Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi ladies love the new moniker razzing !!!!M!LOL. 

i said to daughter the other day I thunk I will write  a book  she retorted quickly hope u get a good deal mum co unwill need a dammed good proof reader to rev write your typos !!!!!!!!Cheeky

yep laughter us the best policy

h x 

Thanks for the suggestions for mouth washes by the way - I'm sure I have some sodium bicarbonate stashed away somewhere from when I used to watch that weird house cleaning programme with Aggie and What's Her Name - memory is shot these days...

But the Orabase paste is helping, except that my tongue now seems to be cemented to the side of my mouth. Reminds me of the time when James was about 9 or 10, I took him to the dentist for a check up and unbeknownst to me,he had picked up a free sample of what he thought was toothpaste and had rubbed it on his teeth. On the way back to the car, he started making these strange strangled- sounding noises - turned out it was Poligrip denture fixative and his upper and lower jaws were bonded together. Being a good mother, I couldn't do anything for laughing, poor boy is probably emotionally scarred for life now...

Oops kids bless em. 

Baking powder is slightly less dizzy than bi carb ofvsosa as well so try that. 

Made me laugh re polident  , I liken my mouth and saliva at the  momemt t to having a  tube if super glue permanently in my mouth and trying to shove food through it is tiring. 

But roll onnFriday byhe car n us are going to spain for our 10 week trip along with lotions and potions Ensure drinks just in case bottles of  if water for the journey ,hoping to get out in bike and that saliva makes a remarkable comeback .I will  be online still,checking so keep uo the questions .

where in treatment are you kitty 

hazelm

I had a tongue biopsy as I'd had a sore on the side of my tongue for 4 weeks, Razz, and the pain was horrendous,the caresheet from the Hospital said to  expect some mild pain and discomfort- !! So I  googled Pain After Tongue biopsy and it led me to this Forum where I found some wonderful support while I was waiting for the results.

And then D day came - and it showed no signs of malignancy.  But the Dr couldn't sign me off as the area is just not healing and he asked me to come back in 6 weeks.

So  really I have no right to be here any  more, but the kind people on here said I should still let them know how I get on so I am still here and still getting great advice about how to deal with the soreness.

I am just blown away by how generous and kind people are, no self-pity despite the awful things they are going through. Wish I had a magic wand....

Hi of course you do have a right,plus you give us a laugh when needed keep it up

h 

Hi Hazel

So glad you agree that Kitty should be here :-) Her experience of a very painfull biopsy is going to help others that are experiencing the same. My first two biopsies were fine so Im no help to anyone coming here for advice unless they`ve had a palate biopsy as my 3rd one was.

Ive been waiting for hospital letter for pre op check. They phoned today to confirm admission next week so the clock is ticking:cry:

Are you all packed and ready? Bikini, shorts, T Shirts!

Hi Clara 

more like Lycra and factor 50 is packed!! We try to cycle most days but under no illusion that I will be doing 50/75 km will settle for a steady 30 km   Factor 50 as radiotherapy caused my neck to have 3 rd degree burn so likeca baby skin.  Just pondering Wether a burka might be in orders!!! Only joking  just going to use false tan and sit in the shade will cover up as  much as I csn. Wil post photos on blog. 

Must  agree ee kitty can give useful feedback. Anyway good luck for next week k baby steps take it one day at a time  keep in touch 

h

Clara, was speed reading and just saw Packed - Bikini, shorts and T shirts and for a moment thought this was your packing list for your surgery - blimey, I thought,  you must be having it done privately!!

Have an amazing time, Raz, and bring back the yellow jersey ( sorry, hubby is well into the Tour De France! )

It's a pity that you can't post personal pictures on here as the thought of Raz in a burka....

The Orabase paste seems to be doing the trick, far better a layer  of that  than those  pesky silicone mouth guards. A bit tricky during the day as its difficult to talk with my tongue welded to the side of my mouth, but at least my work colleagues seem grateful for the ( temporary) respite!

Hi

so at e are well,into cycle races  as well ! Watching tour of  oman at min , looking forward to  giro Tour of Yorkshire’s the classics the list goes on. Maybe if you send me a friend request then we can swop emails then I can send photo .  Same applies to Clara is she wishes 

Re nitbtalking I didn’t loose my voice but already orpeares with an app for ohi e that I typed into it and could choose voice posh bird or cockney twang etc Jihn the hubby wasn’t getting off that lightly !  Think it w as called speak , yiu can surprise the girls at work .

H 

Hi Kitty.   Private!!!! I wish. I would have been in and out by now :-)) Me in a bikini I think the fashion police would be after me.

I wish I had known about the orabase paste, would it stick to palate do you think?

A story in papers yesterday about a woman from London having tongue cancer and story went on to describe her glossectomy etc with photos. There is a news feed on FB and people can leave comments, some comments were quite sick and obscene my daughter wouldnt let me see them. Not that I am delicate, she felt it was so awful they should have closed the comments down. Shocking to say the least!

 xx

Hi Kitty.   Private!!!! I wish. I would have been in and out by now :-)) Me in a bikini I think the fashion police would be after me.

I wish I had known about the orabase paste, would it stick to palate do you think?

A story in papers yesterday about a woman from London having tongue cancer and story went on to describe her glossectomy etc with photos. There is a news feed on FB and people can leave comments, some comments were quite sick and obscene my daughter wouldnt let me see them. Not that I am delicate, she felt it was so awful they should have closed the comments down. Shocking to say the least!

 xx

HinKitty and Clara

i really don’t care seeing as I’ve lost 2 stone flaunted body before so deffowillmagain ok plastered in false tan and factor 50 sat under a brolly but will give it a go. Lol

nit seen the facebook,posting but it’s surprising whatbcomments I do get inhas a lady in densities whike inhas feeding Ruben In clearly talking about me and not to me about how I shouldn’t be out with one of those in. She wasn’t young either at least 75 and should have known better. It was as if I wasn’t invisible!

h x

Hi Hazel

You go for it girl ! I have been keeping weight up just in case. Well thats my excuse for ice cream, cakes and everything else. Not eating well last few weeks has made me obsessed with food.

I have relatives 70+ and yes they have foot in mouth, think they can say whatever comes into their minds. Brother-in-law said to me today "your only getting a bit off your tongue" I ended the phone call quick. I am still boiling mad hours later.

I had a mammogram done last week,wish I had`nt now. I got a re-call letter to go for more tests at breast clinic next week. I don`t think I will I`ve got enough on next week.

Any room in your car boot for a runaway.PS ive got a passport;)   xx

DHi Clara 

omg it never rain s but it pours ! I had my mammogram the day after I got my diagnosis I ended up consoling the nurse as when it got to then has any medical,changes happened since last one I started telling her and obviously she knew what was coming for me and broke into tears ! 

Sure you will be fine it’s not  unusual nowday for the scans to show things that aren’t really there think you should go if yiubcan otherwise it will be in your mind  ring uo and explain see if they can tell you any more over phone 

ok can squeeze you in will,pick u uo Friday !

oh yes a lot of insensitive people aeound

h. Keep in touch will be checking in whilst away can’t let my flock carry in without me. Lol

h x 

Hi Clara,

I am so sorry to hear that you have been recalled to the breast clinic next week. If you are too busy next week, please phone and explain your situation and re-schedule.

I am sure that, with all you've been through, you realise the importance of dealing with any cancer as soon as possible.

As Hazel says, it could well be something and nothing, as tests are so sensitive now. Here's hoping that it will be good news, but better safe than sorry.

Kind regards,

Jolamine xx

Hi Jolamine.

Its not that Im too busy as such its just really bad timing. I am having cancer surgery next week at the other side of the country, my surgeon has transferred me to a university hospital.

If the further tests were to be at my local hospital breast clinic it would be so much easier.

I feel awful asking my daughter to take me to appointments etc. She told me she has used up all of her compassionate leave.

But I will get another appointment sorted asap.

I am going to carry on and assume for now that it will just be a routine thing, head in the sand that`s me :)

Kind regards and again thank you for reply xx

 Dear clara,   I have been reading all of your messages here just not knowing how to help...make things sound  that you will be ok that  its all gonna been fine once you get passed all you have in front of you....and you will... YOU are so strong...stronger than you ever realised just take one day at a time get this next lot of weeks....only when you are ready  maybe then back to breast clinic...You have such a fantastic sense of humour.... your daughters are there for you and everyone here on this fourm are standing beside you willing you on to get through  this next lot of months...Im not very good with words clara  but my thoughts and best wishes are with you each and every day... God bless...your friend Dee.xo 

Hi Dee. Good to hear fom you. Thought maybe you and hubby had swanned off on a wee cruise since Ive not seen you posting ;) It is a wonderful thing you do coming on here bolstering up folks that are feeling lost with diagnosis and all it entails :-))

I have been hitting my head off a wall today, why do nhs give you direct contact numbers and when you call all you get is a taped message. When you do get CNS to call you back she has to confer with another dept  and call back.

It took untill 4.15 today to get some sort of answers. Any how have sent off an email to Breast clinic explaining situation and will hear from them whenever.

D can I ask you if you were told your cancer stage? Ive been told the TNM and the grade but I hit a wall of excuses when I ask the stage. And its bugging me no end...... Im driving my daughter mad!

I do seem to have the habit of injecting a bit humour,cant help myself.

Hazel might find herself with a stowaway aboard yet haha.....

Thank you again and bless you.xxxx

Hi Clara,

I can understand how bad the timing is for you, but am glad to hear that you have contacted the hospital to re-schedule.

Do you not have a scheme whereby you can be driven to the hospital by a volunteer? This would save your daughter from having to take time off work every time you have an appointment. Ask at the hospital if such a service exists in your area.

I hope that your surgery goes well next week and that you don't have too long to wait for your re-scheduled appointment. I go in for surgery the week after you, but it's just for a melanoma this time.

Kind regards,

Jolamine xx

Hi Jolamine.

I have seen cars parked in ambulance area with Maggies cancer logo on side perhaps they are providing some sort of service, I will try to find some info. There is a patient transport provided by the ambulance service but, daughter says Im not having you wait about for hours for transport.

Oh Jolamine, the way you say "Just a melanoma". Are you not frantic about it?

Ive had AKs treated on my hands with cryotherapy "painful". I also have a Bowens patch that I have been ignoring I am ashamed to say.

 Take care and best regards xx

Hi Clara,

In our area it is a separate entity from Maggies, but it may well vary from area to area - there's no harm in asking

I can't say that I'm too happy about my melanoma, perhaps because I think that there are others elsewhere on my body which will need attention too. I've already had two bouts of breast cancer within the past 9 years and, have had a lumpectomy and a double mastectomy for these. I'm nervous yes, particularly because it is so close to the eye. I have had 5 eye operations in the past 2 years, so am not happy with anyone else interfering with that area.

I hope that you manage to get something sorted with transport.

Kind regards,

Jolamine xx