Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

Parents
  • Hi - I am in the same boat - I saw exactly the same words on my app and somehow seeing it in writing has sent my anxiety rocketing. I hope you are ok (as much as you can be) and I think coming on here is a smart move, and can be helpful to know you are not alone with it all. 

    I have to have a hysteroscopy and biopsy and also have been fast tracked. 

    I hope everything goes well for you and I guess at least you are being proactive - I always think it is better to know as you can get treatment early and have good outlook.

    Just want to add, I had an Auntie who was diagnosed with breast cancer when she was quite young - She had 5 daughters and feared she would never see them grow up - she lived well into her 70's and died of a stroke a few years ago - she lived life to the full, so she is a positive story, amidst what is a worrying time, but I just wanted to share as it might help. 

Reply
  • Hi - I am in the same boat - I saw exactly the same words on my app and somehow seeing it in writing has sent my anxiety rocketing. I hope you are ok (as much as you can be) and I think coming on here is a smart move, and can be helpful to know you are not alone with it all. 

    I have to have a hysteroscopy and biopsy and also have been fast tracked. 

    I hope everything goes well for you and I guess at least you are being proactive - I always think it is better to know as you can get treatment early and have good outlook.

    Just want to add, I had an Auntie who was diagnosed with breast cancer when she was quite young - She had 5 daughters and feared she would never see them grow up - she lived well into her 70's and died of a stroke a few years ago - she lived life to the full, so she is a positive story, amidst what is a worrying time, but I just wanted to share as it might help. 

Children
  • Hello, I hope you are doing ok too. Anxiety is absolutely normal but definitely stay away from Google as I really spiralled doing that although easier said than done. Find what works for you to help your anxiety for the next few weeks, mine is walking outside, and be kind to yourself and put yourself first. I found it really helped hearing about the process from others on here too. This is where I’m at.
    I had a period like bleed 2 weeks ago on a Friday afternoon that lasted 4 days after not having had a period for 15 months. I got referred on the Monday morning.  I’m 2 weeks into the process and have my hystroscopy under GA tomorrow. One pro active thing I did that helped was phone up for cancellations daily. I’d been given a date by the nhs to see a gynaecologist within 4 days but my ultrasound scan wasn’t until 9 days after seeing the gynaecologist and having read up about the process I realised that the gynaecologist likes to know thickness of lining from the ultrasound before  doing further tests. I’m fortunate as my local hospitals come under the same trust so I said I’d go to any of them and after phoning up first thing, middle of the day and end of the day I finally got a cancellation for the ultrasound the morning before seeing the gynaecologist that showed my lining was 4.8. With that result the gynaecologist did try to do a hystroscopy however decided it would be better to do it under general anaesthetic as I’d had an ablation around 10 years ago so that’s tomorrow. 
    I hope everything goes well for you, this forum really does help :-)

  • Hello, I am so pleased to have found this forum. It really makes such a difference to not feel alone. 

    Wow, yes that is such a positive story, bless her. Good for her for living life to the full. Yes I agree, it is much better to know. Hopefully my appointment will bring reassurance x