Lymphoma? HL? NHL? something else?

About 8 months ago a lump came up just inside my right collarbone. I saw the GP, she said I would have to wait two weeks and if it was still there she would refer me. Well, it went away. Only it came back a few weeks ago. It's kidney bean shaped (I think, it's def not round), about an inch long, it's sometimes tender, my neck aches in the evening and sometimes the morning. A few days ago another lump appeared, much smaller and round, like a smallish pea, next to the other one. This one is sore all the time. 

I have had night sweats but not sure if I'm just hot.

I've seen a different gp and she took bloods (nothing significant other than crp 129) and has referred me for an ultrasound, and I'm currently awaiting that appointment.

Of course I've googled these things and it comes back with the worst. 

Can anyone suggest anything non cancer related?

I hsvd a 13 month old son and the thought of being away from him or not seeing him grow up breaks my heart. 

Parents
  • This is probably of no help.  I've had Non-Hodgkin lymphoma twice, the first time it was very advanced. I also had thyroid cancer which spread round my neck.  I'm very experienced in feeling tumours. All my tumours were hard & painless, not tender. Ive no medical qualifications but  I believe there are about 60 lymph nodes in the neck, lymph drains into the neck, so swollen glands in the neck aqren't uncommon & could have causes other than cancer. I had night sweats which were absolutley drenching.  The bed was saturated.. The sweating started when the lymphoma had obviously spread round my body, well beyond my neck.  I think it's important to persist with your GP while you remain concerned.  I had to report lumps in my neck for a year before my thyroid cancer was diagnosed.  Go on reporting your concerns until you get an answer or they go away.  I hope it's not a serious problem, but if it is, while the problem remains in one area the outlook is good.

  • Thank you for your reply, I'm sorry you've been through so much, but very grateful to you for sharing it with me. I know Dr Google is not to be trusted deep down, but its hard to share the worry of what might be. 

  • I'm not sure yet, I guess it's still not really sunk in, even though I suspected it. I guess I was hoping the results would say the radiologist had made a mistake. 

    I'm hoping the scans and stuff happen soon so that I can know how advanced it is and know what the treatment will be.

    I guess I'll feel like that at every stage. 

  • I suppose it wasn't a great shock to you because from the title of your post you had thought it might be HL, but it's a blow to have your worries confirmed.  The diagnosis makes it real.  I think it takes some time to sink in then you sort of get used to it. It's easier to manage when you've told people like family & friends & had their reactions, & have had staging..Then it's a problem to solve.Treatment is the solution to a problem.

    Perhaps if you start a new strand with HL in the title someone who's had it will join in. That might be more helpful than I've been.

  • Please don't underestimate how supportive and helpful you have been. I get great encouragement from the fact that you have fought and won, and its such a comfort to chat with someone who doesn't act like my life is already over and doesn't make me cry!! 

  • Thank you very much, that's kind of you.  I like your photo, it's very artistic.

    I want to say that I've never thought of myself as having fought anything.  It may just be me & no help, but I don't accept that there is an enemy, to fight, like a foreign invader. It makes my body, which goes wrong, into a battleground, & adds pressure.  I don't see myself as a patient with a terrible disease, but as the same person with a problem.  Problems can be solved. That's why I see treatment as the solution to a problem..I say, that may be no help to you but personally I'd encourage anyone not to think they are in a war.

    What would help is someone who's had HL recently & knows about current treatments.

  • I like that way of thinking. :) 

  • I've just seen the post from Emdaly8 & that you've replied.  It's a shame for her but could be good for you.  I hope she'll tell you something useful.

  • Its winter and i have come down with a runny nose fatigue sneezing and lumps, fever, and lumps under both arms which are bigger than normal and hard when i touch it but move able and a little bit squishy when i put pressure on it. i also have a bean sized lymph node that is hard behind my neck. Could it be a cold or something else 

  • Hi

    I hope you are all keeping well!

    I have recently been diagnosed with helicobacter I have been on 3 tablet therapy for 7 days and I am feeling pretty terrible I have major fatigue and pains in my lower back I have a sound like a crack when I yawn also a horrible pain in my left hip and my neck has had a pain for months now.  Has anyone had similar symptoms before being diagnosed with lymphoma.  I have a stomach scan and a camera in the next few weeks.  Do you think anything would show up on a stomach scan.  I haven’t felt myself in a long time with tiredness and feeling low.  I had chest spasms and went on a sleep apnea study which I don’t have 

    also eciguser how are you keeping?? I also smoke an ecig and I don’t trust it and when I seen your name alarm bells are going off in my head 

    Many Thanks

  • Hi eciguser

    I hope you are well

    Can you give me an update on your journey?

     

    cheers 

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