Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Oh, Jeh, this sounds so difficult to be living through. If it's any comfort to you (and doesn't gross you out too much) the malignant features in my cyst were teeth and they made my cyst look like it might be an immature teratoma.

I'm up in the middle of the night so I'm only half following what people have written but from experience speaking with people with adhesions they're hard enough to deal with without them affecting the diagnostic options the doctors decide. I think I've got some minor adhesions as the internal scars are uncomfortable when I have a bowel transition but I've known people who suffer pain with them.

I really hope the docs get their finger out soon and figure out a good course of action to get the necessary pathology. Doing the cancer limbo shouldn't take so long and I'm sorry x

Haha no pressure at all, I’ve gone from working 3 jobs to being signed off for 4 weeks so I have another few days with lots of time on my hands. How are you doing? Is your eating getting easier?x

Heh lovely ladies, apologies for the radio silence … it’s been a crazy few weeks … after a lovely stay in hospital (so hot!) I have been recuperating at home ( mainly in bed tbh!) and have lost a mind boggling 10kgs in 3 weeks ( not sure if that’s me being good or just ‘Steve’!)

I had all my staples taken out over 2 visits to the GP but also have an infection which is now been checked every 3 days by the nurse… she’s happy today though so hopefully healing!

still no news on biopsy but they did say 5-6 weeks so will let you know

hope you are all doing well also xx

Ah so nice to read you are doing ok and at home, so glad Steve has been evicted and you are recovering. Sorry to hear you have an infection, sounds like they are getting on top of it though. Long may your recovery continue and enjoy the nice cosy time in bed while you recoup. 
I went back to work today. Feels like this past month just went by in the blink of an eye!x 

Hi, so lovely to hear from you. 10kg!!!! Well, we knew Steve was a big boy, so hardly surprising. Also, I imagine after such a big surgery, your body will be using a lot of energy to heal itself, so maybe that's got something to do with it as well. Glad you're taking things nice and easy, although you probably don't have much choice right now. I think I might be forgetting sometimes that I've very recently had surgery, and I do find myself getting a bit achy and more tired than usual. I think for my type of surgery, the recovery time is about 4-6 weeks, and it's been just over 3 weeks now, so even though I keep trying to do more and more normal stuff, I keep getting physical reminders to slow myself down. Obviously, your recovery time will be significantly longer, so I hope you've got plenty of support while that's happening. Still waiting for my results, but fingers crossed I'll be able to forget about this chapter fairly soon. Take it easy and keep in touch X

Ha he definitely was… surgeon even took pics of him in full technicolour!

Tbh I feel worse now than I did for a week in hospital… hubby took 3 weeks off but he went back to work yesterday, I can get around fairly easily but anything a little too vigorous and I know about it!

fingers crossed for all our results… would be nice to close this chapter for sure!

xx

Has anyone been told a timeline for histology results? I thought 4-6 weeks (I’ve no idea where I got that from though) but have just read that 12 weeks is not uncommon if not on 2ww.x

Hi everyone 2 more sleeps till my gyne appointment to look at Gemma im freaking out though. Everyone keeps saying it will be fine but my brain says otherwise. Every ache every pain I think it’s connected and Ive convinced myself im riddled with cancer. No body understands

Hey all, I haven't checked in for a while, it's been a busy few weeks. Hope everyone is doing well? 

My surgery is a week today, can't wait. Pain levels are insane. Off to a pre op appointment this morning and then it's just counting down. I finally got some of the info from my scan, the cyst measured 3.6cm so wasn't too big at that point. My ca125 was within normal limits (can't remember if I said that before) so hopefully all is OK! Slightly worried I haven't taken enough time off work, I've only booked a week... 

Will pop back after the surgery next week to update you all. Make sure you all look after yourselves

Bless you, we’ve all been there. It’s a really lonely and nerve wracking time. I am so glad you have a holiday booked in a few weeks to just relax. I am almost certain that your gynae will reassure you at your app, as they have said it’s a complex cyst, so perhaps she will be able to give you some more details in person of what type they think it is. Hopefully Gemma is either small enough to watch and wait, or she will come out. Keep us posted, will be thinking of you x 

Bless you, we’ve all been there. It’s a really lonely and nerve wracking time. I am so glad you have a holiday booked in a few weeks to just relax. I am almost certain that your gynae will reassure you at your app, as they have said it’s a complex cyst, so perhaps she will be able to give you some more details in person of what type they think it is. Hopefully Gemma is either small enough to watch and wait, or she will come out. Keep us posted, will be thinking of you x 

An update on my not so little friend had my consultant appt was referred to the MDT who have decided I need a CT scan with contrast no explanation why just got a call to book an urgent one whilst I away which I can’t do. The poor girl booking me in couldn’t answer my questions. The consultant I saw made it sound so simple but now I am wondering what the experts have seen on my ultrasound and mma is  more oF a concern than they are letting on. My CA125 is 42. Either way Gemma at nearly 9cM has to be removed surgically they can’t leave it in. I am freaking out on holiday now why a CT not MRI CT sounds so much more serious. God why is this happening to me I have my sons wedding in 9 months

It's reasonable to be upset. Mine was over 10 cm with similar ca125 but it wasn't cancer. They treated me to both MRI with contrast and CT with contrast. I think they can see different things clearer on each type. It wasn't cancer for me and I hope it won't be for you. Deep breaths, you've got this x

I think you're still more or less following the same path that I was on, and you'll continue to be treated as urgent until they've had a good look at everything. I don't think you should read too much into the decision to do a CT scan rather than an MRI. Either method will give them the same information, but what I do know is that a CT scan costs less than an MRI scan, so maybe that's the reason. X

Going on my experience… it really is better to be safe, I was fast tracked and had CT with contrast and it showed a pretty large cyst, I have now had the op and recovering at home..,had it been delayed it could have been a lot worse hun x

Bless you, try not to panic away your holiday. I echo what others have said - a CT scan is faster and a lot cheaper for the nhs than an mri.  A nurse friend of mine told me that a Ct scan shows the edges of things and an mri shows the inside of things, so if someone is trying to determine what a tumour is - it’s more likely to be an mri, and if someone is trying to determine size, location it would be a CT. 
my dermot was almost 9cm and out he came no problem. 7 weeks post op now, still no histology but hoping the delay is a good thing. The fear while he was inside didn’t really fade so I know how you feel, it’s ok to be stressed and anxious. You’ve got this. Step by step x 

Thanks every one for the reassurance scan day today back after a lovely holiday. You are all so amazing reading your journeys so far I just want this to be over it’ the waiting and not hearing that’s the worst but knowing this platform is here is comforting. Hope you are all healing well. 

hope you coped well with the scan and that the results will be reassuring xx

Have you had any word from scans etc yet?x

Any word on your histology yet? That’s me 9 weeks since surgery and not a thing. I tried to chase after week 6 and my gynaecologist was off on bereavement leave. I’m hoping I won’t be waiting much longer. Just want to not think of this anymore! 
how’s your recovery? I’ve been pretty much fine for weeks, occasionally if kneeling or bending in half I’ll get a wee sharp pain, I forget that I could still have internal healing going on! X 

Hey, lovely to hear from you. I'm the same. 9 weeks tomorrow and not a thing! I'd like to think that if they were concerned about anything, I would have heard from them by now. My recovery has been good. The only thing I have occasionally is a little tenderness in my belly button area. I agree that having the whole thing finally crossed off and finished with will be a big relief. Why does the hospital always say 2 weeks when you ask them about results? It's clearly a load of rubbish! X