Ah I’m sorry you had to change dressings already. Mine are all dry and I’m going to remove them tomorrow or Sunday. I’m anxious as I still feel very delicate. Did you get injections to take? X

Hi! 

I've read my way through this thread and one of the few I've found that actually seems active still, I know most of you are at the other end of the diagnosis/treatment scale but would it be to hang out here while I wait for my blood test results and try not to lose my mind to my anxiety please? You all seem to have gone through very similar issues to what im currently going through and its just nice to know how often its not as bad as you imagine x

I really need to read my information. I just haven’t. I am starting to get very sore from lying down so much actually, so today I’m going to get a good shower and wash my hair and try get back on top. The transitioning from lying to sitting or standing is the worst bit for me.are you taking pain relief?x 

Hello and welcome. And don’t worry I won’t be going anywhere, I’ve found so much support in this wee group that I’m keen to stick around. Where are you in the process? Do you already know you have a mass and waiting to see what it is? As you can see we were all in the same boat so ask any questions you like. Still waiting on results that it’s 100% benign etc but very hopeful this bit is over x 

Thank you! It's a bit of a long story so I'll keep it as concise as I can. 

14 years ago when pregnant with my eldest I had an emergency laparoscopy to check if he was ectopic due to severe pain in my left side. That is how I found out my ovaries are polycystic. Since then I've grown multiple large simple cysts sporadically over the years, usually on my left side. Fast forward to Oct 2023 amd my periods started going haywire so I assumed I was headed to menopause. (I'm 38) went to gp, was brushed off a bit. Left side pain got steadily worse, so was referred to gynae. Had a ca125 in Feb of 2024, came back at 5. Was hospitalised March 24 with a 5cm cyst that was causing so much pain I couldn't even breathe. In June 24 I asked my GP to expedite my referral and finally got seen by gynae in Nov 24! Again had a cyst on left side. Had an mri in December 24. Still large simple cysts on left side. They scheduled a laparoscopy and were gonna tie my tubes at the same time (I hate hormonal birthday control and think it contributes to my cyst problem.) 

This is where it gets scary. My surgery was cancelled on the day for an unrelated complication and I had an ultrasound 2 weeks ago where they found a complex cyst. I don't have the scan report annoyingly, but I remember seeing the word septations on it. The dr asked if I'd had a blood test for that cyst, I hadn't so booked that as soon as I left the hospital and that was done Thursday so now just awaiting that result! Which is scary, I've never had a complex cyst before they have always been simple ones. I know logically it's statistically unlikely to be cancer but the pain in my side is horrendous and Google made me spiral lol!! 

Oh, lovely. That's a lot to go through and a lot of worry. I was diagnosed with pcos by ultrasound when I was a young adult but it was dermoids. I suspect as dermoids are congenital that's not the case with you but complex cysts are still not always cancer. There's so many different types of cyst I'd hate to speculate.

I do think hormonal contraception doesn't agree with everyone. 

Hi CLP86. I'm strangely proud of this thread, because I think it serves the exact purpose that people join this forum for. When I wrote my first post, I was absolutely terrified. To me, all the blood tests, scans and urgent appointments only meant one thing...it must be something bad. It's almost impossible at the time to accept that this is just the process, and actually, it's a good thing! Once I had my MRI results, my anxiety settled right down, although I still found myself asking "what if?" It's only natural to be scared. After that, things slowed right down, and it was months before I had any further appointments. In some ways, this was a relief, but on the other hand, I just wanted it to be over and get my life back. This thread is now on 30 pages and I love the fact that everyone has kept coming back to it, not just to update us on personal progress, but to offer support and advice when we're feeling vulnerable. I don't think it's going to come to an end any time soon and you're absolutely welcome to stop by, offload and ask any questions you need to. Take it easy. X

It was very nice to find one where people had come back with updates, a lot of the time it's all the symptoms and worrying then the thread stops and you never see the outcomes, which is what most of us come looking for I think, that reassurance that 9 times out of 10 it's all OK. 

My surgery is rescheduled for 13th August, which is an exploratory laparoscopy, possible cystectomy and treatment of endo of they find it. Gynae issues run in the family, my mum had a hysterectomy before she turned 30 and my sister and niece both have endo. So at least I know that's booked in while I wait for the blood test results. 

Hi all, what a helpful thread this has been, Jembers. I’m currently going through this exact process. I’m 49 yrs, have not yet been through menopause and went for routine bloods with minimal symptoms (bloating, etc.) & the dr checked my CA125 which came back as 63. She then sent me for an abdominal USS and transvaginal scan, which results have shown a 5cm cyst on my left ovary and fibroids. I’m unsure of the type of cyst, however, they are referring me to gynae and for an MRI. My liver, gallbladder and right ovary were clear.

I’m worried sick but it’s so reassuring to hear of your experiences ladies and so good to see this chat is still active!