Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi Clara,

I'm sorry to hear about your uveitis. This must be difficult for you to cope with.

You are so right about taking our eyes for granted until something happens. After my 4th eye op, I gradually lost the sight in one eye and then began losing it in the other and had to stop driving.  A laser operation last year eventually restored my eyesight and I feel so humble to have got it back, but I still feel nervous of having anyone working in that area.

This site is a great help. Like you, I hadn't come across the site when my parents were terminal. It wasn't until I was diagnosed with cancer myself that I discovered it and, it has been a real boon to me.

Kind regards,

Jolamine xx

Hi Dee,

Just a wee update.

I got an email from breast clinic. They have cancelled tomorrows appointment.

No further info in email, so I will just have to wait and see if local clinic sends appt out for me. But I will chase it up if I dont hear anything in near future.

My daughter says I should keep fingers crossed that I dont get the German breast consultant, apparently he is every woman`s worst nightmare as a dr.

Take care my friend speak soon xx

Clara I think I got my days mixed up - I had in my head that your surgery was scheduled for tomorrow but it's today isn't it - you won't be able to read this today but please know that we're all thinking of you, I know you've been dreading this day, bless you.

Already feeling emotional, watched the Peter Capaldi /Lewis Capaldi music video ( Someone You Loved) this afternoon while making dinner - have seen it before but was unsure what it was about so Googled it  - it's about a man whose wife dies and her heart goes to a young Mum. He goes to visit the family and the young woman places his hand on her chest so that he can feel his wife's heart beat one more time. Bawled my eyes out. Then realised I'd got the days mixed up and felt even worse, I should have sent a message of support this morning, so sorry. I hope the surgeon is the best in his field and I hope you aren't in too much pain. It's really difficult to find the right words but hope you get some comfort from knowing that all on here are sending their love and best wishes xxxx

Hi Clara 

let us know when you are around and able to .like Bengal kitty says we are all routing for yiu. 

Update  on me biked 18 km today ok it’s nit the Tour de France but bany steps

vingrrs n goes x

h x 

Hi Clara,

This must be a great disappointment for you. Have you received another appointment yet?

I hope that it won't take too long before you get it.

Kind regards,

Jolamine xx

Hi Clara

just a quick message Bengal Kitty and I are hoping you are ok and look forward to hearing how you have got on since your hospital visit.

hope all ok

hazel xx 

Hi Hazel.

I am Very touched with the kind thoughts and wishes of all you kind people. xxx

I know its early days,but I didnt think it was going to be as bad as its been. I shouldve jumped in your boot when I had the chance lol.

Well you keep on biking hon and enjoy your well deserved break xxx

Dear Clara it is fantastic to hear from you....wish we could all do more to help you through this horrific time, Kitty has been worring so much about you.... Wish we could all gather round you get you through this horrific time...but please remember we are all sending you love, strength, stay strong Clara i know it is so hard.... i havent been through the heartache  you have had to endure,.. but my love,and heart is with you every day....xo speak soon xo your friend Dee.

She's home! Woohoo! So relieved,  you've  been through the worst bit now, Clara, just concentrate on getting through the pain and getting yourself well. Chicken soup for the next 3 weeks...... Where is the chicken emoji.....

Xxxxxxxxxx

Hi Clara

keep strong younwill get ther .plus yiubcan jump in boot next time !

biking doing ok taking it slowly nit over doing it baby steps all the way .

when does treatmentbstart please let us know so we can help if we can

h x 

Hi Clara

keep strong younwill get ther .plus yiubcan jump in boot next time !

biking doing ok taking it slowly nit over doing it baby steps all the way .

when does treatmentbstart please let us know so we can help if we can

h x 

Hi Hazel.

I see consultant in 3 weeks,she mentioned that I will need 5weeks at least to heal.

Other than that no mention of chemo/rad yet. But my origional consultant said if I needed neck dissection then I would be having radiotherapy :-(

Speak soon xx

Hi Clara

glad you are recuperating take this time to chill,out keep in touch let us know Hiw yiubare getting on. Hospitals don’t really cater for  us with sore mouths. I know on my chemomdays I struggled .weathervhere v good although 25=degrees is a tad too hot for me so sat in shade then went to bed for an hour as biked 48 km yesterday thunk I pushed my self a bit too far. Butbhey yiuve got to learn. 

Please keep in touch and good news re breast clinic let your daughters pamper you for a few weeks 

h x