Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

  • Hope you have had a good time away x

  • Offline in reply to Bernieo

    Hello, I am so pleased to have found this forum. It really makes such a difference to not feel alone. 

    Wow, yes that is such a positive story, bless her. Good for her for living life to the full. Yes I agree, it is much better to know. Hopefully my appointment will bring reassurance x

  • Offline in reply to davek

    Hi Dave, 

    Thank you for your comment. That is so true, and to be fair, I didn't need to look through everything on the NHS app. I almost wish I hadn't, but yes that is so true. 

    My sister has suffered from endo for years, and ended up having a hysterectomy last year at 45. I wonder if whatever is going on with me could be something similar. 

    Thankfully we have just had half term so have been so busy, I haven't really had much time to think too much.

    Thanks again for your message  

  • Hello, hope you are ok. Have been thinking about you getting your results, hope all is ok x

  • Offline in reply to Blush53

    How are you getting on?x

  • Hello Lis83. Went today as an emotional wreck. Spent the whole consultation crying. I was given the results of still abnormal cells no advanced cancer, but I was so convinced I had full blown Stage 3 cancer. The MRI was clear. I have agreed to an hysterectomy I cannot go through the madness of not knowing tbh. The roller coaster is unreal. I am aware that once they take my womb it still has to be examined and a pathology report given so im not completely out of the dark. The main thing is the Surgeon said my obesity is the main factor and I should loose weight possibly jabs. The absolute stress, crying and turmoil is so much. I came home and went to bed. I then thought am I being dramatic...it has consumed me. I am grateful, but also feel like ive taken alot of my life and lifestyle for granted. Im grateful at this point. Thank you for checking in. Xxxx I hope you are ok? X

  • Sorry forgot to mention before the surgery they are fitting me with a mirena coil to hopefully.... Keep the abnormal cells at bay. I am so grateful. The op will be robotic in 4 to 6 weeks time. 

  • Ahh I am sorry to hear it was so emotional :( I completely understand the crying! I would be the same. So they will do the hysterectomy in 4-6 weeks? My sister had one in September last year at 45, she has suffered with endo for so long now. 

    I went to see the gynaecologist again today, although he didn't have my scan results. The surgery sent a message yesterday to contact them about my results which made me panic. Haven't heard back from them yet after calling and doing an online request. But while I was with him this morning I showed him the notes on my NHS app which said the lining of my womb is thickened. I know I will not be able to have the hysteroscopy done easily, I think they might have to knock me out! X

  • You are absolutely not being dramatic and I’m so pleased your mri was good. It’s such a stressful process. Sending hugs

  • Offline in reply to Lis83

    Hello thanks for asking, I had my hysteroscopy under general anaesthetic on Monday. It was a long old day. I was scheduled to turn up at midday for the afternoon surgery list. In the end it was all a huge rush as unexpectedly something happened, I’m assuming an emergency of some kind which meant I was still waiting at 4.20 and then I had someone rush in and jog me down the corridor as they needed me prepped by 4.30pm or it would be cancelled. A downside of it was by the time I had come around and woke up enough to realise I was on a ward it was gone 6pm and no one from my procedure came to tell me anything. The consultant had originally told me he would let me know afterwards however that was when it was assumed I was going in at around 1.30. We did ask the nurses who could only tell me what had been written which was it was uncomplicated and a biopsy was taken. I wasn’t discharged until 10.30pm but I had my husband there and the nurses were very good. I’m now waiting on results. The discharge papers say follow up is required and will write with results however the consultant said the biopsy results will also show on my nhs app. This is a huge anxiety for me. I haven’t even looked on there at my blood test results as I’m too scared to see if my tumour marker is elevated as it will send me spiralling and right now burying my head in the sand is keeping me as level as can be. Urgh….!