Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

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  • Hello Lis83. Went today as an emotional wreck. Spent the whole consultation crying. I was given the results of still abnormal cells no advanced cancer, but I was so convinced I had full blown Stage 3 cancer. The MRI was clear. I have agreed to an hysterectomy I cannot go through the madness of not knowing tbh. The roller coaster is unreal. I am aware that once they take my womb it still has to be examined and a pathology report given so im not completely out of the dark. The main thing is the Surgeon said my obesity is the main factor and I should loose weight possibly jabs. The absolute stress, crying and turmoil is so much. I came home and went to bed. I then thought am I being dramatic...it has consumed me. I am grateful, but also feel like ive taken alot of my life and lifestyle for granted. Im grateful at this point. Thank you for checking in. Xxxx I hope you are ok? X

  • Ahh I am sorry to hear it was so emotional :( I completely understand the crying! I would be the same. So they will do the hysterectomy in 4-6 weeks? My sister had one in September last year at 45, she has suffered with endo for so long now. 

    I went to see the gynaecologist again today, although he didn't have my scan results. The surgery sent a message yesterday to contact them about my results which made me panic. Haven't heard back from them yet after calling and doing an online request. But while I was with him this morning I showed him the notes on my NHS app which said the lining of my womb is thickened. I know I will not be able to have the hysteroscopy done easily, I think they might have to knock me out! X

  • You are absolutely not being dramatic and I’m so pleased your mri was good. It’s such a stressful process. Sending hugs

  • Also having had both an awake one and GA one I’d definitely do GA just as it was less stressful x

  • Thank you so much for this!!!

    Sorry you had such a day of it :( how long did it take? Were you uncomfortable after having it done? I really hope you aren't waiting long for your results. X

  • Was just looking back to see timings. I went down at 4.30pm and was probably out cold 5 mins later! Husband was informed on the phone at around 6.10 that I was being taken up to the ward but I was still drowsy and not awake. The consultant had told me the procedure would take around 30 minutes. They’d given me anti sickness and pain relief before I came round and I was fine and no pain or cramping at all. I only took some paracetamol before bed and then kept dosed up Tuesday but nothing since then. 
    The lady before me at my gynaecologist appointment had had it done during her appointment and was fine awake but my previous ablation complicated things. She seemed to be ok in the waiting room after. I believe you will be given the option of a GA so it’s personal preference x

  • Thank you so much for this!x

  • Thank you. I am now trying to secure an appointment for a coil. Apparently its a 2 week wait. That's made me anxious as I thought it would be done straight away. Sometimes it's good to know, but it can be all too much accessibility to information. They told me off at my appointment. It's so tempting to look at your notes because you want to know!!! I hope you feel ok soon xxxx

  • The thing is the attitude is matter of fact.... Very chilled whilst your trying to process all the procedures, the appointments, emotions, family. Then it just comes all out. Ive now got a sore throat!!! I believe stress related. I hipe they find a way to get your procedure done xxxx

  • I just want to say it was kicking off at work today usually I would take it on, over think. After whats gone on... I was like if this gets too much im off. Totally different outlook especially with what's going on with us all. Xxxxx