Hello Amanda,

Welcome to Cancer Chat and thank you for sharing your story. It is normal to feel anxious while trying to figure out what is going on and what may be causing these swollen lymph nodes and thyroid nodules but hopefully you won't have to wait too long now to get some answers.

I hope you will meet others here who have been through a similar experience and that they will be along soon to share it with you and advise you on specific questions you may need to ask.

Our nurses are also available on this free number 0808 800 4040 Monday to Friday from 9am to 5pm if you wish to talk things through with them.

Keep us updated on how things progress for you,

Best wishes,

Lucie, Cancer Chat Moderator

Hi,

I'm going through this right now. I'm 35. I had a large painless nodule appear on my thyroid. My Dr noticed it and it's pretty big, not sure how I didn't notice. it moves up and down when I swallow. I was referred for an ultrasound and was told I have two nodules. A small one on the left, and a large one on the right with internal blood vessels. He also said one of the near by lymph nodes was inflamed but I can't feel any tbh.

The radiologist then said I would need a biopsy because of the internal blood vessels made it a bit risky. He said he didn't think it was sinister though and sent me on my way. It was all over in about 4 minutes. It's been a week and no letter. My GP asked me to come in for a non-urgent appointment to discuss the ultrasound results. I asked to speak to her over the phone but this didn't seem possible and the surgery just juggled things around so I didn't have to wait 3 weeks and can see her next week. It's been a week and I've had no biopsy appointment letter so far. My online medical file that I can access currently shows my ultrasound as 'No action needed' - so I've emailed the hospital. 

My TSH is normal. Thyroid antibodies are normal (sister has Hashimotos). My ferritin is normal but low. My white blood cell count is on the edge of normal, at the low end. I was tested for HIV and thay came back neg. I feel very run down and have low grade night sweats despite the window being wide open. I keep getting colds, stomach bugs, infected cuts etc.

Did they tell you that you would have a biopsy?

I think it's hard to tell with spacing and timings. My brother keeps telling me it's nothing because if it was 'they'd have me straight in'. I don't think it works like that. I do think urgent cases get fast tracked but generally things are slow.

Sorry, I'm not being much help. But it sounds like we have some similarities. I hope your appointment goes well today. Do let me know. 

x

Hi Amanda,

I'm too going through something similar and am 38yrs.  I had a ultrasound done the beginning of Nov which came back saying I had a nodule on left lobe of Thyroid that needed looking into.  My blood test came back saying thyroid count was fine. My GP told me I would be referred to an Endocrinologist but I could wait up to 12 weeks.  I'm lucky as my husband has private health care cover so I managed to go private.    

I also get hot all the time, and am always coughing or trying to clear my throat.  I get earache too but only in my left ear which is the side of the lump.  

I had another blood test, CT scan and ultrasound with FNA biopsy done on the 27th Nov and I go back on Tuesday 11th Dec for the results.  So have had to wait 2 weeks for those.  

I have had this lump on my neck for a good couple of months and it has got bigger.  I am trying so hard to stay off Google (I've been on it a lot lately) and next Tuesday can not come quick enough.  But if I'm honest, I've got a bad feeling about this, but really hoping the pit in my stomach is wrong this time. 

Jo

Jodc17, so sorry to hear about your symptoms and awful wait. How did you get on?  I hope all was well. xxx

Sorry haven't been on here for a while.  

I was diagnosed with having Thyroid cancer on the 11th Dec.  I then had a full Thyroidectomy and some lymph nodes taken out on 11th Jan.  I have my two week follow up appointment this Saturday.

I'm actually coping a lot better than I thought I would have. I'm just trying to stay positive. I do have some off days, and worry in case I get cancer somewhere else.  But I guess it's just something I will have to deal if that happens.  But fingers crossed I won't have too.

X

Sorry to butt in on the post. Back in September I had enlarged glands and they just wouldn’t go away, I then had ultrasound that found a 4cm lump on my thyroid. Biopsy came back as thy3f so having half of my thyroid removed to test in a few weeks. My glands are still swollen which is making me worry that there is more chance the lump is cancerous. Not sure if anyone knows if it was thyroid cancer does this means this has spread to the lymph nodes as they have been swollen for over 6 months or can these just swell due to an issue with thyroid. I am feeling positive but the long waits etc make it hard! Thanks for any advise and experiencs.

Hey I know your post was a while back. I'm goi g through the same thing I'm only 24 and very scared. Did you ever find out what was wrong x

Hi how did you get on please? Hope everything was ok, sorry to but in on your post, i am going through a similar situation, 2 years ago to this date i went to my GP with ear ake i was 25 at the time, in the November i went completely death, it turned out i had a ear infection. I was given antibiotics and that was that. The pain never went away i have been backwards and forwards to my doctors for the past 2 years complaining of neck pain and ear pain i was given acupuncture, told it was muscle pain and i felt like i was pestering the doctor so just left it and put up with the pain just trying my hardest not to wet my ear or let them get cold. Over the past month i have found it unbearable to live with. i am so tired and run down i am only 27, i went to my doctors and pleaded with him. he then sent me for a blood test to find my white blood cells are 19 (average 0-11) i also asked for a ultrasound on my neck, i went at 11.45am on the Wednesday and by 4pm that day i had a call to say they have found lumps on my thyroid and lymphnodes, i am terrified, i really was not expecting that news, i am hoping the lumps are infection and nothing elts, has anyone else had the same problem please any advice to ease my mind would be grate please,  i am just waiting on my appointment for my biopsy.

Hi, i hope your ok, i am still waiting on my biopsy appointment so i am still none of the wiser of whats wrong, i hope everything was ok with yourself, its a awful situation to be, have you had any news since your post on the 2nd, I too am finding all this really hard but like you said i have found a lot of comfort from this page feel free to messages anytime as you are not alone xxxxxxx