8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Just been cancelled! Oh well let’s see how long a new date takes x

  • Noooo. Why was it cancelled? 

  • Oh that’s brilliant news. What a stressful time it’s been. Can’t believe it won’t be long until a year has passed since we started with all this!x 

  • Dear lovely members, I wanted to thank you all for sharing your stories, you are all truly inspirational.  You are helping me so much through my own journey. It's almost 2 years since I had surgery for breast cancer, I'm 53 and I've been told I've gone through the menopause. I haven't had a period for 18 months but three weeks ago I  started with bleeding.  I was referred to the consultant and I've been told I have got a large growth on my ovary. Such a shock,  I've got my MRI on Thursday, how long has it taken in general for results to come back from MRII? I am staying positive and always manage to make it through in the daytime but nights are shocking, wake up and mind is going at 100 miles an hour. Sorry for any typos not wearing my glasses xx

  • Hi kitty,

    sorry to read you are in this horrible waiting limbo. I had an MRI unrelated in October and they called me approx a month later to say a mass was there. I then waited for an MRI with contrast which I got on Xmas eve. I had results about 3 weeks later. Unsure if there was a delay because of festivities or quicker as not so many routine appointments over the festive time. It felt like forever, I know that feeling you are having an sympathise. 
    are you having any bloods taken to check your ca125 levels? I think that can sometimes (not always) help the gynaecologist build a bigger picture. 
    good luck, fingers crossed you join us who are lucky enough to just have a horrible cyst. 
    mine is due out in 3 weeks.x 

  • Have you had a new date for surgery yet?x 

  • Hi Kitty14, Sorry you're going through the horrible unknown stage. I had my MRI on 23rd December and I got my results on 9th January. It felt like the longest wait ever, and maybe it would have been quicker if it hadn't been Christmas, but who knows? Hope you don't have to wait too long. X

  • Hi Cloudy, 

    I wish you all the very best with your surgery and a steady recovery.

    Thanks for sharing the information on how long your scans took. The waiting is do hard but I know from my breast cancer diagnosis everything started to happen so quickly it didn't give my brain enough time to process everything I was being told. I'm hoping it's a horrible cyst to. Blood results were normal so that is a positive. 

    Thanks again for your support xx

  • Thank you for sharing Jembers, I've never been so attached to my phone, I'm terrible for putting things down and forgetting where I have put them. I've been walking around with a little across the body bag, I must look very strange. X

  • My partner's biopsies and pet scan have just come back clear and he's stage 4 melanoma. There's hope even after a previous diagnosis that it won't be metastases or a secondary cancer. These dermoids seem quite common so I've got everything crossed you've got one of these gremlins and nothing untoward.

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  • My partner's biopsies and pet scan have just come back clear and he's stage 4 melanoma. There's hope even after a previous diagnosis that it won't be metastases or a secondary cancer. These dermoids seem quite common so I've got everything crossed you've got one of these gremlins and nothing untoward.

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  • I am so sorry to hear that, hoping for the best news about his treatment and that you are ok also? Hugs x

  • Hi Lyn,

    Thank you for your kind words,  you sum it up really well, always have hope. I'm glad your partners results have come back clear. Strong positive hugs to you all and thank you for reaching out and making me feel so welcome.  X

  • How are you feeling about everything? Hopefully things have settled around the house a bit with clear results? Is the melanoma being treated?x 

  • Thanks for asking. I'm so relieved that he's out of the woods. He's had two years of immunotherapy and it's holding the melanoma at bay. Given his health has improved I feel more free to think beyond the relationship tbh. He's really hurt me emotionally and doesn't value me so I'm considering walking away.

  • Hi, he's actually in a good place health wise atm. His stage 4 diagnosis is a couple of years old now and he's responded to treatment. I wasn't clear in my response. It was good news. A clear PET scan means there's no active cancer sizable enough to show 

  • Hey Lyns21, not spoken for a while and have been wondering how you've been getting on. I'm glad to hear that you've had some good news about your partner, but I've been more concerned about how you are personally. I see you mentioned that you were still having some issues and losing weight, which was concerning you. From what you've said, this looks like the perfect time to focus on yourself. Reducing your stress and getting the opportunity to step back from all the negative energy that you've had to endure, might just put you on the right track again. X

  • I can imagine, you are on a rollercoaster just now. How is your eating going? I hope you have lots of support whatever you choose, and I’m glad you have got some breathing space to make decisions for your own life. Someone once said to me when I left my husband “leaving is the brave thing to do” and I’ve never forgotten it. Hopefully you find happiness either way x