8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Sorry to read this update, but at least they caught it in the early stages. Hope you're OK, sending lots of virtual love to you!! 

  • Who ever thought Steve would be the saviour in this. So glad to read it’s stage 1 and hopefully contained and maybe even already over and done with now. Or will they do chemo for belt and braces? Sending love, even catching it so early, that’s hard to hear. I’m just so glad you are getting great care and hoping for a quick referral for you so you can have a plan in place. 
    wonderful news your sister is home too, that really is great after 11 long weeks. 
    how are you in your recovery? Managing to get about now? Sending lots of get well wishes your way x 

  • Ha I know! Yes maybe they don’t do anything but consultant thought I should take what they offer just in case anything microscopic had escaped! Recovery has been ok so far… can’t drive so that’s a pain but hubby has been fantastic… even on the pink jobs !  Have a fab weekend xx

  • Aww, I'm so glad you have had good support. I would nuke it if it were me, just in case. You're post menopause, yeah? So it's not like it's going to take your cycle from you. But I guess HRT is out of the picture for you and yours as ovarian cancer is so prominent.

  • Yes that’s what the consultant said tbh… if they offer anything take it! Yes I am post menopause but having dreadful night sweats, which I never had before… anyone else had similar issues after hysterectomy? Have a fab bank holiday Monday x

  • I had night sweats for a few weeks after my hysterectomy in 2013. I kept my ovaries but it still sent my body into a spiral hormonally as I was only 30. They did settle down though. Hope yours do too!x

  • Thanks hun, I am taking supplements that may help but so weird as wasn’t expecting it!  

    I am sadly a little older than that…

  • I've been post menopausal for 3 years now, and my hot flushes and night sweats had already started to settle down. As well as the dermoid cyst, I chose to have my ovaries and fallopian tubes removed, and wondered if my symptoms would reappear. I actually think they're even less noticeable than before, so I'm quite relieved about that. On the other hand, every time I forget something or look in the mirror and see more crows feet around my eyes, I automatically blame it on having no ovaries anymore! My husband finds it most amusing and keeps saying "is that because you've had your ovaries removed?"

  • I didn’t really suffer at all when I went thru the menopause but since Steve was removed it’s something else! The heat is awful not helped by the warm nights! I will see what I can find naturally on dr Google and that! My hubby wants me to get a noob job now as I have list 16kg since this started … mostly boobs… men eh!!

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  • I didn’t really suffer at all when I went thru the menopause but since Steve was removed it’s something else! The heat is awful not helped by the warm nights! I will see what I can find naturally on dr Google and that! My hubby wants me to get a noob job now as I have list 16kg since this started … mostly boobs… men eh!!

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