I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

No worries Chantetz hope it helps, another thing is peppermint CORDIAL ...mint /warmth ( hot water bottle or heat pad) and gentle massage are all good at relieving the pain of trapped wind..such a painful condition..

I've had a full body CT with contrast. The machine has more space than an MRI but the dye makes you feel like you might wee yourself. I still prefer it to the MRI. They gave me one when they thought I might have ovarian cancer which, thankfully, I didn't. It's stressful waiting for it and the results. The actual scan isn't so bad x

Afternoon

Great that you got a scan date. Yes my CT was with a dye injection. It just felt cold in my arm, but I forgot about after a minute, no real discomfort. My CT was pretty straightforward. The MRI was much longer. Neither did anything to me adversely. Just a bit stressful.

Frustratingly my PET scan today has been postponed. Apparently bi radiation available- I believe the produce it on the so it has a very short half-life, and sometimes it fails.

Back to the waiting game for a little bit. But Ive had lots of reassurance from medical professionals and of course on here. Been told a lot that there's no immediate time pressure, which helps.

Hi tangoPotter glad you have been given your appt...if you are being given contrast it should state that on the letter/email... any contrast given causes a very strange sensation  ( as though you have passed urine) there is absolutely nothing to be nervous about,  CT scan doesn't cause any pain or side effects.  The technician and nurses will reassure you every step of the way x

Ooh  might try this.

I get through half a pack of Exrrtra stone mints, several mint teas and chamomile teas, and a couple of hot water bottle refills each day and it usually does the trick.

I spoke to my GP surgery yesterday and the cancer nurses today and they said my recent discomfort isn't too unusual, especially if i am still having BMs. Likely I ate too much at once the other day and it was a bit much for the bowel all at once. Little and often is the mantra. And a couple of recommendations about a little bit of laxative (which I'm avoiding for now, but might use in future. Could be a good tool for some of us)

Hi James4000 so sorry to hear the PET scan has been postponed,  hopefully it will be rescheduled soon

Thanks. Just heard back. Will be next Fri now, but at least close to home.

They offered one for this Saturday but miles away. Didn't want to have the drive and to wreck my weekend with family.

Now I'm doubting myself. Perhaps I should have taken the Saturday slot rather than wait another week.

Only you know the answer to this James4000.. if you're uncertain,  hive them a call see if the appts still available.. might have already been allocated to another patient.. if you have it Saturday it's done..next Friday will be here soon enough and less stress regarding location and impact on your family...

Good luck whatever you decide 

My partner's PET scans have been regularly postponed for the same reason. They normally call you back in pretty quickly.

Eastendgirll got my appointment for CT scan next Thursday hospital rang this morning  I’m nervous but I know  things have to be done  how are you doing ? Hope you are ok  lots of love xx

Eastendgirll got my appointment for CT scan next Thursday hospital rang this morning  I’m nervous but I know  things have to be done  how are you doing ? Hope you are ok  lots of love xx

TangoPotter

You got this..you're gonna be fine and I don't want you to get stressed about the CT scan.. breathe and relax.. I  would tell you if it was anything to worry about and I promise you that  %

I'm sending you lots of love and xx

Eastend girl your an amazing person and very caring it means a lot that your there and you and James 4000 have been there from day one xxx lots of love x

I do care and am here for you,  always remember that tangoPotter.. not amazing just someone who cares xx

Aw, thanks Tango. You, Eastend and all on here are amazing people I'm so glad I found this community. The kindness and support here is truly wonderful, and helps us all be stronger.

Thank you all for your kind words, camaraderie and love.

We've got this.

X

James4000...

United we stand ️

Stronger together .. I always feel that to know we are not alone can make a real difference... xx

James4000 hi James how are you doing. Just want to know  what I’m finding is if I eat a bit more I seem to bleed more wondered if you are the same  it’s a bit scary more proper bleeding with wind and feeling the need for BM  if I don’t eat much or have a liquid diet the bleeding isn’t so bad  I just had dinner today and I had a lot of as I call it real blood would you think this is normal for us

I'm doing OK. I don't know if it's getting used to different sensations or if anything has changed. I'm eating well but cautiously and avoiding fibre, making sure I don't get bloated etc. I'm usually OK and can pass bm and wind.

I pass a little blood here and there. Had loads for 3 days a couple of weeks ago, which was scary, like you say. I've been told that it's normal for the bowel inside to get cut a little and it can bleed a lot. I believe (but please ask a medical professional) we need to do the following. This is a mix of advice I've received and things which work for me, so take all with a pinch of salt please:

Not strain too much for bms; eat low fibre (do you have a list for this?); eat little and often rather than 3 big meals; I also tend to elevate my feet for BMs- always have a footstool in the loo, which I think opens up the back passage more; hot water bottle on the tummy/abdomen when feeling cramps/bloating

Also consider a stool softener - I haven't done this yet as I'm trying to limit medication and haven't quite needed it, but I'll biy some, just in case.

Hope some if this helps for you. Definitely do call an expert about the blood, to be on the safe side. Hopefully it'll clear up for you in terms of large blood amounts.

Take care x

James4000 thank you for your advise  it all makes sense  I didn’t know the bowel gets a bit cut. You always think you’re going to bleed to death. Well I do  but like I said if I eat a little more I seem to bleed more if I hardly eat I’m not too bad  xx

Hi, sorry to butt in but just wanted to say ️ for such great advice...

When having BM feet on footstool, knees apart, leaning forward really helps, a smear of Vaseline applied can also help prevent fissures/soreness and external haemorrhoids...if you don't want to take a stool softener.. I also use zinc and castor oil cream after every BM to help prevent fissures and soreness.. I find alcohol free wipes more gentle than toilet tissue now.

Small meals, little and often are also helpful 

Lots of wind, multiple  BM, cramps, feeling as though I need to have a BM most of the time, low down abdo pain [period-like].. low back ache..so no change here...

Eastendgi bless you  I know what you mean some times mine feels like a dull period ache and some of the different bleeding reminded me of my period days which was a long time ago lol  this type of thing makes you feel a bit down with constant changes in blood and B M I do try and not let it get to me but it does  fed up of all this really  xx