Thinking of you

Hi  and  ... just to let you know I'm thinking of you

  • Hi James and tango

    Along with James I've been thinking of you today.. feels like a reality check I'm sure but also a positive step towards better days..

    Busy couple of weeks for you James and again a move towards answers and understanding of the journey ahead.. hopefully the 2nd opinion will be worthwhile and not affect your waiting time going forward..

    Focusing on one step at a time is essential,  anything else is overwhelming and often pointless..

    Stay strong and be kind to yourselves xx

  • James4000 hi James and Eastendgirl only just got back  I saw the surgeon first  he told me every thing about my tumour where exactly it’s situated  I told him what I thought was best for me and he agreed. I’m having operation in three to four weeks he is certain he can get it all out of my bowel with no stoma  but I wasn’t worried about that if I had one it wouldn’t bother me. Hopefully there might not be any need for chemo afterwards. Will have to wait and see on that one  I asked how long would I have if I did nothing he said 12 to 18 month as it would spread  he said eat what you want as he said I won’t get impacted  as the tumour isn’t blocking much  the tumour he said is confined to my bowel but he says the Blowel as layers and mine as gone to the last layer that’s where the bleeding comes from  I did go and listen to the consultant about chemo but I decided I wanted this cancer out of me then if it’s chemo then it is   I broke down in his office and cried  I was strong untill the point he said I was just unfortunate in getting this kind of cancer it was nothing to do with life style   Sorry for the long winded post  I’m still feeling lost and low xx

  • James 4000 forgot to say the tumour is T 2 

  • Please never say sorry tango, you have been so strong,  especially getting thru today which has been very stressful for you. Well done,  you should be really proud of yourself,  I am  hope you can feel the love and gentle hugs coming your way xx

  • Which means into the muscle layer/wall of the bowel,  in case he didn't explain xx

  • Eastendgirl still feeling weepy  the consultant was really nice and explained every thing to me about the op sounded confident he can get it all out   Stage or grade of my tumour is T2   I’m scared of having a op but I know for me that’s a start to recovery  they did talk about chemo but I said I don’t think I will be good with that I explained about my anxiety attacks and stress so he said if I want the op then that’s ok.  Horrid bowel prep for the op loll x

  • Feeling weepy is natural and a release of the waiting for today,  another day to ️ off the list.. so glad the consultant was reassuring and listened to you..as for the prep, part of the journey,  soon be done xx

  • Hi Tango 

    That all sounds really encouraging. I'm so happy for you.

    Obviously overwhelming and emotional. Great that you can cry about it, to be honest. I've only cried twice during this whole ordeal, with times alone with my partner.

    It sounds like the medical staff have been great, supportive and clear.

    The surgeon's confidence in getting it all with no stoma too is really encouraging.

    (I'm fairly sure mine is going to be more complicated as it's slightly more advanced than yours, so I'm fully expecting chemo or similar first, and so weeks/months until surgery. I'm desperately trying not to look too far ahead, but I struggle with staying in the present. I've had to double my anxiety meds [that o only started with the diagnosis])

    But today is all about you. Sending you love and hugs. So happy that you have a clear plan and a very encouraging outlook from the surgeon.

  • Gentle hugs for you James4000 xx

  • Eastendgirl and james4000 don’t know what I would have done with out both of you   You both have and are my rock. I can’t stop crying today hopefully I won’t cry tomorrow  been a really long day finding different departments to the hospital  my consultant says there isn’t a waiting list for this surgery so he’s confident op will be three to four weeks.  My life as been overtaken with all of this. I’m a music student playing piano and I’m a singer but now all I feel is I have cancer. lots of love to you both xxxx