Evening, not sure if this thread is still active but it has been a great thread and i wanted to share my story as i am currently playing the waiting game. 

I have a known Ovarian cyst which is surrounded by adhesions and bowel and has gone from 6.5cm to 14.5cm in a matter of 6 weeks and an urgent CT in A&E showed it was complex even though it has been simple for the past 3.5 years. It was 17cm in March 2025 but it got drained in April as plays havoc with my bowels and bladder.

I had an urgent MRI last week and was discussed in MDT Friday and have been given f/u appt on 16th Jan. I am already under the gynae oncology team as even though my cyst was simple ive had a previous cancer of the placenta 13 years ago so they took my case.

I am freaking out - even if benign i may need surgery as have had to have catheters inserted 3 times to drain my bladder as the rapid growth has squashed my bladder.

Welcome to the group. Yes there are lots of us still here, it’s just been quiet over the festivities. I still like to check in on everyone as I’m just ever so grateful of the support of strangers. 
im very glad to read your care seems to be very quick and I hope you get all the answers and reassurance you need very soon. I’m sorry that your mass is affecting your bladder, that must drive you mad having to have it drained all the time. Hopefully you will get surgery and get it out although I do know adhesions can cause bother. My own dermoid cyst caused adhesions to my bowel so they had to do an ovary reconstruction when they removed my cyst. The gynae said that adhesions are sometimes the more difficult bit. 
16th January will be here before you know it, keep busy and keep in touch. Rooting for you!x

Welcome to the group. Yes there are lots of us still here, it’s just been quiet over the festivities. I still like to check in on everyone as I’m just ever so grateful of the support of strangers. 
im very glad to read your care seems to be very quick and I hope you get all the answers and reassurance you need very soon. I’m sorry that your mass is affecting your bladder, that must drive you mad having to have it drained all the time. Hopefully you will get surgery and get it out although I do know adhesions can cause bother. My own dermoid cyst caused adhesions to my bowel so they had to do an ovary reconstruction when they removed my cyst. The gynae said that adhesions are sometimes the more difficult bit. 
16th January will be here before you know it, keep busy and keep in touch. Rooting for you!x

Hi,

Yes I have been told my adhesions are very bad hence they have left the cyst for so long and the cyst Is fully surrounded by bowels so high chance of permanent stoma bag, 16th is way to long 

Hello - I'm really sorry you're in this awful period of waiting. It really is the worst! If you've read this thread you'll see we've all been on a variety of journeys with it.

I also had a prior cancer 13 years ago (cervical) and have a huge amount of adhesions as a result. They do like to cause problems but mine actually helped me as they contained the cancer rather than letting it spread.

Really hoping they manage to free things up for you, get the cyst out and with zero bowel damage.

Jo x

Hi, 

Thanks for replying, I am taking 1 day as it comes and really struggling with my bladder so may need another a&e visit soon for a catheter.

How are you? Just checking to see how everyone is. You were having a very hard time of it with possible stoma bag and catheters etc. how are you now?x