now have 3 there. Aswell as another two each side of my neck that have been getting bigger. Will see what tomorrow brings! I hope all goes well with your results Xx

Great your ultrasound is already tomorrow! Hopefully you can get some peace of mind! It is very stressful when you don’t know why these lymph nodes are swollen! I must say I’m so nervous now about what my biopsy results will be... I’m trying to not think about it but it’s impossible !

Let me know how your ultrasound goes tomorrow will keep my fingers crossed for you!

xx

Hi Miks

Just read through this thread and I'm going through something similar, if not a step behind yourself.

Did you get the results, I hope all was okay?

I've just had my lymphnodes checked out via ultrasound as had persistant chesty cough and breathing problems, along with enlarged lympnodes for months. Radiologist said he saw some reactive but both sides of neck were suspect. 

Just waiting for urgent ENT and biopsy referral. Fingers crossed!

Hi !

i am sorry for not replying yesterday I was anxiously waiting for my biopsy results which came this afternoon and I’m happy to share that my lymph node came back as only reactive after my excisional biopsy .I am so very relieved and so happy that I can finally put this behind me! So I hope this can help reassure others that a lymph node/s can definitely just stay up and reactive for a long time, ( I was not convinced of this  before today thanks to dr google!)Mine was there for 14months and also grew slowly bigger from February this year and at the time of biopsy last week was 2.45 cm!

i want to thank you all for being such a supportive group it’s so nice to have a group like this .

wishing everyone all the very best!

take care

Miks xx

Amazing news!! Wishing you all the best Miks. :D

The relief must be next to none!

Take care 

x