Hi I’ve read all your posts and I am really sorry for what you have been through and that you have been diagnosed with HL.I just wanted to know really if you had any other symptoms or how you felt?? I’ve been referred on the 2 week pathway and have been for my first appointment today (I’ve had a lump/lymph node for 18mths and havent Been right since it’s been there,last 3 wks started with heavy night sweats but not every night ,itching had this on and off over the last few moths ,tired,and it hurts with alcohol,ache in groin on 1 side with small lumps up) today they have requested tests (mri of lump and ct chest groin and tummy) it said on the paper work lymphoma??? Kat xx

Firstly, I'm sorry you're going through this. 

Let me start by telling you that my treatment was extremely successful, I've since had another baby and I have just been completely discharged by the specialists as they pretty much consider me cured and my risk of relapse now is "very low indeed".

I had the lumps, the nightsweats and the strange achey alcohol thing too. 

I was treated by an amazing hospital by a world leading specialist. He only ever talked of cure rates, not survival rates, so I took my cues from him, and basically kept a mostly positive attitude throughout, even when I puked all over the day ward floor (hey, I then got the expensive anti-sickness apprepitant after than ;D).

It may not be what you're thinking, but whatever it is, take each day as it comes. 

IF it is Lymphoma, the treatment isn't exactly fun, but it is completely do-able. Blind stubborness got me through, I found eating through the chemo sickness was great for me, gave my stomach something else to do, especially cream crackers and butter, or proper homemade macaroni cheese.

I did cut out sugar for a long time, I wasn't taking any chances that it was going to feed the little b*ggers!

I found this board really useful and you're welcome to message me on here or directly as much as you want. 

This stage is by far the worst, the waiting is just awful because your mind wanders all over the place.

x

Thanks for the rapid response I am sure mine is nothing but goodness me the waiting is the worst.Thats so lovely that you have just had another baby and your treatment was a success. I think when your at the waiting stage you talk yourself in to having it and talk yourself out lol where did you itch?? I itch all over but mainly my scalp and arms xx

Thanks for the rapid response I am sure mine is nothing but goodness me the waiting is the worst.Thats so lovely that you have just had another baby and your treatment was a success. I think when your at the waiting stage you talk yourself in to having it and talk yourself out lol where did you itch?? I itch all over but mainly my scalp and arms xx

Kat, I didn't itch, I dont think. I've always been quite itchy though, neck, torso and anywhere I shave (??!!).........

You're on the right track, once you've been scanned and had biopsies, they'll soon set you straight. The protocol may have changed a fair bit in the last 3 years though. 

Keep asking questions, keep pushing forwards. 

Xx

hello! i’m not sure if you will see this but i’m glad to hear you are in remission. did your blood tests show abnormalities? i had a blood test four months ago and they came back clean and it’s the only test my doctor decided to perform on me due to having a 3cm lymph node. it’s probably bc i’m only 16. i also have this weird feeling of my rib getting stuck on my left side, my rib definitely pops around and i can  only really feel this sensation when i’m very anxious/stressed but i’m scared it’s to do with my spleen although if i stick my fingers under my rib cage i can’t feel anything. i also aches all over but this also appears to be from my anxiety. i have so much anxiety and depression over this and i already suffer from bad mental health and this is making me feel awful, this has been going on since january. do you think it is likely something is wrong with me? i really don’t want there to be ive not even finished school yet i’m literally still a kid :( thanks xxx