Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

23rd is not far at all so fingers crossed it’s here before you know it and will be able to get a date soon. Keep in touch, be thinking of you x

So glad to hear you're feeling much better already! I've got three incisions. One in my belly button, and two very small ones on the left and right lower down. I've had both my ovaries and fallopian tubes removed at the same time, so I'm assuming they needed access on both sides. I'm feeling pretty uncomfortable at the moment. The shoulder tip pain is horrible, and it's going into my collar bones and down my sternum. I had to change my belly button dressing before because it had got a bit soggy. My husband freaked out a bit because the little pockets of blood that had formed around the edges, leaked all over the bathroom floor! It looked much worse than it was, and everything is clean and dry now. Scared to cough and get in and out of bed. I might have a trial run before bedtime! X

Hi Kitty. Hope you're doing ok and glad things are moving forward, albeit slower than you'd probably like. Obviously, you'll be having a longer stay in hospital than us, but just getting it done and over with is such a relief. Cloudy had some good tips that definitely came in useful. Glad I took some pads with me, because even though the bleeding was only slight, they didn't give me anything. I didn't realise until I went for a wee, that they'd removed my paper knickers and shoved a sanitary towel between my legs the size of a pillow!! I don't know how it didn't fall out as I was shuffling along! Take it easy,  keep in touch and thank you for checking in with me. X

Ah I’m sorry you had to change dressings already. Mine are all dry and I’m going to remove them tomorrow or Sunday. I’m anxious as I still feel very delicate. Did you get injections to take? X

I don't have to inject myself thankfully. My dressing seems to be nice and dry now with no more oozing! My information says I can shower after 24 hours and leave the dressing off. I just need to be careful washing the area and not have the shower too hot! I'm a bit nervous about that, but we'll see. I'm feeling very uncomfortable at the moment and extremely tired. I've finally plucked up the courage to lie down in bed. It's hard work changing positions at the moment. How have you found things? X

Hi! 

I've read my way through this thread and one of the few I've found that actually seems active still, I know most of you are at the other end of the diagnosis/treatment scale but would it be to hang out here while I wait for my blood test results and try not to lose my mind to my anxiety please? You all seem to have gone through very similar issues to what im currently going through and its just nice to know how often its not as bad as you imagine x

I really need to read my information. I just haven’t. I am starting to get very sore from lying down so much actually, so today I’m going to get a good shower and wash my hair and try get back on top. The transitioning from lying to sitting or standing is the worst bit for me.are you taking pain relief?x 

Hello and welcome. And don’t worry I won’t be going anywhere, I’ve found so much support in this wee group that I’m keen to stick around. Where are you in the process? Do you already know you have a mass and waiting to see what it is? As you can see we were all in the same boat so ask any questions you like. Still waiting on results that it’s 100% benign etc but very hopeful this bit is over x 

Thank you! It's a bit of a long story so I'll keep it as concise as I can. 

14 years ago when pregnant with my eldest I had an emergency laparoscopy to check if he was ectopic due to severe pain in my left side. That is how I found out my ovaries are polycystic. Since then I've grown multiple large simple cysts sporadically over the years, usually on my left side. Fast forward to Oct 2023 amd my periods started going haywire so I assumed I was headed to menopause. (I'm 38) went to gp, was brushed off a bit. Left side pain got steadily worse, so was referred to gynae. Had a ca125 in Feb of 2024, came back at 5. Was hospitalised March 24 with a 5cm cyst that was causing so much pain I couldn't even breathe. In June 24 I asked my GP to expedite my referral and finally got seen by gynae in Nov 24! Again had a cyst on left side. Had an mri in December 24. Still large simple cysts on left side. They scheduled a laparoscopy and were gonna tie my tubes at the same time (I hate hormonal birthday control and think it contributes to my cyst problem.) 

This is where it gets scary. My surgery was cancelled on the day for an unrelated complication and I had an ultrasound 2 weeks ago where they found a complex cyst. I don't have the scan report annoyingly, but I remember seeing the word septations on it. The dr asked if I'd had a blood test for that cyst, I hadn't so booked that as soon as I left the hospital and that was done Thursday so now just awaiting that result! Which is scary, I've never had a complex cyst before they have always been simple ones. I know logically it's statistically unlikely to be cancer but the pain in my side is horrendous and Google made me spiral lol!! 

Oh, lovely. That's a lot to go through and a lot of worry. I was diagnosed with pcos by ultrasound when I was a young adult but it was dermoids. I suspect as dermoids are congenital that's not the case with you but complex cysts are still not always cancer. There's so many different types of cyst I'd hate to speculate.

I do think hormonal contraception doesn't agree with everyone. 

Oh, lovely. That's a lot to go through and a lot of worry. I was diagnosed with pcos by ultrasound when I was a young adult but it was dermoids. I suspect as dermoids are congenital that's not the case with you but complex cysts are still not always cancer. There's so many different types of cyst I'd hate to speculate.

I do think hormonal contraception doesn't agree with everyone.