Hello Ladies hope you are all well.

A bit of a mixed bag today some of which I didnt expect.

I have to have a procedure before surgery a lymphoscintigraphy(hope thats correct spelling). This can`t be done at my hospital so I`m told, so being transferred to the university hospital. So surgery has been arranged for two weeks time with a surgeon I`ve never met.

Consultant keeps looking at me with a strange look,he thinks I`m too calm. Maybe the calm before the storm do you think??

There was a couple of things I forgot to ask him as usual. That annoys me! But saying that he was reading bloods results I`d had done but did`nt share I had to prod him for answers so if you don`t ask you don`t get told.

I didnt get much sleep and was awake before the birds this a.m so I hope to sleep round the clock tonight.

My daughters face today when Dr was hurting my flaming tongue was a picture of tension she was waiting for me to explode,I did`nt though :-)

Oh and yes I have looked up this nuclear surgery hmm I probably should take my own advice and not do that. But when he said radioactive injections I just had to....

Speak soon. xx

I hadn't heard of the scintigraphy thing either but it seems like a good thing to do, I understand that it identifies the primary lymph node near the affected area and means that surgery is less invasive compared with the traditional lymph node dissection. I have learned such a lot over the past 2 weeks! So I am happy that they are doing this for you, Clara, but again just so sorry that you are in this situation.

Relieved that you managed not to headbutt the Consultant! 

I know what you mean about forgetting to ask things, I think if I need to see a doctor again, I will write down my list of questions and take it with me. 

Sending hugs xx

Hello clara how are you today...thought about you all day yesterday kept checking this page Im so sorry that the news itsnt good having to transfer to another hospital too...my heart goes out to you clara...shame you didnt let that nasty doctor know how much he hurts you...good job i wasnt there!! with all thats going on why couldnt he be a bit more decent?? From what i read here from kitty it seems a better idea than dissection which i had done which was invasive doesnt help the look of an older womens neck either!! wer all here for you clara between us and the strength of your girls which must be so hard for them also...stay strong our love best wishes xo D.

Hi Clara 

deep breaths keep iff google please. 

Ive had 2 radioactive injections whilst I was having pet ct scans the amount of radioactive serum is minute don’t worry about it yiu are only radioactive for aboutv8 hours keep away from children and pregnant women. 

Dont know about the lymohedocgomy but go with the consultant. My brother in law hasn’t justbhad sentinel nodes  biopsy ungetva general,he was out 4 hour sessions later his is melanoma on forehead not h n c I know  . Don’t panic I wasn’t told at my m f t one of my lymph nodes was in operable near my spine apparently at the back of neck dr Sen said don’t worry about it as radiotherapy will get it so I forgot about it  sometimes we have to trust in the consultant.

Keep kn touch

hazel 

  Hi clara good to hear from you, you must be a bag of nerves as must be your daughter too but you will get through this torture..and the sooner the better so many great people on here that are poof that we all have more strength than any of us realise...The couple Radioactive are such an insprieng couple arent they...So you go get that damed cancer by the throat! show it what your made of...its a long road clara but time goes so quick your girls and your family here are right along side you try not to worry you gotta get your sleep rest eat all you can now please stay as strong as you were holding your husbands hand...thats my girl im sure hed say...loads love claraxo        hey clara i asked for a nice pull and tuck the doc laughted said oh dont worry it will be tight!  x

Hi Hazel good to hear from you.

Solid advice as always! You are a credit to this c chat.

Yes scintigraphy has been used for melanoma and for breast cancer for quite some time I think its use is fairly new for h&n. I wont have to worry about being near anyone as Im an in patient for this I am getting taken in a day before surgery for this.

I cant help myself Ive always been an avid reader and like to be informed. I read over 270 books last year :-) If something gets me curious off I go looking. And of course by forgetting to ask the consultant things I then go off looking for answers myself.

Its quite scary how many people are being diagnosed hubbys brother-in-law has just been diagnosed with h&n too.

Yet I have an older sister whom smokes 3pks a day and other than a filthy chest she is fine.Defies logik.

See and get some tan on those legs while on your bike in Espania.xx

PS. I should say late hubby but cant get used to using that  as far as Im concerned he will always be my hubby. I get so annoyed when im refered to on mail as miz or miss as that is the title for divorced women and never married women. I checked lol

Hi D.

As you can see Im a night hawk always have been. I can lie in the mornings dont have any reason not to.

Im trying to keep nerves in check by not over thinking and keeping occupied. IE: got in from Tesco at 10pm and still had to get myself fed.

This is all getting a bit complicated,my older daughter is waiting to go in for a breast lumpectomy (not cancer but lump has grown alot)she has had her pre op check so is just waiting for a date. Hmm wont be ideal if its same time as me :-( I will not allow her to cancel under any circumstance.

Here is one for the What not to say to a person with cancer! My older sister on learning my diagnosis etc said she is going to visit sister in law that evening, Oh my! this will give us something to talk about tonight!  Geez if I ever get foot in mouth like that shoot me! Is it the adage Im a pensioner I can say whatever I like? It brought back a memory when her husband seen my hubby right after his surgery (it was pretty bad looking) he said my god what a mess your in! I had spent days telling my hubby he still looked the same old same old self.

Sorry Im waffling lol. Maybe time up lol

Speak soon. xx

Hi demc

thank you for your kind words. I just wish this site was easier to type on! The numbs of typo mistakes do my head in Lol  that u make  

I decided that h n c want going to beat me or define me having a wonderful oncologistbrrally heloed he just oozes confidence,even if you meet him in the foyer he makes a beeline of coming over give some me a hug I might not have been due to see him but if he see you he comes over for a chat and nit abiytbcancee it’s usually football or family  it’s the little things that’s why I am in her trying to pass my limited knowledge on  didn’t help this week niw eeffeeed back to local ent  n git bumped at first appointment, but went at ut like a dog with a bike We list nearly an entire year last year and I am getting that feeeybto Spain come hell or Hugh water. Lol

have a good weekend every body 

ps wa th out for an announcement 27 July world head and neck cancer day doing a sponseeed bike ride for my cancee hosoital will be setting uo a just giving page in the wirkds if Tesco every little helps  

haZel 

Hi Clara

your late husband is certainly still your hubby and don’t let any ones tell yiu any differently ! yes you are a Mrs as well the Ms does my head in .

i have a sister in law who is just as interfering when my neck was at butbstill worse she kept asking me when was I going to clean it up ummmmmm let me think about it oh Incant !!!!then her friend had breast cancer which is bad but sandra could always eat so she would say to Sandra can eat ,so I shouted one day I dont eat with my boobs !!!!! i eat  with a radiated mouth ! Didn’t shut her up though her hubby just had melanoma off top of head she is scrubbing it to get blood off wonder why he now has an infection in it !

oh well please keep in rouch

h x