Hi tangoPotter and James4000... been thinking of you both I knew you have appt tomorrow tango, wanted you to know I am thinking of you and holding your hand .. might be worth writing down any qu tions you have for both appts. really helps if someone goes with you to take notes.. it's difficult to remember what has been said when we are anxious, which is natural and expected.. always remem r it is your body, your decision... if you need to go away, discuss your options with family or friends... it's your decision and breathe xx
Eastendgirl thank you for been there I’ve just cried today I don’t know how to feel I’m dreading tomorrow but like you say it’s my body and I don’t think I will be able to make any decisions tomorrow I need to put things to my daughter and consider my options xxxx
I know how you feel, I think. Nothing in particular changed on Friday when the mdt met again other than saying it'll be chemo and arranging a first consultation. But I've taken am emotional nosedive and trying to recover.
Good that you have your daughter with you. As Eastend says, it's good to prepare some questions, take notes, have someone there if you can, and take your time over the decisions, which are yours.
I'm finding it daunting, like you are to move to the next steps of hearing and discussing treatment. Objectively we know this is all part of the journey towards getting better, but it's tough.
James4000 hi James I am sorry your feeling this way it’s a emotional roller coaster I feel my appointment is 11 in the morning then another appointment hour after to oncology to listen about the trials the nurse is all for the trials as it’s her job to recruit people but all I’m interested in what’s available standard treatment for me which I guess the consultant can tell me It’s all a daunting and scary journey All I do know is they want to start the treatment as soon as possible Will let you both know what been said when I get back tomorrow. Take care my special friends xx
Hi tango..and James.... there is often a plan in place for diagnosis and treatment for patients.. this gives the necessary research details for future generations..it's always been how medicine progresses.. why trials are carried out.. in conjunction with this, there may be a 'package' a set path of treatment including the finances set aside to complete the plan...which is why many people feel pressured into making decisions, often without the necessary information or understanding of what is planned....it can be daunting and difficult for the patient who is trying to navigate an unimaginable time... a different scenario for those who are dealing with these issues on a daily basis in the professional way they have been trained ..
Tango, I hope today's appointments have gone well for you. No doubt a lot to take in, but hopefully it will help you knowing that treatment plans are proposed and starting soon.
I think I'll be there in a week or two. I'm seeing a surgeon on Thursday, an Oncologist on Monday and then hopefully a 2nd opinion at another hospital next week (which is a privilege for sure). I think I will freak out as the options and plans and consequences are set out, but I'll try to remain calm and focus on each step and the fact it's all moving towards treatment and cure.
Along with James I've been thinking of you today.. feels like a reality check I'm sure but also a positive step towards better days..
Busy couple of weeks for you James and again a move towards answers and understanding of the journey ahead.. hopefully the 2nd opinion will be worthwhile and not affect your waiting time going forward..
Focusing on one step at a time is essential, anything else is overwhelming and often pointless..
James4000 hi James and Eastendgirl only just got back I saw the surgeon first he told me every thing about my tumour where exactly it’s situated I told him what I thought was best for me and he agreed. I’m having operation in three to four weeks he is certain he can get it all out of my bowel with no stoma but I wasn’t worried about that if I had one it wouldn’t bother me. Hopefully there might not be any need for chemo afterwards. Will have to wait and see on that one I asked how long would I have if I did nothing he said 12 to 18 month as it would spread he said eat what you want as he said I won’t get impacted as the tumour isn’t blocking much the tumour he said is confined to my bowel but he says the Blowel as layers and mine as gone to the last layer that’s where the bleeding comes from I did go and listen to the consultant about chemo but I decided I wanted this cancer out of me then if it’s chemo then it is I broke down in his office and cried I was strong untill the point he said I was just unfortunate in getting this kind of cancer it was nothing to do with life style Sorry for the long winded post I’m still feeling lost and low xx
James4000 hi James and Eastendgirl only just got back I saw the surgeon first he told me every thing about my tumour where exactly it’s situated I told him what I thought was best for me and he agreed. I’m having operation in three to four weeks he is certain he can get it all out of my bowel with no stoma but I wasn’t worried about that if I had one it wouldn’t bother me. Hopefully there might not be any need for chemo afterwards. Will have to wait and see on that one I asked how long would I have if I did nothing he said 12 to 18 month as it would spread he said eat what you want as he said I won’t get impacted as the tumour isn’t blocking much the tumour he said is confined to my bowel but he says the Blowel as layers and mine as gone to the last layer that’s where the bleeding comes from I did go and listen to the consultant about chemo but I decided I wanted this cancer out of me then if it’s chemo then it is I broke down in his office and cried I was strong untill the point he said I was just unfortunate in getting this kind of cancer it was nothing to do with life style Sorry for the long winded post I’m still feeling lost and low xx
Please never say sorry tango, you have been so strong, especially getting thru today which has been very stressful for you. Well done, you should be really proud of yourself, I am hope you can feel the love and gentle hugs coming your way xx
