James4000 hi James hope your feeling better in your mind than the other day. I have my meeting with consultant tomorrow morning I’m feeling anxious wondering what he is going to say. Then an hour later have an appointment with oncologist to see what these trials are like don’t know how to feel right now thank you for been there. You and Eastendgirl are my two rocks thinking of you x
Hi tangoPotter and James4000... been thinking of you both I knew you have appt tomorrow tango, wanted you to know I am thinking of you and holding your hand .. might be worth writing down any qu tions you have for both appts. really helps if someone goes with you to take notes.. it's difficult to remember what has been said when we are anxious, which is natural and expected.. always remem r it is your body, your decision... if you need to go away, discuss your options with family or friends... it's your decision and breathe xx
Eastendgirl thank you for been there I’ve just cried today I don’t know how to feel I’m dreading tomorrow but like you say it’s my body and I don’t think I will be able to make any decisions tomorrow I need to put things to my daughter and consider my options xxxx
I know how you feel, I think. Nothing in particular changed on Friday when the mdt met again other than saying it'll be chemo and arranging a first consultation. But I've taken am emotional nosedive and trying to recover.
Good that you have your daughter with you. As Eastend says, it's good to prepare some questions, take notes, have someone there if you can, and take your time over the decisions, which are yours.
I'm finding it daunting, like you are to move to the next steps of hearing and discussing treatment. Objectively we know this is all part of the journey towards getting better, but it's tough.
James4000 hi James I am sorry your feeling this way it’s a emotional roller coaster I feel my appointment is 11 in the morning then another appointment hour after to oncology to listen about the trials the nurse is all for the trials as it’s her job to recruit people but all I’m interested in what’s available standard treatment for me which I guess the consultant can tell me It’s all a daunting and scary journey All I do know is they want to start the treatment as soon as possible Will let you both know what been said when I get back tomorrow. Take care my special friends xx
Hi tango..and James.... there is often a plan in place for diagnosis and treatment for patients.. this gives the necessary research details for future generations..it's always been how medicine progresses.. why trials are carried out.. in conjunction with this, there may be a 'package' a set path of treatment including the finances set aside to complete the plan...which is why many people feel pressured into making decisions, often without the necessary information or understanding of what is planned....it can be daunting and difficult for the patient who is trying to navigate an unimaginable time... a different scenario for those who are dealing with these issues on a daily basis in the professional way they have been trained ..
Tango, I hope today's appointments have gone well for you. No doubt a lot to take in, but hopefully it will help you knowing that treatment plans are proposed and starting soon.
I think I'll be there in a week or two. I'm seeing a surgeon on Thursday, an Oncologist on Monday and then hopefully a 2nd opinion at another hospital next week (which is a privilege for sure). I think I will freak out as the options and plans and consequences are set out, but I'll try to remain calm and focus on each step and the fact it's all moving towards treatment and cure.
