8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • No sleep is the worst. I hope they manage to give you something in the meantime. Any more checks while you are waiting this month or just left in limbo? 

  • Oh that’s great news! A pre op is only valid for 6 months so i guess it means they are hopeful to have you in before then. Although I know someone in our shoes who has had 3 pre ops! Fingers crossed that’s not the case for us. I keep wondering what size it’s going to be when they take it out!x 

  • Oh I just seen your reply that you have a date, less than 3 weeks so I am so glad for you. Just get this chapter dealt with. Sounds like you will be busy prepping so I hope this time passes quickly. Maybe you will get to your wedding after all! X 

  • Had pre op Wednesday, have one on 10/6 with nusrses to explain the operation on one on 24/6 with the anaesthetist… plus anything else they think I need … g

    no alcholol at all ( that’s the only thing helping lol) and a high protein diet for next 3 weeks x

  • I hope so but dr wasn’t very optimistic if I am honest.. he said 12 weeks but I was hoping for 4…. Will keep u all updated xx thank you so much for being there u don’t know how helpful it’s been xx

  • Oh god don’t say that… after my sisters 3 month delay it’s been my worst nitemare! And dr says he will take a pic … bet that’s one u don’t wish to see x

  • I'm losing weight (which was needed but not this way.) It is still unpleasant to having food that sticks. The gastroenterologist sent my GP a bit of a weird letter and copied me in. It seemed really derisive so I'm annoyed at him. It didn't mention that I am losing weight fast or how to tackle it. It talked about lymph nodes and referring me to ENT but in a sarcastic seemingly way. I might be reading too much into it but I haven't heard from the GP or anyone since my gastroscopy apart from the weird letter that wasn't to me, just cc'd in. Partner is still waiting for results.

    Thanks for asking after me. I wish everyone better health and good medical care plus faster appointments! Wish everyone wasn't left waiting so long.

    (I really can't follow how this is threaded on my mobile, I'm not sure if the forums are easier to read on a pc or not.)