Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

They know they went as far as they could with the surgery due to me already having extensive pelvic adhesions. So if it was there during my op, they certainly couldn't see it or get to it.

They are honestly a bit clueless about it but thought doing a biopsy in a less invasive way would suffice and spare me more surgery. 

If they can't get the biopsy this way they'll rescan me with MRI asap and go from there 

I'm ok, just a bit fed up with it going on for so long now. I'm hoping they'll get to the bottom of it asap.

How are you doing now?x

Keeping everything crossed for you. That all makes so much sense. It must be very hidden with adhesions for them not to be able to see it. Keep us posted on how it goes. 
all fine here, still waiting on histology results but feeling very well recovered from the actual surgery x 

Thank you i have had my Fast Track cancer referral

confirmed on the NHS app today so hopefully see someone before I go on holiday on 20th August. I just can’t think straight but guess that’s normal. Omg your Dermot had long hair that is freaky. How long does the histology take normally ? Sounds like I am in for the long haul here.

Hi, I'm sorry you're in this boat. It takes about 4 week+ generally. It's the worst wait. It's horrible. We're here when you need support so if you have a wobble definitely post about it. The ladies on this thread are so very kind and cloudy, in particular, responds really fast (not to put pressure on you, cloudy.)

Offering a big virtual hug  

Oh, Jeh, this sounds so difficult to be living through. If it's any comfort to you (and doesn't gross you out too much) the malignant features in my cyst were teeth and they made my cyst look like it might be an immature teratoma.

I'm up in the middle of the night so I'm only half following what people have written but from experience speaking with people with adhesions they're hard enough to deal with without them affecting the diagnostic options the doctors decide. I think I've got some minor adhesions as the internal scars are uncomfortable when I have a bowel transition but I've known people who suffer pain with them.

I really hope the docs get their finger out soon and figure out a good course of action to get the necessary pathology. Doing the cancer limbo shouldn't take so long and I'm sorry x

Haha no pressure at all, I’ve gone from working 3 jobs to being signed off for 4 weeks so I have another few days with lots of time on my hands. How are you doing? Is your eating getting easier?x

Heh lovely ladies, apologies for the radio silence … it’s been a crazy few weeks … after a lovely stay in hospital (so hot!) I have been recuperating at home ( mainly in bed tbh!) and have lost a mind boggling 10kgs in 3 weeks ( not sure if that’s me being good or just ‘Steve’!)

I had all my staples taken out over 2 visits to the GP but also have an infection which is now been checked every 3 days by the nurse… she’s happy today though so hopefully healing!

still no news on biopsy but they did say 5-6 weeks so will let you know

hope you are all doing well also xx

Ah so nice to read you are doing ok and at home, so glad Steve has been evicted and you are recovering. Sorry to hear you have an infection, sounds like they are getting on top of it though. Long may your recovery continue and enjoy the nice cosy time in bed while you recoup. 
I went back to work today. Feels like this past month just went by in the blink of an eye!x 

Hi, so lovely to hear from you. 10kg!!!! Well, we knew Steve was a big boy, so hardly surprising. Also, I imagine after such a big surgery, your body will be using a lot of energy to heal itself, so maybe that's got something to do with it as well. Glad you're taking things nice and easy, although you probably don't have much choice right now. I think I might be forgetting sometimes that I've very recently had surgery, and I do find myself getting a bit achy and more tired than usual. I think for my type of surgery, the recovery time is about 4-6 weeks, and it's been just over 3 weeks now, so even though I keep trying to do more and more normal stuff, I keep getting physical reminders to slow myself down. Obviously, your recovery time will be significantly longer, so I hope you've got plenty of support while that's happening. Still waiting for my results, but fingers crossed I'll be able to forget about this chapter fairly soon. Take it easy and keep in touch X

Ha he definitely was… surgeon even took pics of him in full technicolour!

Tbh I feel worse now than I did for a week in hospital… hubby took 3 weeks off but he went back to work yesterday, I can get around fairly easily but anything a little too vigorous and I know about it!

fingers crossed for all our results… would be nice to close this chapter for sure!

xx

Ha he definitely was… surgeon even took pics of him in full technicolour!

Tbh I feel worse now than I did for a week in hospital… hubby took 3 weeks off but he went back to work yesterday, I can get around fairly easily but anything a little too vigorous and I know about it!

fingers crossed for all our results… would be nice to close this chapter for sure!

xx

Has anyone been told a timeline for histology results? I thought 4-6 weeks (I’ve no idea where I got that from though) but have just read that 12 weeks is not uncommon if not on 2ww.x

Hi everyone 2 more sleeps till my gyne appointment to look at Gemma im freaking out though. Everyone keeps saying it will be fine but my brain says otherwise. Every ache every pain I think it’s connected and Ive convinced myself im riddled with cancer. No body understands

Hey all, I haven't checked in for a while, it's been a busy few weeks. Hope everyone is doing well? 

My surgery is a week today, can't wait. Pain levels are insane. Off to a pre op appointment this morning and then it's just counting down. I finally got some of the info from my scan, the cyst measured 3.6cm so wasn't too big at that point. My ca125 was within normal limits (can't remember if I said that before) so hopefully all is OK! Slightly worried I haven't taken enough time off work, I've only booked a week... 

Will pop back after the surgery next week to update you all. Make sure you all look after yourselves

Bless you, we’ve all been there. It’s a really lonely and nerve wracking time. I am so glad you have a holiday booked in a few weeks to just relax. I am almost certain that your gynae will reassure you at your app, as they have said it’s a complex cyst, so perhaps she will be able to give you some more details in person of what type they think it is. Hopefully Gemma is either small enough to watch and wait, or she will come out. Keep us posted, will be thinking of you x 

You poor thing. Do they think it’s your cyst causing you pain even though it’s come back measuring fairly small? You have just had such a long journey with this. At least you have had a lap before so you know what to expect. 
so impressed at you only taking a week, I took 4. I think 2.5 would have been manageable but ended up getting ovary reconstruction so I was under GA for hours longer than expected. Hopefully everything goes smoothly and 1 week will be plenty. Counting down the days for you x 

I completely understand how you're feeling because it's identical to how I felt at the time. You know that torturing yourself with all the what-ifs isn't doing you any good, but there's nothing anyone can say (other than the experts) that will stop that train of thought. I've previously mentioned in this thread that I've suffered from bouts of horrendous health anxiety numerous times in the past. Anxiety itself can trigger so many weird symptoms that you start thinking you've got all sorts of terrible things wrong with you. Take a breath and remember they've already told you what they think it is. They wouldn't be doing their jobs properly if they didn't thoroughly check their findings, and they also wouldn't just take a wild stab in the dark with their initial diagnosis. It's easy for me to come out with these words of wisdom now I've been through all the stages, but I really hope you can take something away from it that might help you keep things in perspective until you've got some more information. X

Hey, so I had my surgery yesterday. 3 incisions were made and my God I'm in some pain! Shoulder is probably the worst cause I can't get comfy at all. 

Long story short, my complex cyst has vanished and been replaced by a 2cm simple cyst that they didn't remove. Personally I think the complex one burst about 2 weeks ago, I was in intense pain so bad my husband had to force feed me painkillers as I literally couldn't move. I seem to just grow cysts relentlessly. 

They removed some adhesions, said my uterus is bulky which is probably due to the adeynmosis or however you spell it  and they sent some samples off for biopsy from my right ovarian fossa. No idea what that means or why from the right side when it's always my left side that hurts lol! Now resting, probably gonna take 2 weeks off judging by how much pain I'm in and visiting my GP tomorrow as the hospital discharged me with zero aftercare advice. I don't even know when to remove the bandages!! 

Hope you're all doing OK x

Hello. Glad to read you are out of surgery and recovering, hoping the removal of some of the adhesions help. Crazy that the cyst had disappeared! At least they had a good look around and tidied up in there. I wonder what the biopsy was. Fingers crossed for a quick recovery for you. 
the only advice I got was remove bandages after first 24-48 hours when having my first shower. And walk walk walk to expel the gas. 
Week 1 of recovery felt slow and a bit rubbish, week 2 was picking up the pace, by week 3 I was back to normal. I think I’m week 5 now and it feels pretty long forgotten. Tiny little incision marks like the size of my pinky fingernail. I’ve been using silicon gel on them and they are fading fast. 
good luck for the rest of your recovery. Keep in touch x 

Just had mine … more or less 5 weeks from surgery date x

Sending a big hug too! Hope you are doing ok and have good support at home. Damn these ovaries! I hope you can get it treated asap x