Swollen lymph nodes and thyroid nodules

hi there 

i could be completely barking up the wrong tree but I’m worried even though I tell myself not to be. 

A year ago I noticed I could feel a swollen lymph node in my neck. I went to the GP and he referred me to ENT as I had had a couple of night sweats too. 

I went to see the consultant in January and he started making notes that the node was not palpable. I corrected him and placed his finger right on it. He explained to me it was nothing to worry about as young people like me (I’m 37 and flattered lol) might get enlarged nodes due to acne (I had one spot on my cheek). He referred me for an ultrasound anyway.

appointment came for end of June. I got the date wrong and turned up a day late. They rescheduled and my appointment was in mid October. 

3 weeks later I got a letter for another appointment to see the consultant on 6th Dec. I called my doctor and he was able to tell me that the report says several enlarged lymph nodes and several cysts on thyroid. You can now see one of the nodes clearly in my neck and it’s not one I could feel before. The doctor doing the scan told me the ones I could feel weren’t the big ones as there were bigger ones deeper in.

All bloods show normal thyroid function.

so as every human does I panicked. I’m trying work out if the timings and spacing of 3 weeks means it’s obviously not urgent.

so my questions are

what time scales do they work to?

any specific questions I should ask?

anybody been through anything similar?

thank you

Amanda

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  • Hi Amanda,

    I'm too going through something similar and am 38yrs.  I had a ultrasound done the beginning of Nov which came back saying I had a nodule on left lobe of Thyroid that needed looking into.  My blood test came back saying thyroid count was fine. My GP told me I would be referred to an Endocrinologist but I could wait up to 12 weeks.  I'm lucky as my husband has private health care cover so I managed to go private.    

    I also get hot all the time, and am always coughing or trying to clear my throat.  I get earache too but only in my left ear which is the side of the lump.  

    I had another blood test, CT scan and ultrasound with FNA biopsy done on the 27th Nov and I go back on Tuesday 11th Dec for the results.  So have had to wait 2 weeks for those.  

    I have had this lump on my neck for a good couple of months and it has got bigger.  I am trying so hard to stay off Google (I've been on it a lot lately) and next Tuesday can not come quick enough.  But if I'm honest, I've got a bad feeling about this, but really hoping the pit in my stomach is wrong this time. 

    Jo

     

  • Jodc17, so sorry to hear about your symptoms and awful wait. How did you get on?  I hope all was well. xxx

     

  • Sorry haven't been on here for a while.  

    I was diagnosed with having Thyroid cancer on the 11th Dec.  I then had a full Thyroidectomy and some lymph nodes taken out on 11th Jan.  I have my two week follow up appointment this Saturday.

    I'm actually coping a lot better than I thought I would have. I'm just trying to stay positive. I do have some off days, and worry in case I get cancer somewhere else.  But I guess it's just something I will have to deal if that happens.  But fingers crossed I won't have too.

     

    X

  • Sorry to butt in on the post. Back in September I had enlarged glands and they just wouldn’t go away, I then had ultrasound that found a 4cm lump on my thyroid. Biopsy came back as thy3f so having half of my thyroid removed to test in a few weeks. My glands are still swollen which is making me worry that there is more chance the lump is cancerous. Not sure if anyone knows if it was thyroid cancer does this means this has spread to the lymph nodes as they have been swollen for over 6 months or can these just swell due to an issue with thyroid. I am feeling positive but the long waits etc make it hard! Thanks for any advise and experiencs.

  • Hey I know your post was a while back. I'm goi g through the same thing I'm only 24 and very scared. Did you ever find out what was wrong x

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