Hi there, not a nice situation to be in. But I don't understand why you haven't taken the tranexamic acid. You went to the doc for help and advice, and haven't followed the advice. I say this as a female who some years back had very heavy bleeding, took those tablets, and things settled down. Why wait when you have a possible solution available?Please think about it.

regards, gamechanger

Thank you for replying. The prescription says take for up to four days so I was worried that the bleeding would stop and then start again for the scan. Also I was hoping it would subside on its own and I could stop worrying. You are right, my husband has gone for the prescription. If you don’t mind me asking did you have prolonged bleeding as well? Thanks again

Following thread. Im 50 and have had irregular periods for 2 years. I’m on week 8 of heavy heavy bleeding!  Tranexamic hasn’t helped and I’m currently taking Medroxyprogesterone for 2 weeks. After initially slowing bleeding to spotting it starting to get heavier again and I’m feel it’ll just go  back to heavy again when I stop taking them. Doctor wanted to do an examination but said I needed to stop bleeding first. I will be back on the phone to her after this weekend. I’ve had blood tests but they were ok. So far I’ve only had telephone consultations, but I think I probably need to start pushing for further tests. I’m exhausted. Any advice would be lovely 

Hi. I don't mean to be rude but if your doctor wants to do an examination, why has the doctor not prescribed norethisterone for you? That is very good at stopping the bleeding. I am 52 years old and at the end of last year, my cycle went all over the place; I was spotting then sometimes bleeding. Then when it got a bit heavier again, I thought this wasn't normal so I went to my GP who referred me for an abdominal ultrasound scan. That was a bit delayed because i was going away in December 2018 for 3 weeks. I bled very heavily a week before I went and then for the whole 3 weeks I was on holiday. I had a scan in January which showed fibroids and a left sided cyst. The GP did a blood test as well in January but by this time I had stopped bleeding. So the blood count and iron level came back fine - the tumour markers were fine too. She referred me for a hysteroscopy but not at my request - she made the suggestion.

I had that done last week and I am now waiting for my results. However, 2 weeks before the hysteroscopy, I went to have a chat with the specialist nurse about the procedure and I had started bleeding very heavily then. It was the specialist nurse who gave me norethisterone to take so I would stop bleeding by the time my procedure came around: the nurse had said she would not be able to do the hysteroscopy if I was still bleeding heavily as all she would see would be a blood clot.

My advice to you would be to go and ask your GP about a hysteroscopy. They use a camera to see what is going on in your uterus. You will probably have to be given something to stop the bleeding before the procedure like I was. 

I hope this helps. I hope you can get this sorted out.

Best regards.

That is why he prescribed the progesterone. It’s was supposed to stop the bleeding but didn’t completely. I’ve now had an exam and have been referred for a scan but with a 6-8 week wait. Over the weekend the cramps were unbearable so am now on high dose codine too. On a break from progesterone so bleeding has got extreme again so just starting tranexamic asid again. Spoke to another doc and she has finally referred me to gynaecology. Don’t know how long that will take yet. Into my 10th week of bleeding and 2nd week of cramps now. I decided to be a pain in the *** patient from now on, it seems like the only way things get done! 

Hi

i have been bleeding for 6 months now continual. After an ultrasound to see if I could have a coil they picked up an 8cm x 7cm solid mass in my left ovary. Had ca125 clear, afp and afp clear, ct scan no disease anywhere else, now being tested for Granulosa cell tumour which is rare. Surgery booked for a complete abdominal hysterectomy on 8th June.

Hi,

This has made me very worried. I am 24 & have been bleeding for almost 3 months now. I’m not on any contraception & have never been regular. Visited my GP on Thursday due to all of my period problems & have had a blood test & now awaiting an appointment for an ultrasound to check for cysts and fibroids. Have been given Tranexmanic Acid & was told to take for 10 days however online it says up to 4 days & so far my periods have gotten heavier & i have hd extremely bad period pains which i never usually get

I had small amounts of bleeding three years ago and before that I had not periods since 2000because of a tablet I was put on which was thes side affect.  I am 61 so at time the time I had been through the menopause.  I was sent for a ultasound and found i had a thick lining of the womb and then I had a camera put inside and found two large systw whichy were removed and then was tolkd my cells were swollen and should be flat and treatment was either a tablet of merina coil which release a hormone every three or six months I had a biopsy whichg was cear on the last one I had thgis year and said i could keep the coil inb or have it removed I would be okay.  I had it removed this monday and was told will have a little bleeding for one or two days and should be okay.  But if it continues to come back.  Well I have had stomach pains and cramps and bleeding which is not like I had before.  This is flooding and going through to my clothes.  I managed to ge  a doctors appointment and saw another doctor who said why did yuou have it removed as thoiugh I have taken it on my back  to have this removed.  So she was saying it will continue to bleed .  I was not happy at all with her esponse and told her that I was told I was okay to have it removed everything was fine.    I was told that if the bleeding does n ot stop I would haved to have the cil again or tablet.  I was inder horendous pain when I had the coil put in had to have it done under anaesthetic and after I could not walk or stand too long and I mean a few minutes.  I.  This went on for six months .  I was told to persevere with the pain.  I was told today that the tablet would have the same side affects as the coil.  and I mentioned about my eyes side affects of another tabl;et and she seemed to say I would have side affects with my eyes with either of these.  The bleeding is alot worse then before I had the emrina coil put in.  So I just dont rust my doctors.  I have changed once before because the last doctors told me pins and needles in my hands and fingers were nothing to worry about and also having pain in my elbows ands wrists and groin area was nothing to worry about was tissue pain gave me pain killers.  When I argued with my doctor about seeing a pain con saultant she did not like to send me but i would  not give up and when I did see h9im I was diagnosed with chronic widespread pain and then diagnoisaed by a rheumatologist with fibromyalgia.  So apart from that I had a vitamin d deficiency and was seen by a consultant who eventually after many many tests with a overactive parathyroid which was taking all the calcium out of my bones and had a non beligmant tumour on it .  This had to wait ayear for operation to have removed.  And there is more but I wont continue.  So this is why i get on google and search for answers and help as my docors tell me very little and dont seem to be bothereds on if you have a heart attack stroke or you may have cancer. I dont rate doctors as doctors any more .  With all respect to the medical profession yes they have a hard job to do and work very hard but the GPS now seem uncaring and not interested.  I worked up until i became ill in the Caring profession but at the lower end and was working long hours and was a very physical and mentally demanding job.  Had no social life and my life revolveds around my work.

Hello,

I am on my 20th day of bleeding heavily. I use the really thick night time pads and I have to change every time I use the loo, I've lost count of how many packets of pads I've bought now. I also leak sometimes, the weird thing is... I was on the contraceptive pill desogestrel for years! I read some bad stuff, I came off it. I was only on it because of painful periods due to polycystic ovaries and I'd tried other things but the mini pill worked best. So I came off it and after 2 days I started bleeding. And the bleeding seemed normal, it started to slow... Then it got worse, and worse now there's no clots it's just been red blood for 2 or more weeks now. I went to my Dr's and got that transmeticacid or however you spell it. It too said take for 4 days maximum, it hasn't worked. It has slowed but not stopped, I am getting more worried. The Dr called it a rebound bleed, that I haven't bled for that long that now it is having like a double period. Well that was a week ago now it is a triple period. And weirdly before I came off the pill (like 1 month prior to coming off the pill) I had horrible pains down below, like I was giving birth and I was pushing something out with my pelvic floor and it started to hurt internally. It's like my body wasn't doing it, it was doing it itself. And when I bent down it felt like someone was pushing into my uterus really hard mainly on the right hand side, I'm thinking a cyst burst. Oh and I have possible fibroids, I am going for a scan this week to check up. I am only 23 and it's really worrying, I feel like there's something wrong like I'm hemorrhaging from my womb? The Dr felt my tummy and said it was soft and said it was a good thing, but I've never bled this long and I also have bladder issues.. Don't know if it's connected, I have a mass growing in my bladder that I need surgically removing which I am going for a consultation for in the morning. Or I'm worried I have endometriosis, it's just I try talk to my Dr's. You never get the same one and they never have the time of day for you, they want you out the door they cba.

Thanks for reading

I am so sorry to hear about your experience. It sounds really challenging and i can somewhat relate. 

Im 31 and now 12 weeks into the worst bleed of my life after barely having a period for 2 years (probably 24 hours over 2 years if you counted up all the half hours of spotting id had) am utterly exaughsted and no idea when ill get an answer. I tried the tranexamic acid and it did give me a few days of just spotting which was a relief but that was just to get me to the point where i could be scanned. I am now on the other meds but just for the next 10 days. I am having some fairly severe symptoms of anaemia including being breathless all the time which i have never ever had before and am trying my best to remain in work despite the GP wanting to sign me off for a few weeks to try and get some rest. Im having to take clothes to work to change into (i normally do 3 clothes changes a day) all our meeting room chairs are green so i take a big scarf and fold it over so its on the back of the chair and my seat so i have some sort of protetion and put a towel down to drive. Im slowly realising that this isnt really a life. Being tired all the time, not yawning tired but unable to pick up a cup of tea tired, out of breath walking to the car outside my house tired. 

This thread is so nice bacuse i dont feel quite as alone as i do normally, ive started to feel pretty house bound lately so thank you all for the reassurance that its not just me x

hey,

how are you all getting on? I have been having tests for abnormal bleeding. I have a thickend uterine lining. I have had a polyp removed which was benign and a womb biopsy which showed it was thickened but no abnormal cells were present. I have been put on Noristherone 5mg 3 times a day to thin the lining until i have the mrena coil fitted on june 1st and a hysteroscopy. I have PCOS and never had a regular cycle. im gutted having to have the coil as i have been trying to get pregnant :( but thats been put on hold now. Im feeling very down about it all and just keep worrying what if the lining turns abnormal, what if i have to have a hysterectomy and im not able to have children. I have been on noristheri=one about a month. it stopped the bleeding for 2 weeks then it started again and i have been bleeding now for 2 weeks (its not really heavy it never has been) its just annoying. 

thanks for listening x

nat x

It's so good to read these threads.  I am 60 and went through menopause 20 years ago so it was a shock to suddenly start bleeding with huge clots,  I contacted the doctor who in fairness saw me the same day.  She referred me to consultant under the 2 week rule which was worrying.

i then had hysteroscopy and biopsy also I was prescribed norethesterone.  The biopsy came back as no malignant cells found which was good. 

however as soon as I stopped taking the tablets the bleeding came back just as bad as before!  I rung consultant and they sent me another prescription for norethesterone again  does not help that covid-19 is so rife it's stopped a lot of hospital visits.

i took the tablets for another month, stopped them last Tuesday and today Saturday I am back at square one so will ring consultant first thing on Monday...

has anyone else had problems post menopausal?

It's so good to read these threads.  I am 60 and went through menopause 20 years ago so it was a shock to suddenly start bleeding with huge clots,  I contacted the doctor who in fairness saw me the same day.  She referred me to consultant under the 2 week rule which was worrying.

i then had hysteroscopy and biopsy also I was prescribed norethesterone.  The biopsy came back as no malignant cells found which was good. 

however as soon as I stopped taking the tablets the bleeding came back just as bad as before!  I rung consultant and they sent me another prescription for norethesterone again  does not help that covid-19 is so rife it's stopped a lot of hospital visits.

i took the tablets for another month, stopped them last Tuesday and today Saturday I am back at square one so will ring consultant first thing on Monday...

has anyone else had problems post menopausal?

Hi. Sorry to hear your having these issues 2.

I'm 31 and have been bleeding continuously non stop as well as constant period type pains since the beginning of December last year so 6 months now.

Eventually was referred to see consultant and had appointment 11 days ago, she done an internal scan and said womb lining was slightly thick but that could be normal, she also done a biopsy which I wasnt prepared for the pain to be so bad.

They also took blood for lots of diffrent things. I keep thinking the worst, she mentioned Cancer several times but then kept saying because of my age it would be unusual. I dont know what to think, just hoping results are back soon. X 

Hi hope yous are all OK and getting answers... I'm 28 and for the last few months I've been having non stop periods, my periods were always spot on fine then I had my 3rd child and I breast fed so didn't have a period until he was about 11 months after a few months I decided to go on the copper coil which was fine didn't have any problems period wise but after about just short of a year my period would come a week early then next month be 20 days late which I assumed was the coil but periods were fine in length. The last few months I'd come on my period when I'm due on then it just doesn't stop I got given a pill to stop the bleeding that worked then when I come off I had a normal 6 day period like bleed then the following month same again but it wasn't heavy it was brown blood for ages like the beginning and end of period with the odd light red days this time I'm not ovally heavy but it's a proper bleed just not stopping been bleeding for over 3 weeks and no sign of stopping been given the acid pill doing nothing I was assuming it could be the coil but a few difdernt docs have said its unlikely. I have had a scan which said was normal apart from a couple. Of cyst on ovary so was sent for bloods come back fine just wondering what it could be google is the worst as it always scares you seems like cancer always comes up. Has anyone actually found out the reason why the bleeding doesn't stop? Thanks skye xx

Calico, I feel your pain!

In my early 40s I had long heavy periods, all the tests and scans were clear and I went on the Depo injections.  Bliss!  No periods at all. I had to come off the Depo when I reached 50 and it all started again.  More tests, again all clear.  This time I was given the mini pill and again the bleeding stopped completely.  
When I got to 55 the doctor told me I had to come off the mini pill.  No bleeding, I thought I'd gone through the menapause.  Just over a year later (Nov 2019) out of the blue, I started bleeding.  I had a scan which was clear but GP referred me to a gynaecologist. By the time I got an appointment in Feb 2020 the bleeding had stopped.  Gynaecologist said she thought I was just unlucky and having a late menopause, so made another appt to see me after 3 months to see if things were ok.

Then lockdown happened... the bleeding started again, quite heavy at times, and the gynae appt was postponed til Sept.  Meanwhile I felt awful, spoke to my GP who sent me for blood tests which showed me to be anemic. 
I had my appt with the gynaecologist (by phone) last week and she wants to do a biopsy after I have another scan.  My scan is booked for next Sunday.  I've been bleeding almost non-stop for about 5 months now. I'm 58 and just want it to stop.  The only positive is that I don't have any pains or cramps.

(For anyone experiencing flooding or heavy bleeding, I can recommend getting period pants.  I still wear a pad with them but at least they stop leaking on to clothes.)

Hope you've got it sorted Calico x

How are you all doing now?

I am I'm a similar boat. I have a history of irregular heavy bleeding but I have been regular since the birth of my last child in 2014. About a year about I started missing periods and having spotting between periods. The followed by 2 weeks or more of bleeding after missing a period. They were suddenly irregular but still very heavy and I had increased clear discharge as well as bloody discharge. 
 

I bled most of July, which was heavy, I stopped bleeding for some thing like 5-7 days and woke on August 3rd  to passing a clot that was the length of my hand and the width of my palm with the thickness of my finger. I had come out of the blue and it terrified me. Bleeding was gushing and I was really worried. Contacted GP who referred me for urgent scan, bloods and Perscribed transexamic acid. Said to contact when bleeidmh stopped for examination.  Scan referral got rejected citing Covid reasons. Bleeding continued, mostly heavy but did lessen by end of the month, but still had gushes unexpectedly. I contacted GP who said to come in anyway and he examined me and sent for more bloods and on an urgent 2 week referral for gyn. Bloods didn't show I was particularly anemic surprisingly, my CA wasn't raised, and they did a smear which was negative for HPV (although they didn't test the cells). He said contact if I hadn't heard back in 2 weeks. 
 

In this time I had started being in pain, feeling a heaviness and ache. Bleeding increased again and was coming in waves. Contacted GP back around 2.5 weeks later after not hearing back, she prescribed more tranexamic acid and mefenamic acid and iron. She confirmed that she had resent scan in mid August and that I was accepted as a urgent reffeal. Said to contact back by end of September if I hadn't heard back or if symptoms get worse. Bleeding increased a lot, I struggle to leave the house at all, my children have seen me a few times with blood running down my legs and clothes now, I fell over on the shower after feeling faint. It's been something like 58 days of constant bleeding but I was bleeding. before that too. 
 

contacted the GP so said she would chase up both the scan and the referral as needing to be seen immediately. I keep asking about nortinstine (sp?) but they say they want me seen first. I'm so frustrated. 
 

Glad  I am not alone though, sounds like it could be fibroids. Just desperate to be seen. 
 

How is everyone else doing?

Like so many of you I stumbled across this post while doing a Google search. It makes me sad that so many of us have had to go onto a cancer forum to get support for symptoms that more often than not turn out to not be related to cancer.

I am 48 and experienced heavy periods for the first time. It seems to be a topic  that is so really talked about that when we experience it all assume the worst. My GP referred me for an ultrasound (trans-abdominal and transvaginal) and the report came back indicating that I have probable andenomyosis. There was a slight thickening of the ovaries (4.4 mm) but that didn't seem to be of concern to them given that I have missed a period and it now experiencing one very heavy period. I also noticed a small cystic area but again don't think that is serious. Now got a two month wait to see a gynaecologist. I've been perscribes tranexamic and provera I am really not prepared to just carry on bleeding indefinitely. As many of you have commented I believe that this is an issue that is just swept under the carpet because they assume that most women are too embarrassed to take it further.

I would happily agree to a hysterectomy mother then spend months of a cycle of being seen being sent for another test it's stopping the symptoms for a week and then they come back with a vengeance. Why should I have to have a A coil put in, internal scans month after month, cells taken again and again while putting my life on hold???

Hi everyone 

I hope you are all doing ok.

I have only skimmed through the posts, so please correct me if I am wrong, but I couldn't see any where the Mirena, Provera & TXA worked & I wonder why gynae & gps keep prescribing treatments that don't work.

I'm now 46 & have the Mirena, been using it for 12 years, initially to treat Complex Hyperplasia with Atypia & polyps. Thankfully it worked & between 2012 & 2017 I had no periods. Since then, my periods have returned, really short & light to begin with & I hardly needed any sanitary protection. Unfortunately, in the last year, the amount of blood & length have increased. I've now been bleeding for 7 weeks, my last one was 6 weeks (with a 9 day break in between). I also get really bad cramps - which can be worse & crippling after exercising.

I'm on my 3rd Mirena in 2 years, gynae keep insisting on changing it and I've been on Provera for 2 months. Last week my GP prescribed TXA but as with the lady who started this thread, I want the bleeding to stop naturally.

I've been so fed up with it all that I'm going down the alternative therapy route & have recently started having acupuncture & energy healing.

I have a gynae follow up next week & suspect I'll be fobbed off with more drugs. Although I find it does depend on which consultant - I've spoken to a few & they all have different ideas. One did suggest we remove the coil, stop the provera & see if my body can sort itself out naturally. That's also now my preferred option & I'll be pushing for that.

take care X

Hi guys,

Just reading through all this, and it's kind of nice to know I'm not alone.

I'm 27 years old and I'm on day 25 of my period. 
It's strange, as I thought it had stopped yesterday and BAM! Heavy today with clots.

Basically, I've been on a light period for the most of the month and then suddenly in these last 4 days it heavy and had clots. I took that as a sign as it finally flushing everything out so it would end, was lulled into a false sense of security with it becoming lighter and then today it's just become heavier again.

Totally fed up! I went to the doctors and they said to 'wait it out' for another 6 weeks (that was 2 weeks ago) but I have been researching and I'm going to ring up on Monday and push for bloods and an US. 
Any advice on how to push for this? 
I have slight abdominal discomfort alongside the bleeding.

It's stressing me out (which isn't that great I know) as my husband and I are trying to conceive.

Thanks

Hi there,

ive had on and off heavy bleeding for about 6 months now I'm 30. First started a few years ago when I hadn't had any bleeding for a year after I got the implant taken out. I went for a pelvic scan and was shown to have a thick lining so was referred to gynaecologist. While I was waiting for the appointment I had a very heavy and prolonged period. When I went to the gynaecologist I was told it was because I was over weight and should lose weight to have normal periods. Now I am over weight but nothing to the degree that would effect my period. I was out on the mini pill and that was the end of that. Was on the mini pill a year and decided to come off because it stopped my periods all together, my period returned as normal and had a healthy period cycle for over a year. Then back in July I missed a period, next month I had it then the following month I didn't. That continued up until the start of December. Around the start of December I got my period very heavy with large clots for 2 weeks then I had spotting for a week and now back to a heavy period that isn't stopping with large clots. I've been taking tranexamic acid that I had left over last time ( still in date) because it's so hard to get an appointment with the gp. Even if I get an appointment with the gp they relate anything to my weight and then that's it don't hear from them again, I have been the same weight for 2 years had a healthy cycle for a year and a half then this happens. Anyone have any suggestions what I do. Or what it could be? ( my weight although not great but it has been steady for years and I fit into size 16 clothes so I'm not horribly obese)

I have had heavy vaginal bleeding since 23rd January. I know its not long considering some people's posts on here, but I can't get to SEE or even a telephone conversation with my doctor, because of covid. They recommended I wear no tampons but just pads but I am doing so much blood I feel disgusting, and have to wear a tampon as well. The doctor also recommended a pelvic exam, but the first time I had one of them I bleed for six weeks, and a male doctor I spoke to, to tell him about the after-pelvic-exam bleed, said due to the length of my bleeding after the pelvic, he said I should NEVER have anything like that again. My doctor at our walk in center said if I'm not changing protection every one or two hours, its usually further apart than that, then I'm not losing enough blood to worry about. My mother said I should get a D and C but due to my bleeding history when I had a pelvic exam, I don't think that's a good idea, since I am trying to STOP bleeding. What does anyone else recommend, as its snowing heavily here and due to my disability, I can't walk to the surgery or hospital, as I can't walk on snow and ice at all without falling over! I think my bleeding is either caused by mennorhagia or uterine fibroids but I am not a doctor. I'm 35