Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi Clara,

This must be a great disappointment for you. Have you received another appointment yet?

I hope that it won't take too long before you get it.

Kind regards,

Jolamine xx

Hi Clara

just a quick message Bengal Kitty and I are hoping you are ok and look forward to hearing how you have got on since your hospital visit.

hope all ok

hazel xx 

Hi Hazel.

I am Very touched with the kind thoughts and wishes of all you kind people. xxx

I know its early days,but I didnt think it was going to be as bad as its been. I shouldve jumped in your boot when I had the chance lol.

Well you keep on biking hon and enjoy your well deserved break xxx

Dear Clara it is fantastic to hear from you....wish we could all do more to help you through this horrific time, Kitty has been worring so much about you.... Wish we could all gather round you get you through this horrific time...but please remember we are all sending you love, strength, stay strong Clara i know it is so hard.... i havent been through the heartache  you have had to endure,.. but my love,and heart is with you every day....xo speak soon xo your friend Dee.

She's home! Woohoo! So relieved,  you've  been through the worst bit now, Clara, just concentrate on getting through the pain and getting yourself well. Chicken soup for the next 3 weeks...... Where is the chicken emoji.....

Xxxxxxxxxx

Hi Clara

keep strong younwill get ther .plus yiubcan jump in boot next time !

biking doing ok taking it slowly nit over doing it baby steps all the way .

when does treatmentbstart please let us know so we can help if we can

h x 

Hi Hazel.

I see consultant in 3 weeks,she mentioned that I will need 5weeks at least to heal.

Other than that no mention of chemo/rad yet. But my origional consultant said if I needed neck dissection then I would be having radiotherapy :-(

Speak soon xx

Hi Dee,

I dont get email notifications so couldnt post via phone while in hospital. Shouldve took ipad in with me.

A few things kept me grounded in bed on drips, oxygen and feed tubes. Things I didnt expect. Had a look in my mouth well as much as I can any way ugh not pretty. :-( Neck not either I look like I`ve been attacked between the slash and bruising :-( She didnt take me up on neck lift either,just have to win lotto then :-)

I have stitches and glue oh my doesnt half itch. Did you have alot of numb areas on face ,ear and neck?

I know my op will have differencies from yours but the nerve pains are bad all on right side, and a headache that wont shift since day of op.

Thank you so much for your support and friendship means a lot xxxx

Hi Clara,

I’m glad to hear that your surgery is behind you now, although I’m sorry to hear that it was so traumatic. Still, here’s hoping that it’s onwards and upwards from here.

We are all thinking of you and wishing you the strength to kick this into touch.

Kind regards,

Jolamine xx

Hi Kitty,

Yes thats over thank goodeness. I think I fooled myself or the docs did :-(

Coming up one chicken imoji :-)

xxxx

Hi Kitty,

Yes thats over thank goodeness. I think I fooled myself or the docs did :-(

Coming up one chicken imoji :-)

xxxx