Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi clara oh to sail off on a cruise.....maybe we can all one day.... we bought a pup a gorgeous Goldendoodle last year hes the size of an adult now! so cant even pack him away! but hes such a gorgeous gentleman love him to bits!! well clara you must be running around like a headless chicken.... hope clinic have been in touch so thats a bit off your mind for a wee while...are the hospital going to sort out trasport for you??  clara i dont know very much about my cancer at all but im due back 13th feb for check up so im gonna ask more what they did tell me was they found trace of cancer in lympnodes so they removed them 14 my husband tells me....wonder why so many if it was only trace? doc told me hed thought stage 2 but because of trace in nodes was more stage 2/3  so maybe until they remove what they will only then can they tell you more? no sure clara i heard word Cancer thought right get the damed thing out!! I wish we all on here could go hold your hand in hospital clara while you go through this xo...but wer all with you in mind... keep us all posted on here help get your time in when in hospital....pity you cant jump into Hazels boot peace from all the torture...  bet youd even wear your bikini!! keep up the humour clara...your friend Dee.xo

Hi Jolamine.

I cant find the words to say how awful I feel for what you have been through and, still are going through.

You are a strong and determined lady for sure.

I hope your surgeon is one of the best. I can understand why you will be concerned after 5 eye surgeries. We tend to take our eyes for granted untill something happens. I suffer from uveitis and other inflammitory problems it comes on so sudden with no warning, so Ive become a bit paranoid about my eyes over the years.

I am so taken aback at how folks on here share and care I dont think there is another quite like it. I wish i had found this place when my husband had become terminal.

Take care Jolamine & I will be thinking of you. xxx

Hi Dee.

Your dog sounds adorable! I would love another dog but I couldnt excercise him/her so that would be unfair to any pet.I had bearded collies for many years. Daughter sent a photo last night of her wee dog and cat sound asleep together on a blanket on sofa, this is a first as they have a love/hate relationship.

I watch supervet program on tv and get heartbroken for these pets and owners,said to daughters I need to stop watching this.

I missed a call this morning from an nhs number that doesnt accept incoming calls, hopefully they will call back, but being a Friday they probably wont and I will be left wondering.

I am sorted for next week for transport. But if I have to do the 7weeks at cancer treatment centre its quite a distance and a nightmare with city traffic I will have find out about transport for that.

I do remember they took a whole lot of lymph nodes with my hubby, apparently the cancer cells can skip a few nodes and appear in another node further down so they remove more nodes as a precaution.

I made chicken soup yesterday to freeze for when I get back home(chicken soup sorts eveything lol) and made space for more ice cream as Ive ate it all. So def no bikini for me :-) Ive been wracking my brain to remember foods I made for hubby,but things changed so much with him,what he could eat one day, he couldnt the next. A lot of food got binned back then.

Take care speak soon love and hugs xxx

PS Just seen picture of your dog on your avatar. Omg I love love love him! I dont get jealous but I AM :-)

Hi Clara,

I'm sorry to hear about your uveitis. This must be difficult for you to cope with.

You are so right about taking our eyes for granted until something happens. After my 4th eye op, I gradually lost the sight in one eye and then began losing it in the other and had to stop driving.  A laser operation last year eventually restored my eyesight and I feel so humble to have got it back, but I still feel nervous of having anyone working in that area.

This site is a great help. Like you, I hadn't come across the site when my parents were terminal. It wasn't until I was diagnosed with cancer myself that I discovered it and, it has been a real boon to me.

Kind regards,

Jolamine xx

Hi Dee,

Just a wee update.

I got an email from breast clinic. They have cancelled tomorrows appointment.

No further info in email, so I will just have to wait and see if local clinic sends appt out for me. But I will chase it up if I dont hear anything in near future.

My daughter says I should keep fingers crossed that I dont get the German breast consultant, apparently he is every woman`s worst nightmare as a dr.

Take care my friend speak soon xx

Clara I think I got my days mixed up - I had in my head that your surgery was scheduled for tomorrow but it's today isn't it - you won't be able to read this today but please know that we're all thinking of you, I know you've been dreading this day, bless you.

Already feeling emotional, watched the Peter Capaldi /Lewis Capaldi music video ( Someone You Loved) this afternoon while making dinner - have seen it before but was unsure what it was about so Googled it  - it's about a man whose wife dies and her heart goes to a young Mum. He goes to visit the family and the young woman places his hand on her chest so that he can feel his wife's heart beat one more time. Bawled my eyes out. Then realised I'd got the days mixed up and felt even worse, I should have sent a message of support this morning, so sorry. I hope the surgeon is the best in his field and I hope you aren't in too much pain. It's really difficult to find the right words but hope you get some comfort from knowing that all on here are sending their love and best wishes xxxx

Hi Clara 

let us know when you are around and able to .like Bengal kitty says we are all routing for yiu. 

Update  on me biked 18 km today ok it’s nit the Tour de France but bany steps

vingrrs n goes x

h x 

Hi Clara,

This must be a great disappointment for you. Have you received another appointment yet?

I hope that it won't take too long before you get it.

Kind regards,

Jolamine xx

Hi Clara

just a quick message Bengal Kitty and I are hoping you are ok and look forward to hearing how you have got on since your hospital visit.

hope all ok

hazel xx 

Hi Hazel.

I am Very touched with the kind thoughts and wishes of all you kind people. xxx

I know its early days,but I didnt think it was going to be as bad as its been. I shouldve jumped in your boot when I had the chance lol.

Well you keep on biking hon and enjoy your well deserved break xxx

Hi Hazel.

I am Very touched with the kind thoughts and wishes of all you kind people. xxx

I know its early days,but I didnt think it was going to be as bad as its been. I shouldve jumped in your boot when I had the chance lol.

Well you keep on biking hon and enjoy your well deserved break xxx

Dear Clara it is fantastic to hear from you....wish we could all do more to help you through this horrific time, Kitty has been worring so much about you.... Wish we could all gather round you get you through this horrific time...but please remember we are all sending you love, strength, stay strong Clara i know it is so hard.... i havent been through the heartache  you have had to endure,.. but my love,and heart is with you every day....xo speak soon xo your friend Dee.

She's home! Woohoo! So relieved,  you've  been through the worst bit now, Clara, just concentrate on getting through the pain and getting yourself well. Chicken soup for the next 3 weeks...... Where is the chicken emoji.....

Xxxxxxxxxx

Hi Clara

keep strong younwill get ther .plus yiubcan jump in boot next time !

biking doing ok taking it slowly nit over doing it baby steps all the way .

when does treatmentbstart please let us know so we can help if we can

h x 

Hi Hazel.

I see consultant in 3 weeks,she mentioned that I will need 5weeks at least to heal.

Other than that no mention of chemo/rad yet. But my origional consultant said if I needed neck dissection then I would be having radiotherapy :-(

Speak soon xx

Hi Dee,

I dont get email notifications so couldnt post via phone while in hospital. Shouldve took ipad in with me.

A few things kept me grounded in bed on drips, oxygen and feed tubes. Things I didnt expect. Had a look in my mouth well as much as I can any way ugh not pretty. :-( Neck not either I look like I`ve been attacked between the slash and bruising :-( She didnt take me up on neck lift either,just have to win lotto then :-)

I have stitches and glue oh my doesnt half itch. Did you have alot of numb areas on face ,ear and neck?

I know my op will have differencies from yours but the nerve pains are bad all on right side, and a headache that wont shift since day of op.

Thank you so much for your support and friendship means a lot xxxx

Hi Clara,

I’m glad to hear that your surgery is behind you now, although I’m sorry to hear that it was so traumatic. Still, here’s hoping that it’s onwards and upwards from here.

We are all thinking of you and wishing you the strength to kick this into touch.

Kind regards,

Jolamine xx

Hi Kitty,

Yes thats over thank goodeness. I think I fooled myself or the docs did :-(

Coming up one chicken imoji :-)

xxxx

Hi Jolamine,

I think I wasnt as well prepared as I thought,although I didnt want to overthink then chicken out.

I must say I met up with women in wards who had been through so very much,this is a cancer that keeps on kicking back for some. So very cruel. The treatment ie: surgery is quite devastating.

Breast clinic have written to say they are happy for me to see GP and take any further testing etc from there on GPs advice. That makes me feel they were being cautious.

So good to hear from you xxx

Hi Clara,

I can appreciate that it's not the easiest cancer to deal with - maybe just as well that you weren't prepared for all you had to go through. Unfortunately, cancer is one of these diseases that continues to challenge us and, you'll always meet others, who are worse off than you are.

I am glad to hear that the breast clinic is leaving you to the care of your GP for now.

Take care of yourself.

Kind regards,

Jolamine xx

Hello Clara its great to hear from you hope you are able to eat some...i think just being at home helps so much as you can eat your own food when i was in hospital they had nothing on the menu that i could eat they threatend me with the tube if i didnt eat! id like to see them eat potatoes meat after this kind of op!                Clara i did have numbness in face ear neck but it will get better each day...tho the radiothearpy will numb your neck for a long time after treatment mine is still numb 2 years later...takes a while for nerve endings to. repair i was told somtimes years. I was left 6 weeks until first radio treatment which is good as i think after what you have been though you need to get back to feeling like yourself again, i didnt have the headaches Clara but maybe you are a bit dehydrated...I see you havent lost your sense of humour Clara...                                  Take it slowly Clara sending you a massive hug. XO XO