8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Also sending hugs, what a rough ride you are having of it. I actually am struggling to believe you need to wait into July with it ruptured and leaking. Is that making you feel unwell? How are you keeping yourself busy? You are such a trooper and seem so positive against it all. I really hope it’s not long now and they are giving you worst case scenarios. I think surgeons tend to err on the side of caution and not sugar coat anything so you go into surgery with all of the info. Also fingers crossed not for the stoma but even if it does happen - it might not be forever, surgeons are amazing at reversal etc. sending hugs and healing thoughts. You are amazing x 

  • How are you getting on with your eating? And your partner? Hope things are ok x 

  • Any word on your surgery or any update? That’s a month since my pre op. I’ve been put on iron since it’s low. No word on surgery yet though. I have a holiday booked in 3 weeks though so hoping it doesn’t get offered soon!x 

  • Thanks hun, in myself I don’t feel too bad, I have stronger painkiller but it’s worse at night and the lack of sleep is getting to me so I was disappointed to hear it might be another month! My sister is living with a stoma do not do bothered about that tbh but it’s the get ifs as always x

  • Eating is ok but now have to do a pre op high protein diet and no wine… that’s a killer! X

  • I was hoping to be at a wedding in August and then a holiday soon after but with each week delay it’s looking unlikely… go on holiday if you have the chance but don’t miss a surgery date x

  • Offline in reply to calyxa

    Hey, sorry for the late response, I've only just seen this. It all sounds quite overwhelming and it must be incredibly frustrating and quite scary that progress seems to be so slow, especially after everything you've been told. I hope you're holding up ok. I suppose when faced with the honest facts, you just have to get on with it and keep ploughing on. I was all over the place when I was waiting for results. Even though I've been told it's a dermoid cyst and I'm just waiting for routine surgery, I still get scared and ask myself what if. I'm sending positive thoughts and hugs. Take it easy and keep in touch. XX

  • Hi cloudy, I've got my pre-op appointment next Wednesday, but I doubt I'll be getting surgery anytime soon. I got the distinct impression when I was speaking to the consultant that it could be quite a while, as I'm on a routine waiting list. Considering I could have chosen to do nothing at all for the time being, I wouldn't be surprised if it's not until next year! I'll ask next week if they can give me any indication at all, but I'll be surprised if they can! Hope you start feeling better now they've put you on some iron. Take care. X

  • Offline in reply to Jembers

    I think that’s the issue, if they could deal with immediately it’s done but the waiting… seems like forever! They still think it could be benign so that’s what I am holding on to! I have a date now.. 25/6 so loads of tests beforehand and meetings with anaesthetists etc….i think all surgery is scary tbh hope yours get shipped out quickly too xx