8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Hey cloudy! I'm not expecting you to see this immediately, as you're no doubt having a well deserved rest. Hope you're feeling ok. I've just had a call this morning offering me a cancellation...for tomorrow morning!!!!! Bit of a shock, but I said yes. I won't sleep tonight, but I really want it out the way. X

  • Offline in reply to Jembers

    Great news! Good luck for tmrw x

  • Offline in reply to Kitty14

    Funnily enough once we started mentioning 2nd opinions they seemed to look at her a bit more so fingers crossed we have a glimmer of hope x

  • Great news,  I will be thinking of you  x

  • Offline in reply to Jembers

    That's good news! You will be fine in no time. It's nervy on the run up though.

  • Offline in reply to calyxa

    Got everything crossed xxx

  • Oh that’s brilliant news. Go for it! Best to just get it done. I went into hospital 11am yesterday, I got taken into surgery 1.30/2. I remember waking up in recovery at 5.30 but thy said I had been there for 30 mins.

    My surgery was a bit longer than expected because my lovely surgeon spent lots of extra time and saved my ovary. I was discharged at 11pm but they only had to keep me so low as my bladder was very lazy and wouldn’t empty after the catheter. I was home in bed by midnight.

    The first 16 hours until this morning have been slightly unpleasant, the gas moving around my stomach is sore and strange but by no means unmanageable. I have just managed to make it downstairs and make myself some toast alone. I have 4 incisions, the only in my belly button is larger, that’s where they removed it from. My dermoid had long hair!! The surgeon showed me pics in recovery, but I was so out of it I don’t remember them. I have to inject myself with blood thinner for 2 weeks as I am on the pill. I got paracetamol, ibuprofen and dihydrocodeine to take home along with stool softener. I am signed off work for 4 weeks but she said day 1 and 2 are the worst and I should be nearing normal by 2 weeks. She gave me four weeks as my job isn’t the easiest. 

    top tips - take a wee bag with pads, lip balm, a book and socks to be comfy in the ward but wear slip on shoes, you will struggle to bend down for shoes! I wore a thin long dress and was sweating in this heat in the hospital! Put a pillow in the car for travelling home, front and back, the bumps in the road feel like craters when driving home. 

    any questions let me know but good luck, I promise it’s not bad. So glad it’s soon over for the both of us. Sending big hugs.x 

  • Hello, you will see above my message to jembers if you fancy a read through how my surgery was. Any questions fire ahead. Do you have a date yet? Hope you are ok and thank you for the well wishes x 

  • Your poor sister in for 6 weeks now. The mental toll of being on a ward is enough in itself, I really feel for her. How is she? You still on for next week? X