Waiting for biopsy results - Uterine Cancer

I have just started the agonising wait for results. Had a hysteroscopy on Saturday and was told it should be 2 weeks. I am quite a strong person but this is going to be hard. Of course I know that it could be fine but I went to my GP in January and it is now April. Even if the results are clear I still have to have all the polyps removed under a 'general'. 

Parents
  • Had 1 today, n was in severe pain all the way through, they say it should be painless, yet I'd got two nurses fanning me with bedpans as I'd gone pure white n was sweating because of the pain I was in, I'm dreading my results but not because of their outcome, because I'm absolutely terrified of having a procedure like that done again, my doctor said I'd had aneasetic, but I felt that much pain surely it should of been stopped as that's what you quote ? I'd rather them operate to remove anything they find, than to go through that again. Am I the only 1 who feels this bad ?

  • I had hysteroscopy done yesterday and had two biopsy’s taken cause she didn’t think she had enough, omg I can tolerate quiet abit of pain but that was horrendous I was doing abit of shouting she said if  they needed more tissue samples they have to it under general anaesthetic next time, my husband doesn’t seem to no wat all the fuss about like I’ve had a stroll in the park and I’ve graised  my knee, I’ve cried non stop since yesterday because I think I’m over reacting about it as well maybe it’s just shock...

  • Hi kezyt sorry not been in touch I’m still waiting for results to com back had hysteroscopy done on 30th July which seems to have triggered a monthly bleed to which I ended up back at hospital twice because they didn’t know what was going on they were bothered about how much blood I was losing and that I could collapse at anytime so my husband was then panicking, had to stay on tranexamic acid for nearly 2 half weeks can not take any other meds because I’ve had breast cancer so they have now decided that they are going to endometrial ablation to hopefully sort out the heavy bleeding there abit reluctant to do hysterectomy because it would be a major operation for me,my hubby is quite a bit better than he was think he got abit of shock from the fact I could of collapsed which I think scared him and he seems to be a bit more understanding about it all now, have now got an appointment through to talk to somebody about the next step the endometrial ablation have to go back through the system now because I was discharged (what a joke). Anyway bleeding has stopped for time being so don’t mind waiting but everything is waiting game and I’m not the most patient person in the world, I hope you’re feeling better hugs from me to you aswel.xx

  • HI, hope your feeling a little better still.  My bleeding has finally stopped, after three months and I feel a little better. Keep popping the iron tablets for anemia though.   I get my results on Friday and I am hoping we will discuss the next way forward for me.  Glad your other half has stepped up to the mark - mine did for a few days lol but seems to have forgotten again now !.  Anyway, been to see a fair few of my girl friends last week so lots of hugs all round. 

    I hope yur waiting list isnt to long and i wish you well

  • Hi all, I had my biopsy 4 weeks ago and just received a letter yesterday. I was hoping it was the results but instead it is another appointment to see the same specialist who did the biopsy. Now my heart is in my mouth thinking of the worst case. My appointment is on the 22nd of October, nearly 2 weeks away. Has anyone any advice as to how I can keep positive and upbeat plz plz, many thanks. PS Im trying to think well it can't be bad as I'm not bleeding and in pain any more xx

  • Hi Sharon14

    i got my results recently, same as you I had to wait two weeks so I understand your anxiety and good news - all clear for endometrial cancer. I have other diagnosises yhough (these were diagnosed by scans) and tbh am still bleeding terribly 5 months in, terrible pain so I will be having an hysterectomy on Saturday - and wow does that feel like a Christmas gift for me as I have tried everything.  Try not to feel anxious (easy said I know) but it is not unusual for the same consultant to call you back to give results and yes, good news about your bleeding too . Keep busy, keep talking about it if that helps and take all the support you can . Wish you well x

  • Aw huni, thx so so much for replying, I was beginning to think I was on my own, stupid I know. Fingers crossed for the best results for you. Can I just ask, with your vaginal bleeding did you have pain in your thighs and hips too. The doctor prescribed me Temazipam, which I have stopped taking as I was feeling a lot bettre, but since sunday the pain has come back again, I did'nt even tell my Mum. It just feels like my lower half of my body is trying to fall out, I know it sounds weird but that's the only way I can describe it. Any views hun or opinions for anyone else, would love some rational feedback to stop my brain going 110 miles an hour xx

     

     

  • Oh my goodness- I could have wrote this. I'm having hip and thigh pain too. Had biopsies taken almost five weeks ago and MRI week after. Not heard a thing. Tried chasing and not getting anywhere.. I'm feeling very down with the wait - it's like torture

  • Aw hun. It really is bloody aweful. I hate this waiting. Im trying so so hard to bd positive anx upbeat but then the anxiety gets the better of me in MASSIVE waves. Have u got the irregular bleeding too hun. If so. Are you in much pain xxx

  • Hey hun. If u just want to moan and winge. Im here ok. I jnow how it feels to feel all alone xx

  • I have 3 sisters AND my Mjm n still somehow feel kn my own xx

  • ok so I finally got my results and all clear.

    but when surgeon was in there he found 3 polyps ( the same ones the other surgeon apparently took out month before. )

    i was also covered everywhere with endometriosis, and scar tissue lesions everywhere from 2x c sections and a burst appendix which he said would defo have been a cause of pain.

    He then did a womb ablation and burnt my womb lining away. I’m done with kids so that’s all good. Sterilised me too just to make sure.

    apart from the expected bleeding after I’ve only had a tiny 3 day period in 2 months.

    Check out pelvic congestion syndrome for that thigh pain. I had that and made me feel like I wasn’t a freak for having pain there. Wishing everyone good news

Reply
  • ok so I finally got my results and all clear.

    but when surgeon was in there he found 3 polyps ( the same ones the other surgeon apparently took out month before. )

    i was also covered everywhere with endometriosis, and scar tissue lesions everywhere from 2x c sections and a burst appendix which he said would defo have been a cause of pain.

    He then did a womb ablation and burnt my womb lining away. I’m done with kids so that’s all good. Sterilised me too just to make sure.

    apart from the expected bleeding after I’ve only had a tiny 3 day period in 2 months.

    Check out pelvic congestion syndrome for that thigh pain. I had that and made me feel like I wasn’t a freak for having pain there. Wishing everyone good news

Children
No Data