8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • There's a lotion called octenisan that you use like shower gel before the op to help kill bugs but I don't know how vital it is as so many aren't advised to use it.

    His mum's going with him. Trying not to feel hurt by it but it's not practical either as I need to know the ins and outs.

    I started having problems before the new lump appeared. It's really weird. I hope it's stress.

  • I'm sorry there's the additional complication of fluid. That must add additional concern. I guess you have to wait for the consultant to feed back on that. Huge hug, stay strong xx

  • Thanks Lyns, its weird as CT stated no fluid and ultrasound report does but as you say I have to wait for MDT, I called the secretary and she has promised to call me as soon as she hears anything which is great - and you too hun xx

  • I am sure he is as stressed as you are, all u can do is be there and support him x

  • Oh, absolutely he's stressed. It's horrible for him. He's to have it removed and biopsied. No idea of the time frame.

  • He sees the plastic surgeon next week. I've got an urgent cancer referral for an endoscopy but she said there's a million things it could be she just wants it checked fast. I'm not thinking cancer. Just something weird and am grateful for her attentiveness.

  • So Consultant called me, no sign of anything outside of the cyst but she is still calling it suspicious - operation will hopefully be before end May but  need another CT scan to check my clots in the lungs - hoping they have reduced as thats just another complication x

  • I hope the clots have reduced. Sounds like a proper additional stress. Sounds like they're really fast tracking you if it's the end of May. I wish all these ops and tests were faster even when they're getting there. I just wish it were in and out so there wasn't so much worry.

  • Gosh that is so fast. I wonder what is making them say suspicious. Maybe it’s size? What about the fluid in your abdomen? What happens with that? My cyst was found in October and I think I will be lucky to have an op within 12 months even though it causes a bit of bother. So I am happy for you getting yours out super quick. Do you have to get the full laparotomy?x

  • I had an endoscopy some weeks ago which was stomach ulcers. I just wanted to reassure the procedure is a walk in the park. 
    is it globus sensation you have it cannot get food downv glad they are seeing you soon. Good food is key to happiness!

    hope your partner gets on ok, sounds like will be some weeks before you find out anything further. The awful waiting game! 

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  • I had an endoscopy some weeks ago which was stomach ulcers. I just wanted to reassure the procedure is a walk in the park. 
    is it globus sensation you have it cannot get food downv glad they are seeing you soon. Good food is key to happiness!

    hope your partner gets on ok, sounds like will be some weeks before you find out anything further. The awful waiting game! 

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