8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Offline in reply to calyxa

    Ah, I thought you meant today. I'll be keeping everything crossed.

    Mine wasn't as big. Was over 10 cm and there were two of them one on my left ovary and my right ovary was basically a large cyst which made them think it was metastatic but both were benign. It must be so hard when you have your sister to concern over too. My partner already had his diagnosis when I was worried about my potential one and it's a weird thing to have to deal with. My mum got her endometrial cancer diagnosis whilst I was waiting on biopsy results. I really wish noone had to deal with this headspace. The waiting is so hard. Just keep as distracted as you can. I found the McMillan centre at the hospital really helpful a couple of times when I was melting down. Mine was too big for laparoscopic surgery and there was two to remove so I had a perpendicular incision but the scar is no big deal.

  • Offline in reply to Lyns21

    My fault on the dates, heads a little fried this week! Thanks so much for replying it means an awful lot, Joanne had breast cancer in 2021 and now ovarian do it’s been a journey .. cancers are unrelated too so she is super unlucky … of course seeing what she has been going through has just caused more stress! Fingers crossed for a complex cyst x

  • Yes mine is a beast! I guess women can carry a baby so there is space but it’s now displacing everything so my tummy looks about 9 months along!

    yes my sister was told it wasn’t curable but that there were options, she’s just finished 15 weeks of weekly chemo and they are now trying hormone therapy to see if that helps stop it growing, just seems that everyone is touched by it at the moment doesn’t it 

    my sister has been really good and trying to convince me it is just a cyst as she had loads of fluid in her abdomen but we just have to wait and see 

    my appt next week is just first one with consultant will keep you updated xx