8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

Parents
  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Hi kitty,

    sorry to read you are in this horrible waiting limbo. I had an MRI unrelated in October and they called me approx a month later to say a mass was there. I then waited for an MRI with contrast which I got on Xmas eve. I had results about 3 weeks later. Unsure if there was a delay because of festivities or quicker as not so many routine appointments over the festive time. It felt like forever, I know that feeling you are having an sympathise. 
    are you having any bloods taken to check your ca125 levels? I think that can sometimes (not always) help the gynaecologist build a bigger picture. 
    good luck, fingers crossed you join us who are lucky enough to just have a horrible cyst. 
    mine is due out in 3 weeks.x 

  • Have you had a new date for surgery yet?x 

  • Hi Kitty14, Sorry you're going through the horrible unknown stage. I had my MRI on 23rd December and I got my results on 9th January. It felt like the longest wait ever, and maybe it would have been quicker if it hadn't been Christmas, but who knows? Hope you don't have to wait too long. X

  • Hi Cloudy, 

    I wish you all the very best with your surgery and a steady recovery.

    Thanks for sharing the information on how long your scans took. The waiting is do hard but I know from my breast cancer diagnosis everything started to happen so quickly it didn't give my brain enough time to process everything I was being told. I'm hoping it's a horrible cyst to. Blood results were normal so that is a positive. 

    Thanks again for your support xx

  • Thank you for sharing Jembers, I've never been so attached to my phone, I'm terrible for putting things down and forgetting where I have put them. I've been walking around with a little across the body bag, I must look very strange. X

  • My partner's biopsies and pet scan have just come back clear and he's stage 4 melanoma. There's hope even after a previous diagnosis that it won't be metastases or a secondary cancer. These dermoids seem quite common so I've got everything crossed you've got one of these gremlins and nothing untoward.

  • I am so sorry to hear that, hoping for the best news about his treatment and that you are ok also? Hugs x

  • Hi Lyn,

    Thank you for your kind words,  you sum it up really well, always have hope. I'm glad your partners results have come back clear. Strong positive hugs to you all and thank you for reaching out and making me feel so welcome.  X

  • I'm sorry to hear they cancelled your surgery, good to hear that they set a new date although I know it's going to feel like a long few weeks.

Reply Children