8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Heh lovely, I am doing ok… I think! Chemo no 4 on Monday and so far so good though I guess I don’t know till they do more scans and tests but I haven’t felt that bad .. they changed  my anti sickness on the last cycle and that seemed to help… roll on 2026 x

  • Hey, just to demonstrate how closely our situations have been aligned, I was out walking with my husband this afternoon, when my phone suddenly pinged. It was my long awaited histology results, confirming that they had removed two normal ovaries and fallopian tubes, plus a mature teratoma! So happy I've got the answers I was hoping for, but still here to listen to everyone still in it! Thanks to everyone who has kept coming back and offered their insight and support. You have no idea how much you have helped! X

  • Yay! How amazing our journey has been almost exactly the same day by day. Very pleased for you. Finally we can close this chapter. Xx

  • How are you doing? I think about the ladies on here often and just seem to never get a minute to check in on you all! is chemo finished? Still going? I hope you are doing ok and managed to have a nice festive time x 

  • I’m ok, had last chemo on 30/12 so glad that’s finally over! I had appt with cardiologist on Monday and he is happy so I am signed off from him… scan on 28/1 and then oncologist on 10/2 so fingers crossed it’s all looking good! We booked a house by the sea in Cornwall for Xmas… was lovely to get away, hope you had a lovely break too x

  • Oh how lovely, what a Xmas that would’ve been. Sounds great. I am keeping everything crossed for you for next month - please do update! 
    have you had any side affects from chemo or been ok?x

    1. Nothing too awful, the constipation is bad for a week or so and very tired but that’s been it really… the 5th one I wanted to rip the needle out when they flushed as it was so painful … but last one I kept the heat pad! X
  • How are you? Been thinking of everyone recently. Hope you are ok. Are you still getting treatment?x

  • Ahh sorry should have updated! I got the all clear on Tuesday, I have to have a scan every 6 months and blood tests every 3 months but fingers crossed that’s me done! How are you x

  • That may just be the best news I’ve ever read on here, sending the biggest congrats. The all clear! How wonderful. You must be so happy x

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