Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Well They always say Laughter is the Best Medicine - carry on Razzing! Reminds me of the time I  messaged my  friend saying Will you come and see Fantastic Breasts and Where To Find Them - she thought I was inviting her to a dirty movie! . :D :D 

Maybe I should get rid of the predictive texting .....

Hi ladies love the new moniker razzing !!!!M!LOL. 

i said to daughter the other day I thunk I will write  a book  she retorted quickly hope u get a good deal mum co unwill need a dammed good proof reader to rev write your typos !!!!!!!!Cheeky

yep laughter us the best policy

h x 

Thanks for the suggestions for mouth washes by the way - I'm sure I have some sodium bicarbonate stashed away somewhere from when I used to watch that weird house cleaning programme with Aggie and What's Her Name - memory is shot these days...

But the Orabase paste is helping, except that my tongue now seems to be cemented to the side of my mouth. Reminds me of the time when James was about 9 or 10, I took him to the dentist for a check up and unbeknownst to me,he had picked up a free sample of what he thought was toothpaste and had rubbed it on his teeth. On the way back to the car, he started making these strange strangled- sounding noises - turned out it was Poligrip denture fixative and his upper and lower jaws were bonded together. Being a good mother, I couldn't do anything for laughing, poor boy is probably emotionally scarred for life now...

Oops kids bless em. 

Baking powder is slightly less dizzy than bi carb ofvsosa as well so try that. 

Made me laugh re polident  , I liken my mouth and saliva at the  momemt t to having a  tube if super glue permanently in my mouth and trying to shove food through it is tiring. 

But roll onnFriday byhe car n us are going to spain for our 10 week trip along with lotions and potions Ensure drinks just in case bottles of  if water for the journey ,hoping to get out in bike and that saliva makes a remarkable comeback .I will  be online still,checking so keep uo the questions .

where in treatment are you kitty 

hazelm

I had a tongue biopsy as I'd had a sore on the side of my tongue for 4 weeks, Razz, and the pain was horrendous,the caresheet from the Hospital said to  expect some mild pain and discomfort- !! So I  googled Pain After Tongue biopsy and it led me to this Forum where I found some wonderful support while I was waiting for the results.

And then D day came - and it showed no signs of malignancy.  But the Dr couldn't sign me off as the area is just not healing and he asked me to come back in 6 weeks.

So  really I have no right to be here any  more, but the kind people on here said I should still let them know how I get on so I am still here and still getting great advice about how to deal with the soreness.

I am just blown away by how generous and kind people are, no self-pity despite the awful things they are going through. Wish I had a magic wand....

Hi of course you do have a right,plus you give us a laugh when needed keep it up

h 

Hi Hazel

So glad you agree that Kitty should be here :-) Her experience of a very painfull biopsy is going to help others that are experiencing the same. My first two biopsies were fine so Im no help to anyone coming here for advice unless they`ve had a palate biopsy as my 3rd one was.

Ive been waiting for hospital letter for pre op check. They phoned today to confirm admission next week so the clock is ticking:cry:

Are you all packed and ready? Bikini, shorts, T Shirts!

Hi Clara 

more like Lycra and factor 50 is packed!! We try to cycle most days but under no illusion that I will be doing 50/75 km will settle for a steady 30 km   Factor 50 as radiotherapy caused my neck to have 3 rd degree burn so likeca baby skin.  Just pondering Wether a burka might be in orders!!! Only joking  just going to use false tan and sit in the shade will cover up as  much as I csn. Wil post photos on blog. 

Must  agree ee kitty can give useful feedback. Anyway good luck for next week k baby steps take it one day at a time  keep in touch 

h

Clara, was speed reading and just saw Packed - Bikini, shorts and T shirts and for a moment thought this was your packing list for your surgery - blimey, I thought,  you must be having it done privately!!

Have an amazing time, Raz, and bring back the yellow jersey ( sorry, hubby is well into the Tour De France! )

It's a pity that you can't post personal pictures on here as the thought of Raz in a burka....

The Orabase paste seems to be doing the trick, far better a layer  of that  than those  pesky silicone mouth guards. A bit tricky during the day as its difficult to talk with my tongue welded to the side of my mouth, but at least my work colleagues seem grateful for the ( temporary) respite!

Hi

so at e are well,into cycle races  as well ! Watching tour of  oman at min , looking forward to  giro Tour of Yorkshire’s the classics the list goes on. Maybe if you send me a friend request then we can swop emails then I can send photo .  Same applies to Clara is she wishes 

Re nitbtalking I didn’t loose my voice but already orpeares with an app for ohi e that I typed into it and could choose voice posh bird or cockney twang etc Jihn the hubby wasn’t getting off that lightly !  Think it w as called speak , yiu can surprise the girls at work .

H 

Hi

so at e are well,into cycle races  as well ! Watching tour of  oman at min , looking forward to  giro Tour of Yorkshire’s the classics the list goes on. Maybe if you send me a friend request then we can swop emails then I can send photo .  Same applies to Clara is she wishes 

Re nitbtalking I didn’t loose my voice but already orpeares with an app for ohi e that I typed into it and could choose voice posh bird or cockney twang etc Jihn the hubby wasn’t getting off that lightly !  Think it w as called speak , yiu can surprise the girls at work .

H