Swollen lymph nodes and thyroid nodules

hi there 

i could be completely barking up the wrong tree but I’m worried even though I tell myself not to be. 

A year ago I noticed I could feel a swollen lymph node in my neck. I went to the GP and he referred me to ENT as I had had a couple of night sweats too. 

I went to see the consultant in January and he started making notes that the node was not palpable. I corrected him and placed his finger right on it. He explained to me it was nothing to worry about as young people like me (I’m 37 and flattered lol) might get enlarged nodes due to acne (I had one spot on my cheek). He referred me for an ultrasound anyway.

appointment came for end of June. I got the date wrong and turned up a day late. They rescheduled and my appointment was in mid October. 

3 weeks later I got a letter for another appointment to see the consultant on 6th Dec. I called my doctor and he was able to tell me that the report says several enlarged lymph nodes and several cysts on thyroid. You can now see one of the nodes clearly in my neck and it’s not one I could feel before. The doctor doing the scan told me the ones I could feel weren’t the big ones as there were bigger ones deeper in.

All bloods show normal thyroid function.

so as every human does I panicked. I’m trying work out if the timings and spacing of 3 weeks means it’s obviously not urgent.

so my questions are

what time scales do they work to?

any specific questions I should ask?

anybody been through anything similar?

thank you

Amanda

Parents
  • Hi Amanda,

    I'm too going through something similar and am 38yrs.  I had a ultrasound done the beginning of Nov which came back saying I had a nodule on left lobe of Thyroid that needed looking into.  My blood test came back saying thyroid count was fine. My GP told me I would be referred to an Endocrinologist but I could wait up to 12 weeks.  I'm lucky as my husband has private health care cover so I managed to go private.    

    I also get hot all the time, and am always coughing or trying to clear my throat.  I get earache too but only in my left ear which is the side of the lump.  

    I had another blood test, CT scan and ultrasound with FNA biopsy done on the 27th Nov and I go back on Tuesday 11th Dec for the results.  So have had to wait 2 weeks for those.  

    I have had this lump on my neck for a good couple of months and it has got bigger.  I am trying so hard to stay off Google (I've been on it a lot lately) and next Tuesday can not come quick enough.  But if I'm honest, I've got a bad feeling about this, but really hoping the pit in my stomach is wrong this time. 

    Jo

     

  • Jodc17, so sorry to hear about your symptoms and awful wait. How did you get on?  I hope all was well. xxx

     

Reply Children
  • Sorry haven't been on here for a while.  

    I was diagnosed with having Thyroid cancer on the 11th Dec.  I then had a full Thyroidectomy and some lymph nodes taken out on 11th Jan.  I have my two week follow up appointment this Saturday.

    I'm actually coping a lot better than I thought I would have. I'm just trying to stay positive. I do have some off days, and worry in case I get cancer somewhere else.  But I guess it's just something I will have to deal if that happens.  But fingers crossed I won't have too.

     

    X

  • Sorry to butt in on the post. Back in September I had enlarged glands and they just wouldn’t go away, I then had ultrasound that found a 4cm lump on my thyroid. Biopsy came back as thy3f so having half of my thyroid removed to test in a few weeks. My glands are still swollen which is making me worry that there is more chance the lump is cancerous. Not sure if anyone knows if it was thyroid cancer does this means this has spread to the lymph nodes as they have been swollen for over 6 months or can these just swell due to an issue with thyroid. I am feeling positive but the long waits etc make it hard! Thanks for any advise and experiencs.

  • Hey I know your post was a while back. I'm goi g through the same thing I'm only 24 and very scared. Did you ever find out what was wrong x

  • Hi how did you get on please? Hope everything was ok, sorry to but in on your post, i am going through a similar situation, 2 years ago to this date i went to my GP with ear ake i was 25 at the time, in the November i went completely death, it turned out i had a ear infection. I was given antibiotics and that was that. The pain never went away i have been backwards and forwards to my doctors for the past 2 years complaining of neck pain and ear pain i was given acupuncture, told it was muscle pain and i felt like i was pestering the doctor so just left it and put up with the pain just trying my hardest not to wet my ear or let them get cold. Over the past month i have found it unbearable to live with. i am so tired and run down i am only 27, i went to my doctors and pleaded with him. he then sent me for a blood test to find my white blood cells are 19 (average 0-11) i also asked for a ultrasound on my neck, i went at 11.45am on the Wednesday and by 4pm that day i had a call to say they have found lumps on my thyroid and lymphnodes, i am terrified, i really was not expecting that news, i am hoping the lumps are infection and nothing elts, has anyone else had the same problem please any advice to ease my mind would be grate please,  i am just waiting on my appointment for my biopsy.

  • Hey guys currently 3am I'm so stressed from google I really can't help my self but... I recently went to the doctor about my Thyroid I have a nodule on my neck according to my ultra scan it came back abnormal which I'm so scared about however my bloods are fine it's just my scan it's not fine. I'm waiting to be seen by a specialist so hopefully this will happen ASAP!! Im happy to read other users stories I don't feel so alone! 
     

    how did everyone get on? Xx

  • Hi, i hope your ok, i am still waiting on my biopsy appointment so i am still none of the wiser of whats wrong, i hope everything was ok with yourself, its a awful situation to be, have you had any news since your post on the 2nd, I too am finding all this really hard but like you said i have found a lot of comfort from this page feel free to messages anytime as you are not alone xxxxxxx

  • Hi there I have various swollen nodes in my neck the other day I spoke to my doctor about feeling tired since them stopping my b12 and 2 nodes getting bigger and back in sept I had an ultrasound to check the nodes well he said I had nodules on my thyroid. This info was never passed on at the appointment at all. My neck is so sore and I feel almost like I'm being strangled. Health is such a worry isn't it 

  • Dear all. 
    great to find this chat as it's hard to talk to family in case they worry. 
    I have had a multi modular goitre for over 20 years and am now 50. 
    recenlty the goitre has grown but weirdly the glands in the base of my skull have become very painful. 
    as usual, the bloods have come back normal but awaiting another ultrasound scan. 
    not a good time to have something wrong due to the NHS under the strain it's on, however I have been onto the GP. He has said he doesn't understand the glands up on the base of my skull and how this could be connected to an inflamed goitre. I of course have googled it! The search immediately came up with thyroid cancer. 
    just wondered if anyone else has had similar symptoms ? 
    it's going to be a long wait, which I understand. Especially living in London. 
    x

  • Hi Jodc17

    I hope you now on the mend and getting back to some sort of normality

    I have just read your post as i am currently waiting to go for an ultrasound next week and i think my heart just stopped for a second reading your story

    9 years ago i have half of my thyroid removed due to a 5 1/2cm multi nodule goiter but my TSH levels were ok with the remaining half, althought there was a small nodule in this one also.  A few months ago i put on 2 stone in a very short timeframe and asked my doctor to check my thyroid levels.  He said they were fine.

    Last week i contacted him again because i was feeling very agitated and feeling like i was blacking out for a split second.  My BP was increased, although never had a problem with this before, My TSH levels came back as high and have since been put on medication

    As well as this the remaning half of my thyroid has now grown substantially and throat is very tight.  My voice is hoarse and vibrates, i have had a constant chesty cough for months now and my gland and ear on the lump side are very tender

    I am feeling a little sick and worried now and next week couldnt come fast enough

     

    I just need someone to say it will be fine but after reading your story im not so sure :-(

  • Hi Natalie13

    I am in the same boat and going for a scan next week. My TSH levels came back high this time so have been put on medication.  I had 1/2 my thyroid removed 9 years ago but they left the other half although it had a couple of nodules in it

    This has now grown and become systomatic. My voice has been gravelly and has a vibration to it, i have had a chesty cough for months and my neck gland on the same side and ear are painful.  Something that i never linked to this is swollen glands at the base of my head until reading your post.

    I have given myself an awful fright googling the symptoms and came back with the same searches as yourself.

    These next few weeks are going to be stressful to say the least but i hope you get a good outcome from your tests

    Regards Karen