Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

  aww what a lovely message kitty  thank you... im sure you will have the best sleep in the last lot of weeks...sleep well  keep well  and keep in touch the very best of best wishes mrs and DONT forget youve to book that MAMMOGRAM!!! REAL SOON!!!  xo

Added you and Clara as friends, demc, thinking I could message both of you at the same time, but it doesn't work like that on this Forum ( I used to belong to Dacia World Forum and you could add several people to the same conversation - yes, I drive a Dacia, please don't unfriend me!  :D .My badge-conscious son almost died of shame but I don't care, I love my Duster!)

​​​​​​Didn't sleep all that well with the mouthguards in, just felt wrong, but I will persevere. I'm going to see my dentist as a bit of filling crumbled off some time ago, it doesn't hurt so I thought I'd leave it until the next check-up but now I'm wondering whether that has caused erosion of the tongue. That or the toothpaste - have switched to an SLS-free one, amazingly Lidl do one for I think 59p, the branded ones like Kingfisher are ridiculously expensive. 

Got to get ready for work, one more sleep before your appointment,Clara, you know we'll be rooting for you xx

Hi Dee & Kitty,

For some reason I have the jitters about tomorrow, alot more real now and I think I`ve been burying my head in the sand a bit :-( But I`ve had loads of things to contend with(house buyers let me down yet again!) I was going to move back to my home then this all came up.

Kitty those are adorable pics!

I will be in touch soon keep well both of you ladies. xx

Hi Clara,

Here's hoping that all goes well for you tomorrow.

Will be thinking of you and praying that it's good news.

Kind regards,

Jolamine xx

   Dear clara our thoughts are with you for tomorrow... wer all here wishing you well... D.

Hi Jolamine,

Thank you for your kind words.xx

I think it wouldve been best if consultant had`nt said he thinks the cancer has spread at least untill he had some evidence ie:CT scan. Ah well I will know for sure tomorrow.

Kind regards xx

Hi D,

You are so kind, we are strangers but have all formed a friendship so quickly too.

I have spent the evening reading Ian`s blog about his journey. It brings back alot of memories.

My daughter visited today. She is going with me tomorrow. I told her if he gets the nasoscope out she is to excuse herself and leave the room. She asked why? I said because I may well hit him if he hurts my nose. She said in that case I`m not leaving.Haha I bet I get a warning off of her before we go in :-) I`m terrible!

Be in touch.x

Oh Clara I'm sorry to hear you're now worried about today, apologies for not logging in last night but awful day at work, went to bed early and am now wide awake at silly o clock. 

The same problems will be waiting for me at work today so I won't be able to check in till this evening but you know we are all thinking of you. 

Try not to punch the doctor, you need him on your side!!:D

Sending hugs to your daughter too because she is no doubt worried sick as well.

Fingers crossed ( and everything else) 

xxxxxxx

Hello Ladies hope you are all well.

A bit of a mixed bag today some of which I didnt expect.

I have to have a procedure before surgery a lymphoscintigraphy(hope thats correct spelling). This can`t be done at my hospital so I`m told, so being transferred to the university hospital. So surgery has been arranged for two weeks time with a surgeon I`ve never met.

Consultant keeps looking at me with a strange look,he thinks I`m too calm. Maybe the calm before the storm do you think??

There was a couple of things I forgot to ask him as usual. That annoys me! But saying that he was reading bloods results I`d had done but did`nt share I had to prod him for answers so if you don`t ask you don`t get told.

I didnt get much sleep and was awake before the birds this a.m so I hope to sleep round the clock tonight.

My daughters face today when Dr was hurting my flaming tongue was a picture of tension she was waiting for me to explode,I did`nt though :-)

Oh and yes I have looked up this nuclear surgery hmm I probably should take my own advice and not do that. But when he said radioactive injections I just had to....

Speak soon. xx

I hadn't heard of the scintigraphy thing either but it seems like a good thing to do, I understand that it identifies the primary lymph node near the affected area and means that surgery is less invasive compared with the traditional lymph node dissection. I have learned such a lot over the past 2 weeks! So I am happy that they are doing this for you, Clara, but again just so sorry that you are in this situation.

Relieved that you managed not to headbutt the Consultant! 

I know what you mean about forgetting to ask things, I think if I need to see a doctor again, I will write down my list of questions and take it with me. 

Sending hugs xx

I hadn't heard of the scintigraphy thing either but it seems like a good thing to do, I understand that it identifies the primary lymph node near the affected area and means that surgery is less invasive compared with the traditional lymph node dissection. I have learned such a lot over the past 2 weeks! So I am happy that they are doing this for you, Clara, but again just so sorry that you are in this situation.

Relieved that you managed not to headbutt the Consultant! 

I know what you mean about forgetting to ask things, I think if I need to see a doctor again, I will write down my list of questions and take it with me. 

Sending hugs xx