I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

Thanks. Just heard back. Will be next Fri now, but at least close to home.

They offered one for this Saturday but miles away. Didn't want to have the drive and to wreck my weekend with family.

Now I'm doubting myself. Perhaps I should have taken the Saturday slot rather than wait another week.

Only you know the answer to this James4000.. if you're uncertain,  hive them a call see if the appts still available.. might have already been allocated to another patient.. if you have it Saturday it's done..next Friday will be here soon enough and less stress regarding location and impact on your family...

Good luck whatever you decide 

My partner's PET scans have been regularly postponed for the same reason. They normally call you back in pretty quickly.

Eastendgirll got my appointment for CT scan next Thursday hospital rang this morning  I’m nervous but I know  things have to be done  how are you doing ? Hope you are ok  lots of love xx

Eastendgirll just want to say a massive thank you to all on here who as given good advise and took time to listen especially you Eastendgirl  and James 4000 I wouldn’t have got this far with out your advise and helpful tips it’s lovely to know your both there  thank you xx

 t 

TangoPotter

You got this..you're gonna be fine and I don't want you to get stressed about the CT scan.. breathe and relax.. I  would tell you if it was anything to worry about and I promise you that  %

I'm sending you lots of love and xx

Always here for you tangoPotter and James4000 and everyone who needs a hand to hold ️ 

Eastend girl your an amazing person and very caring it means a lot that your there and you and James 4000 have been there from day one xxx lots of love x

I do care and am here for you,  always remember that tangoPotter.. not amazing just someone who cares xx

Aw, thanks Tango. You, Eastend and all on here are amazing people I'm so glad I found this community. The kindness and support here is truly wonderful, and helps us all be stronger.

Thank you all for your kind words, camaraderie and love.

We've got this.

X

Aw, thanks Tango. You, Eastend and all on here are amazing people I'm so glad I found this community. The kindness and support here is truly wonderful, and helps us all be stronger.

Thank you all for your kind words, camaraderie and love.

We've got this.

X

James4000...

United we stand ️

Stronger together .. I always feel that to know we are not alone can make a real difference... xx

James4000 hi James how are you doing. Just want to know  what I’m finding is if I eat a bit more I seem to bleed more wondered if you are the same  it’s a bit scary more proper bleeding with wind and feeling the need for BM  if I don’t eat much or have a liquid diet the bleeding isn’t so bad  I just had dinner today and I had a lot of as I call it real blood would you think this is normal for us

I'm doing OK. I don't know if it's getting used to different sensations or if anything has changed. I'm eating well but cautiously and avoiding fibre, making sure I don't get bloated etc. I'm usually OK and can pass bm and wind.

I pass a little blood here and there. Had loads for 3 days a couple of weeks ago, which was scary, like you say. I've been told that it's normal for the bowel inside to get cut a little and it can bleed a lot. I believe (but please ask a medical professional) we need to do the following. This is a mix of advice I've received and things which work for me, so take all with a pinch of salt please:

Not strain too much for bms; eat low fibre (do you have a list for this?); eat little and often rather than 3 big meals; I also tend to elevate my feet for BMs- always have a footstool in the loo, which I think opens up the back passage more; hot water bottle on the tummy/abdomen when feeling cramps/bloating

Also consider a stool softener - I haven't done this yet as I'm trying to limit medication and haven't quite needed it, but I'll biy some, just in case.

Hope some if this helps for you. Definitely do call an expert about the blood, to be on the safe side. Hopefully it'll clear up for you in terms of large blood amounts.

Take care x

James4000 thank you for your advise  it all makes sense  I didn’t know the bowel gets a bit cut. You always think you’re going to bleed to death. Well I do  but like I said if I eat a little more I seem to bleed more if I hardly eat I’m not too bad  xx

Hi, sorry to butt in but just wanted to say ️ for such great advice...

When having BM feet on footstool, knees apart, leaning forward really helps, a smear of Vaseline applied can also help prevent fissures/soreness and external haemorrhoids...if you don't want to take a stool softener.. I also use zinc and castor oil cream after every BM to help prevent fissures and soreness.. I find alcohol free wipes more gentle than toilet tissue now.

Small meals, little and often are also helpful 

Lots of wind, multiple  BM, cramps, feeling as though I need to have a BM most of the time, low down abdo pain [period-like].. low back ache..so no change here...

Eastendgi bless you  I know what you mean some times mine feels like a dull period ache and some of the different bleeding reminded me of my period days which was a long time ago lol  this type of thing makes you feel a bit down with constant changes in blood and B M I do try and not let it get to me but it does  fed up of all this really  xx

Sending love and gentle

Total hysterectomy 45 years ago but I still remember the period pains

Take care  xx

eastendgirl hi I sent you a message with my number and everything but when I sent it  it said chat not available at this time it wouldn’t let me send. There must be a way 

Absolutely... just finding out how  

Hi there... you have received my email