Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Hi Cloudy, I've heard nothing! I check my emails and go on MyMFT every day, but it's all very quiet at the moment. I think when we get into next week, I might give them a call to see if they can give me an update. X

Good morning. I had my appointment today, I’m not going to lie it seemed pretty pointless for the 1.5 hour travel, but none the less was nice to see the surgeon who will be doing it. I was in for approx 20 mins, I had already had most of the information from dr google so didn’t have many questions. She is going to try and save my ovary but knows im fine if she takes it anyway, if she can just leave me one! The waiting list for my surgery is another 9-12 months, I will get a pre op appointment approx 1-2 months before. She said she will put me down if any cancellations come up but that my surgery was absolutely not an urgent case, lots of women choose to watch and wait when it’s 5-10cm, however I just said I want to just get it out and close this chapter so she’s put me down for ready to go. She was very reassuring and told me to live my life and stop waiting and worrying. So I’m going to book a holiday! 
when I was in the waiting room with maybe 15-20 other women there were a couple who were crying a lot and it gave me a massive kick up the backside that lots of people are getting bad news and how lucky I am, so as much as I can’t wait to get this dermoid out - I feel like I have a new lease of life after today too. 
have you had any update? Hope you are ok x 

Hi there. So glad you've been seen, but wow...9-12 months!!! I had no idea it could be such a long wait. I've heard nothing so far, and based on what you've just told me, I'm not sure there's much point in ringing them about it. I really hope when I do speak to the surgeon, they are as reassuring towards me as they have been with you.  Keep me posted and happy holiday hunting! X

Thank you will do. Keep me posted too when you do hear something! X 

Hello! How are you? Just checking in to see if you have had any progress? I’m just back from a long weekend abroad and have come back to a pre-op letter appointment in 2 weeks time. Seems like it might not be long. Hope you are doing ok and hopefully have heard something by now. 

Hi, lovely to hear from you. I ended up giving the hospital a call for an update and was offered a follow-up appointment with the consultant I saw originally, for the 15th May. I'm not sure if that was already planned or they booked it because I was giving them a nudge! Apart from that, I'm still in the dark. I'm glad to hear that things are starting to move for you and it gives me hope that things might start progressing for me too! Hope you had a great holiday. X

So glad I found this chat - I was diagnosed with a pulmonary embolism in early January and have been in more waiting rooms than I thought possible! Then  get a swollen hard stomach and as my sister has Stage 4 Ovarian cancer thought best to get it checked - My CA 125 is 63 so not awfully high (my sisters was 696!) but... after a CT scan they have measured my 'lump' at 29 x 24 x 17 and they mention all sorts from Complex ovarian cyst to malignancy - I have my first consult next Thursday 17th April - nice to know I am not on my own!

Good luck, lovely. I'm rooting for you, got everything crossed. I remember how scary it is. I hope you join our club as having a cyst. Keep us up to date. My partner has stage 4 cancer so I know a bit about the journey from different angles and emotional support is so important x

Thanks Lyns, I think it’s the waiting… and I only found out yesterday so still very raw x

Hello, hope you will join us in the complex cyst club very soon. Are your measurements in my or cm there? 

Hello, hope you will join us in the complex cyst club very soon. Are your measurements in my or cm there? 

Apparently cms, which seems huge! 

It does sound very big but being on here I have read about football sized cysts being removed and all being ok. It’s amazing what our bodies can cope with. Mines is the size of a large orange at last check, I weight about 60kg so I’m amazed something isn’t sticking out! Bleugh. Fingers crossed you get some quick answers. Is it a scan next Thurs or what is your appointment for? 
so sorry to read your sister is stage 4. I remember thinking that was end of life but I know of 3 ladies who were stage 4 cancer about 5 - 10 years ago. One is in remission, 2 others still having treatment. All still here and living life to the fullest. It really is amazing how far treatment has come along and all the new options there are. Keeping everything crossed for your sister, and you of course, although hopefully your mass is nothing sinister. 
do you have support or staying quiet because of your sisters situation?

you aren’t alone, lots of us on here for support x 

Ah, I thought you meant today. I'll be keeping everything crossed.

Mine wasn't as big. Was over 10 cm and there were two of them one on my left ovary and my right ovary was basically a large cyst which made them think it was metastatic but both were benign. It must be so hard when you have your sister to concern over too. My partner already had his diagnosis when I was worried about my potential one and it's a weird thing to have to deal with. My mum got her endometrial cancer diagnosis whilst I was waiting on biopsy results. I really wish noone had to deal with this headspace. The waiting is so hard. Just keep as distracted as you can. I found the McMillan centre at the hospital really helpful a couple of times when I was melting down. Mine was too big for laparoscopic surgery and there was two to remove so I had a perpendicular incision but the scar is no big deal.

My fault on the dates, heads a little fried this week! Thanks so much for replying it means an awful lot, Joanne had breast cancer in 2021 and now ovarian do it’s been a journey .. cancers are unrelated too so she is super unlucky … of course seeing what she has been going through has just caused more stress! Fingers crossed for a complex cyst x

Yes mine is a beast! I guess women can carry a baby so there is space but it’s now displacing everything so my tummy looks about 9 months along!

yes my sister was told it wasn’t curable but that there were options, she’s just finished 15 weeks of weekly chemo and they are now trying hormone therapy to see if that helps stop it growing, just seems that everyone is touched by it at the moment doesn’t it 

my sister has been really good and trying to convince me it is just a cyst as she had loads of fluid in her abdomen but we just have to wait and see 

my appt next week is just first one with consultant will keep you updated xx

Heh ladies, so I had my 1st meeting with the consultant yesterday - she is concerned by what the CT shows and I am now to be discussed at next weeks MDT - she thinks Operation will be at Coventry which is so disappointing as my sisters experience there was awful! (another story!!), I have an ultrasound booked on Monday so I guess now its just a waiting game - hope you all have a lovely weekend x

Sorry I didn't check in yesterday. I did think about you but was very occupied. My partner's got a new lump so we're worried and I was chasing appointments etc.

I'm sorry you're being offered a hospital you have little faith in. My op went well at my local hospital but the after care wasn't great. Was glad to get home.

I've still got everything crossed for you. Through my partner's and my own journey I know that doctors predictions and concerns aren't infallible. They just give you the best information they can.

I hope you can enjoy your weekend despite all the weight of things to worry about. Distraction is key xx

Sounds like they are taking it seriously which is good. I hope you can plan in some nice distractions amongst all the appointments and no doubt worry! Go really easy on yourself and stay away from Dr Google!

Hope you get your operation date and some answers soon x

oh no I am so sorry to hear that - my sister also has elevated levels this week so its very worrying!! Cancer is so ***! Yes my sister had her operation at Coventry and it was awful, the after care was non existent and 3 weeks after they released her she was admitted as an emergency at Worcester to have her entire wound re stitched (they glued it and it all split open) - that doesnt help my mood lol - yes I will try and enjoy the weekend - hope the news re your partner is positive hun - sending virtual hugs x

ooh me and Dr Google lol - yes worst thing to do but cant help myself!! Thanks for your lovely words - have a sunny weekend xx