8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Haha no pressure at all, I’ve gone from working 3 jobs to being signed off for 4 weeks so I have another few days with lots of time on my hands. How are you doing? Is your eating getting easier?x

  • Heh lovely ladies, apologies for the radio silence … it’s been a crazy few weeks … after a lovely stay in hospital (so hot!) I have been recuperating at home ( mainly in bed tbh!) and have lost a mind boggling 10kgs in 3 weeks ( not sure if that’s me being good or just ‘Steve’!)

    I had all my staples taken out over 2 visits to the GP but also have an infection which is now been checked every 3 days by the nurse… she’s happy today though so hopefully healing!

    still no news on biopsy but they did say 5-6 weeks so will let you know

    hope you are all doing well also xx

  • Ah so nice to read you are doing ok and at home, so glad Steve has been evicted and you are recovering. Sorry to hear you have an infection, sounds like they are getting on top of it though. Long may your recovery continue and enjoy the nice cosy time in bed while you recoup. 
    I went back to work today. Feels like this past month just went by in the blink of an eye!x 

  • Hi, so lovely to hear from you. 10kg!!!! Well, we knew Steve was a big boy, so hardly surprising. Also, I imagine after such a big surgery, your body will be using a lot of energy to heal itself, so maybe that's got something to do with it as well. Glad you're taking things nice and easy, although you probably don't have much choice right now. I think I might be forgetting sometimes that I've very recently had surgery, and I do find myself getting a bit achy and more tired than usual. I think for my type of surgery, the recovery time is about 4-6 weeks, and it's been just over 3 weeks now, so even though I keep trying to do more and more normal stuff, I keep getting physical reminders to slow myself down. Obviously, your recovery time will be significantly longer, so I hope you've got plenty of support while that's happening. Still waiting for my results, but fingers crossed I'll be able to forget about this chapter fairly soon. Take it easy and keep in touch X

  • Ha he definitely was… surgeon even took pics of him in full technicolour!

    Tbh I feel worse now than I did for a week in hospital… hubby took 3 weeks off but he went back to work yesterday, I can get around fairly easily but anything a little too vigorous and I know about it!

    fingers crossed for all our results… would be nice to close this chapter for sure!

    xx

  • Has anyone been told a timeline for histology results? I thought 4-6 weeks (I’ve no idea where I got that from though) but have just read that 12 weeks is not uncommon if not on 2ww.x

  • Hi everyone 2 more sleeps till my gyne appointment to look at Gemma im freaking out though. Everyone keeps saying it will be fine but my brain says otherwise. Every ache every pain I think it’s connected and Ive convinced myself im riddled with cancer. No body understands

  • Hey all, I haven't checked in for a while, it's been a busy few weeks. Hope everyone is doing well? 

    My surgery is a week today, can't wait. Pain levels are insane. Off to a pre op appointment this morning and then it's just counting down. I finally got some of the info from my scan, the cyst measured 3.6cm so wasn't too big at that point. My ca125 was within normal limits (can't remember if I said that before) so hopefully all is OK! Slightly worried I haven't taken enough time off work, I've only booked a week... 

    Will pop back after the surgery next week to update you all. Make sure you all look after yourselves

  • Bless you, we’ve all been there. It’s a really lonely and nerve wracking time. I am so glad you have a holiday booked in a few weeks to just relax. I am almost certain that your gynae will reassure you at your app, as they have said it’s a complex cyst, so perhaps she will be able to give you some more details in person of what type they think it is. Hopefully Gemma is either small enough to watch and wait, or she will come out. Keep us posted, will be thinking of you x 

  • You poor thing. Do they think it’s your cyst causing you pain even though it’s come back measuring fairly small? You have just had such a long journey with this. At least you have had a lap before so you know what to expect. 
    so impressed at you only taking a week, I took 4. I think 2.5 would have been manageable but ended up getting ovary reconstruction so I was under GA for hours longer than expected. Hopefully everything goes smoothly and 1 week will be plenty. Counting down the days for you x 

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  • You poor thing. Do they think it’s your cyst causing you pain even though it’s come back measuring fairly small? You have just had such a long journey with this. At least you have had a lap before so you know what to expect. 
    so impressed at you only taking a week, I took 4. I think 2.5 would have been manageable but ended up getting ovary reconstruction so I was under GA for hours longer than expected. Hopefully everything goes smoothly and 1 week will be plenty. Counting down the days for you x 

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  • Hey, so I had my surgery yesterday. 3 incisions were made and my God I'm in some pain! Shoulder is probably the worst cause I can't get comfy at all. 

    Long story short, my complex cyst has vanished and been replaced by a 2cm simple cyst that they didn't remove. Personally I think the complex one burst about 2 weeks ago, I was in intense pain so bad my husband had to force feed me painkillers as I literally couldn't move. I seem to just grow cysts relentlessly. 

    They removed some adhesions, said my uterus is bulky which is probably due to the adeynmosis or however you spell it  and they sent some samples off for biopsy from my right ovarian fossa. No idea what that means or why from the right side when it's always my left side that hurts lol! Now resting, probably gonna take 2 weeks off judging by how much pain I'm in and visiting my GP tomorrow as the hospital discharged me with zero aftercare advice. I don't even know when to remove the bandages!! 

    Hope you're all doing OK x

  • Hello. Glad to read you are out of surgery and recovering, hoping the removal of some of the adhesions help. Crazy that the cyst had disappeared! At least they had a good look around and tidied up in there. I wonder what the biopsy was. Fingers crossed for a quick recovery for you. 
    the only advice I got was remove bandages after first 24-48 hours when having my first shower. And walk walk walk to expel the gas. 
    Week 1 of recovery felt slow and a bit rubbish, week 2 was picking up the pace, by week 3 I was back to normal. I think I’m week 5 now and it feels pretty long forgotten. Tiny little incision marks like the size of my pinky fingernail. I’ve been using silicon gel on them and they are fading fast. 
    good luck for the rest of your recovery. Keep in touch x