Colonoscopy

Hi every one I’m due for a colonoscopy on Tuesday I’m feeling really scared don’t really feel.upto the procedure as I really suffer with stress and anxiety but I know I need to do this  I have been feeling as if I need to poo but some times it’s just reddish pus and feeling very gassy but because of feeling I need to poo I’m always in the bathroom , been having problems for a while now. I thought maybe I just had internal piles but when I went to my gp doctor couldn’t see or feel any thing so did a fit test which came back positive  so I was referred for a colonoscopy  I’m so scared of having cancer  not looking forward to the bowel prep  I think your all a lot braver than me   Xx

Parents
  • I had a colonoscopy some years ago and was utterly terrified before it.

    GP couldn't see or feel anything with me either but it did turn out to be piles. Nurse said that wasn't unusual, for them not to be noticed.

    Hope you get good news 

  • Thank you  I’ will be taking the prep to night and then six in morning  as my appointment is afternoon can’t have any thing to eat now until after the colonoscopy. I’m really scared about tomorrow I’m still hoping it’s just internal piles hope the prep I can cope with  I guess I will be on toilet all night  hope I get good news as my stress levels are so high 

  • Hi I'm very sorry to be reading this ,the only good side of it is at least its been found and you know where you are with it now ,if you hadn't gone it could have been a whole lot worse ,there are some really good treatments that have surfaced in the last few years so I'm sure they will let you know what's what as soon as they possibly can and get you on a treatment plan ,keep your chin up there are plenty people on here going through the same as you so it would be good for you to keep in touch with some of them even if its just for a chat to see how you are doing ,there's always someone to chat to  ( Jenny )

  • Hi tangoPotter

    i am so sorry this isn’t the news we and you were all hoping for. 
    well done for getting through today, now you have an understanding of what is happening , a plan can be put in place to get you back in tip top health. We are here anytime if you need to chat or vent. Best wishes 

    Ash

  • Hi jenny. I couldn’t believe my news yesterday I don’t know what I’m feeling  or how to feel it wasn’t the news I was expecting  couldn’t believe I have this growth inside my rectum the feeling of it feels like piles. They took 8 biopsies from it so waiting for ct scan now then after there discussion they can tell me if it’s spread any where and what they can do for me  I’m really scared and my anxiety is through the roof  the colonoscopy was horrid yesterday felt like a red hot poker up my bum and all the gas she was putting in  horrible 

  • It must have been a terrible shock ,I was shocked when I read it ,just goes to show we don't know what's going on inside our bodies , its no wonder you were bleeding all the time and why it was so painful having the Colonoscopy ,I sincerely hope there's a lot they can do for you once you get the CT scan out of the way ,I know its not the news you expected but getting you into a better position starts now ,as you know many others are going through the same so keep in touch with them and help each other along ,just take each day as it comes try to eat what you can to keep your strength up ,I know its easier said than done but worrying will not change anything so try to occupy your time with things you normally like doing ,as many have said before don't look for answers online will not give you any answers ,most of it is old stuff from years ago ,there are a lot of new medications about now so just have faith in your Doctors ,keep in touch with others on here as it will help you (Jenny)

  • Hi James  I’m a bit like you I’m struggling with eating I don’t know if this is the cancer or just me and stress and anxiety  my cancer is in my bottom which I can feel I was thinking it felt like piles  but it wasn’t  so every time I stand up I feel it like I need to open my bowels with the pressure of where it is  I’m really sore there now because of the biopsies feels at times like a knife in there  I’m scared of what they will do. I will be having a scan soon to go with the biopsies to see if it’s spread  then they meet to decide on what they can do.  How are you today hope you’re doing ok. Just try and eat. We need good food to help us get through what we might have to endure x

  • Hi Tango

    I'm doing a bit better today. Am managing to eat. Little and often. It's odd too. I'm usually a very healthy eater (veggie, no alcohol for a year, little caffeine, loads of beg and fruit normally), now I'm supposed to avoid fibre, which is ruling out 2/3 of what I'd normally eat (lots of nuts, seeds, raw veg).

    Maybe after 9 days, I've moved to a different mental state, but I'm more OK today at least with food. 

    I started on anti-anxiety medication the day of the colonoscopy- never had that before  - and maybe that's helping. I don't feel a direct effect of it, but I think maybe it's keeping me calmer. If that's something for you to consider, just ask your GP. Veey much a personal choice and variable by person I'm sure.

    I hope tomorrow is a better day for you.

    Take care x

  • I know what you mean  I still at the moment not sure what I’m feeling sorry for myself. sad.and some times when I eat I feel a little sick. Not sure if that’s me or is it the cancer I’m not sure I haven’t eaten properly in around 9 weeks due to stress and anxiety  so I lost a bit of weight it’s all the in known I guess  she said she thinks the tumour as been there a while so I don’t know yet if it’s spread any where  my life just feels upside down and strange at the moment I’m 70 years old and a piano student but all this as just over taken every thing  like all of you lovely people on here I just want my life back

  • Hi tangoPotter. I messaged you a day or so again, I’m the one who had the colon resection opp in April 2024, after being diagnose in Fed that same year. I’m 77 so don’t give in

  • Hi Krenny sorry I have only just seen your post  so glad every thing went ok for you  I don’t know yet what they can do for me as need scan to see if this tumour as spread any where and get these biopsies back so I still can’t get my head around things at the moment  I’m dreading every thing and I don’t like hospitals they course my stress and anxiety levels through the roof   You never think that some point in your life you could be faced with any thing like this  my life at the moment just feels unreal and I’m not in control of it. Thank you for your post  x

  • Hi James 4000 I know what you mean about eating I’m really trying to eat but some times I’m feeling a bit sick just hope that’s my stress and anxiety and not the tumour  was told I need to eat food that’s really good for you to build me up because of what might have to go through I lost a lot of weight with not knowing what was wrong over past nine weeks of not eating much I lost a lot of weight then I thought well I’ve only got internal piles I’m ok. But with the blood and mucus I thought what if it isn’t piles  well it wasn’t can’t believe I have this thing growing inside me the colonoscopy was not pleasant at all I felt violated  I’m still feeling sore there with it only been a few days since biopsies  dread going to the toilet never knowing what might be coming out  I’m so sorry for this negative post but this is my feelings at this time  I’m such a coward  a d a big baby. It’s good that we all can express our feelings on here where every one understands. X

Reply
  • Hi James 4000 I know what you mean about eating I’m really trying to eat but some times I’m feeling a bit sick just hope that’s my stress and anxiety and not the tumour  was told I need to eat food that’s really good for you to build me up because of what might have to go through I lost a lot of weight with not knowing what was wrong over past nine weeks of not eating much I lost a lot of weight then I thought well I’ve only got internal piles I’m ok. But with the blood and mucus I thought what if it isn’t piles  well it wasn’t can’t believe I have this thing growing inside me the colonoscopy was not pleasant at all I felt violated  I’m still feeling sore there with it only been a few days since biopsies  dread going to the toilet never knowing what might be coming out  I’m so sorry for this negative post but this is my feelings at this time  I’m such a coward  a d a big baby. It’s good that we all can express our feelings on here where every one understands. X

Children
  • You are neither a coward or a baby.. you are struggling with what is possibly one of the hardest things you have ever had to endure.. I'm really sorry you are still feeling sore, have you any zinc ointment  ( used for nappy rash) it's very soothing and will help ease the pain  fortunately I haven't felt any discomfort after my biopsies,  possibly because I had sedation.. please know I am thinking of you and sending

  • Your definitely not a baby, I've had a few down days lately, finding it hard to go to the toilet, my tumour is popping out, bloody pop out for good please x I can't be operated on as yet as  mine is too close to a gland,

    I'm going to have to phone and see if what I can do as I don't want to constantly take laxatives as I need to have a loo close by

  • Readytobeat hi it’s awful I can constantly feel tumour in my bottom it’s annoying when I need to pass wind it bleeds fresh blood not always when I need to poo it’s just so runny constant feeling of needing to poo I guess it’s the pressure fed up of the feeling  I felt down yesterday I cried  I might have to take laxatives  she said to keep poo soft and chew your food  don’t eat potatoes with skin on  hope you things feel a lot better for you. Lots of love 

  • You're not a baby at all. You're a strong, amazing person going through an incredibly stressful experience.

    As some others have commented, maybe see if you can modify your diet? Avoid fibre without getting too full on with that. 

    I have the issue others have said. Passing blood and mucus quite often. Needing a BM much more often, either due to some bleeding or because I can only really pass small bms due to the tumour restricting things. It's unpleasant and always a little alarming, but I suppose it's the body's way of dealing with the issue. Does anyone know if that sounds correct?

    I have my 2nd scan (mri, i think) tomorrow. Apparently my biopsy and 1st scan results are with the hospital now, bit I don't know anything yet. Praying that it will prove relatively straightforward once they've analysed it all.

  • James4000 thank you for your comment  I get fed up of constantly feeling the need to do bm but I don’t always go some times it’s just wind and blood  I only pass small amounts maybe due to where the tumour is placed  just hope it doesn’t cause a obstruction very loose bm every time  it is alarming. I dread going to toilet.  Hope your managing to eat a bit more  

  • It's bloody awful, my bum is on fire, I do eat now, I didn't at the beginning but that was because I didn't feel like eating as I was worrying about my results

    I'm. Going to have to phone and ask for advice as I can't keep taking laxatives, I don't want to be stuck in the house, as when the start working I need to run to loo as quick as I can 

    I've got 6 sessions of chemo, then radiotherapy, then they will operate, fingers crossed if it's shrunk, then more chemo 

    I can't go that length of time constantly taking laxatives x

    Not sure where you live but where I have my treatment they have a drop in centre that gives help and advice, family and friends can go too, ive been meaning to go all week but don't fancy constantly running to the loo

    It's called Maggies, look online for more info x

  • Readytobeat my backside feels hot and sore  I have the really loose motions  never solid but then they want me to take laxatives don’t know why unless the tumour is partially blocking I’m scared of a blockage I’m constantly going to loo when I stand up with gravity I feel the need to go but only pass wind with blood at times. Scarey you get fed up of this feeling. Are you the same  I live in Leeds West Yorkshire 

  • Thanks Tango

    Yes, I'm eating much better now. Thank you for asking. I think it was the stress and anxiety more than anything. I tend to get a bit of stomach cramps most days for a short while, but find lots of extra strong mints, peppermint tea, chamomile tea and sometimes a hot water bottle do the trick.

    I've still lost a few pounds of weight, which is worrying, but I think maybe I've stabilised that a bit now I've got some of my appetite back.

    I have similar to you in feeling like needing more BMs and then only passing wind and a little fluid sometimes (blood, mucus or poo).

    It's all rather unpleasant. One thing I've found helps just to be more relaxed about a sudden 'escape' (usually a bit of blood) is to use a cotton pad (you know the ones, like a few cms across, for remov8ng makeup etc) and some microporous tape (get it all in Boots etc). I just tape a bit on my bum and try to get on with my day.

  • My treatment has been fast tracked and to be honest I haven't been told a lot only what treatment I'm having

    I'm hoping that when I go to Maggies next week someone can advise me, my next treatment is in 2 weeks time,

    I was told it would be every 2 weeks but for some reason it will be 3 weeks between 1st and 2nd treatment

    They have a Maggies centre near the hospital