Complex cyst- Ovarian Cancer?

Has anyone else experienced this. I have abdominal pain, pelvic pain, heavy periods and a recurrent UTI. I had a CT scan which showed a mass in my womb, after further investigation I have a CA125 count of over 170 and doing a scan they found a 7cm complex cyst. Doctors like a gynaecologist, oncologist and a surgeon are doing an MDT? I have also got a Clinical Nurse Specialist. I am really confused to what is going on. I am 22, family history of Cancer. I don't think it is cancer, but my mind can't stop going there as I am not off the cancer 2 week pathway yet. Any advice at all what to expect? Thank you.  

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  • Hello! 
    when is your next appointment to speak with someone? Waiting it the absolute worst. I just wanted to share that my story is not too dissimilar, I have a 8x7x5 ish complex cyst. It turns out to be a dermoid cyst. Which is a lovely little gremlin type which can have teeth and hair and fatty tissue etc. I’ve seen mine in mri and it doesn’t have teeth haha. There were ladies on my post who had raised ca125 and diagnosed the same. 
    fingers crossed for speedy answers. I waited October to January after being told it was a mass, longest wait ever. Hopefully get it out this year,she’s starting to weigh me down. I’m in my 30s, told it’s very common. 
    good luck. 

  • Hi! Thank you for your reply. 

    My next appointment is in a few weeks, I am waiting for a letter to confirm when it will be. Totally waiting is the worst it is so stressful and too many unanswered question. Fingers crossed that you get your surgery. Biology is very cool but also just as scary too. Good luck to you as well, thinking of you x 

  • Try not Google too much, that’s the real danger! Keep in touch when you get your date, hopefully not long x 

  • Thank you, yes I am trying not too it is a vicious cycle. I have just had a phone call from the receptionist. I was set to have a follow up appointment mid March, but the phone call was to re-arrange, for next Wednesday. I tried asking but all she said is that the MDT has been done and a new consultant would like to do a follow up. Trying not to overthink but it has made me anxious from an original telephone appointment, to an in person. Sorry for ranting x   

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  • Thank you, yes I am trying not too it is a vicious cycle. I have just had a phone call from the receptionist. I was set to have a follow up appointment mid March, but the phone call was to re-arrange, for next Wednesday. I tried asking but all she said is that the MDT has been done and a new consultant would like to do a follow up. Trying not to overthink but it has made me anxious from an original telephone appointment, to an in person. Sorry for ranting x   

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