Lymphoma? HL? NHL? something else?

About 8 months ago a lump came up just inside my right collarbone. I saw the GP, she said I would have to wait two weeks and if it was still there she would refer me. Well, it went away. Only it came back a few weeks ago. It's kidney bean shaped (I think, it's def not round), about an inch long, it's sometimes tender, my neck aches in the evening and sometimes the morning. A few days ago another lump appeared, much smaller and round, like a smallish pea, next to the other one. This one is sore all the time. 

I have had night sweats but not sure if I'm just hot.

I've seen a different gp and she took bloods (nothing significant other than crp 129) and has referred me for an ultrasound, and I'm currently awaiting that appointment.

Of course I've googled these things and it comes back with the worst. 

Can anyone suggest anything non cancer related?

I hsvd a 13 month old son and the thought of being away from him or not seeing him grow up breaks my heart. 

  • I'm going to win on a Friday.  You can win on a Tuesday, it ought to be  tonight! 

    If you have a healthy diet I doubt there's much you could change.  I know some people talk about 'super foods'  but that's for general health, not particularly cancers I think. There was a place in Bristol where they put very ill, & probably desperate people on extreme diets & were heavily criticised for it . Enjoy your food t I say, I think diet is important for people who have cancers or chemo that affect their eating, digestion & appetite & research has probably been into helping those things, but Macmillan or the nurses on this site might know of diets or particular foods that thave been properly tested... .

  • Nope, didn't win. Got £2 back out of £10. I should know better!

    Had a call from a lovely GP who rang to introduce himself ahead of giving me the results tomorrow. 

  • £2 out of £10!  Well done. I've had £2.60 from about £50.  I'm waiting for the jackpot.

    It was nice of the GP to phone.  I had a letter from my GP which suggested visiting a cancer drop-in sort of place attached to the hospital. It was a good idea but I felt ok about the little lump I'd found so I didn't go.  For me the good thing about GPs is that they take me seriously now when I report anything because they know I've had a lot of experience!

    I'm sure you'll ask questions about the results.  Don't leave wondering about anything.  I hope you'll post what happened.

     

  • Ok, so the confirmation is in........Hodgkins Lymphoma. 

    Next steps, referred to haematology (sp?).  Should have appt through within a week and the actual appointment within 2. Then scans and tests for staging and to decide treatment .

  • I'm a bit surprised.  How are you feeling?  

    I'm glad things are moving quickly, 2 weeks is good. I've no experience of HL, I think there's a particular type of cell found in HL that isn't in NHL, but it's similar. I hope the GP told you all you wanted to know .I go to a haematology clinic, most people in the waiting room are my age .There's nothing bad about the tests, the worst part is waiting for therm .I hope your little one keeps you busy & don't get bogged down in thinking about it.

  • I'm not sure yet, I guess it's still not really sunk in, even though I suspected it. I guess I was hoping the results would say the radiologist had made a mistake. 

    I'm hoping the scans and stuff happen soon so that I can know how advanced it is and know what the treatment will be.

    I guess I'll feel like that at every stage. 

  • I suppose it wasn't a great shock to you because from the title of your post you had thought it might be HL, but it's a blow to have your worries confirmed.  The diagnosis makes it real.  I think it takes some time to sink in then you sort of get used to it. It's easier to manage when you've told people like family & friends & had their reactions, & have had staging..Then it's a problem to solve.Treatment is the solution to a problem.

    Perhaps if you start a new strand with HL in the title someone who's had it will join in. That might be more helpful than I've been.

  • Please don't underestimate how supportive and helpful you have been. I get great encouragement from the fact that you have fought and won, and its such a comfort to chat with someone who doesn't act like my life is already over and doesn't make me cry!! 

  • Thank you very much, that's kind of you.  I like your photo, it's very artistic.

    I want to say that I've never thought of myself as having fought anything.  It may just be me & no help, but I don't accept that there is an enemy, to fight, like a foreign invader. It makes my body, which goes wrong, into a battleground, & adds pressure.  I don't see myself as a patient with a terrible disease, but as the same person with a problem.  Problems can be solved. That's why I see treatment as the solution to a problem..I say, that may be no help to you but personally I'd encourage anyone not to think they are in a war.

    What would help is someone who's had HL recently & knows about current treatments.

  • I like that way of thinking. :)