I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

James 4000 hi James I get the same as you I have smal bm but lots of wind and some times like you I get a bit of disscomfort across the bladder area just hoping not getting blocked up but I was told if you can pass wind there isn’t a blockage  good luck James my thoughts are with you 

Only me folks...

Cooled boiled water is great for dispersing trapped wind... same remedy as used for colicky babies..

Thanks. Do you mean to drink?

Yes.. really helps..boil, cool and sip throughout the day 

Thanks for sharing that- going to give a try x

James4000 hi James just got appointment for next Thursday ct scan. Did they use contrast with you. Just wondered how it was  I’m nervous  x

No worries Chantetz hope it helps, another thing is peppermint CORDIAL ...mint /warmth ( hot water bottle or heat pad) and gentle massage are all good at relieving the pain of trapped wind..such a painful condition..

I've had a full body CT with contrast. The machine has more space than an MRI but the dye makes you feel like you might wee yourself. I still prefer it to the MRI. They gave me one when they thought I might have ovarian cancer which, thankfully, I didn't. It's stressful waiting for it and the results. The actual scan isn't so bad x

Afternoon

Great that you got a scan date. Yes my CT was with a dye injection. It just felt cold in my arm, but I forgot about after a minute, no real discomfort. My CT was pretty straightforward. The MRI was much longer. Neither did anything to me adversely. Just a bit stressful.

Frustratingly my PET scan today has been postponed. Apparently bi radiation available- I believe the produce it on the so it has a very short half-life, and sometimes it fails.

Back to the waiting game for a little bit. But Ive had lots of reassurance from medical professionals and of course on here. Been told a lot that there's no immediate time pressure, which helps.

Hi tangoPotter glad you have been given your appt...if you are being given contrast it should state that on the letter/email... any contrast given causes a very strange sensation  ( as though you have passed urine) there is absolutely nothing to be nervous about,  CT scan doesn't cause any pain or side effects.  The technician and nurses will reassure you every step of the way x

Hi tangoPotter glad you have been given your appt...if you are being given contrast it should state that on the letter/email... any contrast given causes a very strange sensation  ( as though you have passed urine) there is absolutely nothing to be nervous about,  CT scan doesn't cause any pain or side effects.  The technician and nurses will reassure you every step of the way x

Eastendgirll just want to say a massive thank you to all on here who as given good advise and took time to listen especially you Eastendgirl  and James 4000 I wouldn’t have got this far with out your advise and helpful tips it’s lovely to know your both there  thank you xx

 t 

Always here for you tangoPotter and James4000 and everyone who needs a hand to hold ️