Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Thank you I downloaded patient hub and it turns out my doctors isn’t registered so nothing there! 
how did you get on today? I am just out, I ended up getting a contrast too. It just didn’t say on my letter. 
she said a few weeks for results but I’ll call probably before the new year to ask next steps anyway. 
glad that’s over I really hate an MRI I am so claustrophobic! 45 mins though and done. Hope we get some speedy answers x 

Hey, how you doing? I was told to arrive at 10:20am but got there 10 minutes early and at 10:45 I was still waiting! Eventually a nurse came to say they were running late and took me to another waiting area because they were going to do the scan in a mobile unit they have outside! Anyway, it was done within about 25 minutes. I wasn't give any indication of when I'd get my results, but according to the NHS website it's usually within 1-2 weeks. Fingers crossed it won't be too long. It's one of those weird situations where you want answers but you're also scared to get the answers. Keep in touch and I hope Christmas brings us the distractions that we both need. X

Hello! I just found this chat as I'm in a similar-ish place. I was in hospital due to a gallstone and the CT scan showed a mysterious cystic mass near my left ovary. I also had my gynae appointment on 23rd Dec!! It's only 3cm but even with a CT they cannot tell what it is. I've had cervical cancer before which makes it a more scary waiting period. They've booked me in for a PET scan to be fully sure if it is or isn't cancer and I'm booked in for surgery on 8th Jan to remove the beast. I've had loads of simple and hemorrhagic cysts before but this one is seemingly not that. I'm swinging between feeling numb and panicking like a pro here! 

How strange we all had appointments on the 23rd. Do you think your appointment to get your surgery is so quick because of your previous cancer? I was told I might be waiting months for surgery as the waiting list is so long even if they suspect something sinister. 
I cannot wait to get this mass out. 
have you had bloods? When are you likely to find out? When is your pet scan? Why not MRI? I wonder if it won’t be until after the surgery and the my test the mass that you will know? Sorry for all the questions, I do wonder why we have some differences in our care when it’s similar stories. 
hope you are doing ok. I think myself and Jembers are both still in the waiting game. The amount of public holidays and weekends seems crazy at the moment, usually I would enjoy that, now I just feel like the waiting is endless! 
good luck for your surgery and getting some answers. 

They tend not to give PET scans to people who haven't had a definite diagnosis of cancer I think because it's avoidable radiation. It's not normally a diagnostic tool per se but more to decide treatment management. It doesn't mean jeh's cancer has spread but will be more informative for treatment plans if it has. There's so many variables in what decisions they make that it's really individual. I sat a metre and a half from my partner during some of his PET scans because it's so radioactive I had a geiger counter on me. One isn't a huge issue but it's like having too many X rays at once. They'd rather you not.

I'm sorry you've had cancer and are in this boat Jeh. I hope it's just a nuisance cyst.

My timeline is just a bit weird as I had the CT already before even speaking with a gynae consultant! My previous history (2013 stage one cervical cancer) has meant they've moved fast as they can't tell if it's an ovarian cyst or a recurrence. So I'm a bit different to you both there. They want to get it out quickly so they can biopsy it and decided to run the PET scan concurrently rather than he me have surgery, wait weeks for results then wait for a scan date if it is a recurrence. The PET scan will hopefully be in place before the surgery so if it does show active cancer they can just biopsy the cyst to determine treatment. All a bit of a random order but I'm just going along with it .

Thank you! I'm hoping for a really weird cyst with teeth and hair and nails haha. And if it is cancer, then I can always be thankful my gallstone picked it up as I have had zero symptoms!!

I've had bloods done and my ca-125 was 17 but the consultant said it's a terrible test so don't read too much into it either way.

And sorry I missed answering this one - I don't know when the PET scan is yet but it needs to happen in the next week so be in place before surgery.

When I had my original cancer in 2013 I had an ultrasound and an MRI but no PET scan so it's a first for me.

Being back in the waiting game with scanxiety ain't much fun after ten years though!

It's only when there's been a primary cancer and they're worried about recurrence or metastases. Tbh, the time gap seems unlikely to me but I'm glad they're being cautious because if they see anything on it they can give you good treatment options asap. Scanxiety is the pits. I also imagine the fact PET scans were traditionally more expensive than MRI factors in how they handle them. Plus you got to stay away from pregnant women and young kids for 5 hours after it. They take time for the radioisotope to get through your system so you're sitting for an hour before the scan is even started.

My partner will be receiving them regularly even though his cancer seems to be under control just now because you can never be too careful with metastatic cancer. Trying to be cautiously hopeful about his future but he was diagnosed with stage 4 two years ago with no hope of cure but the pet scans show nothing active just now. It's really hard to process. Brains are totally not built to understand cancer intuitively in any sense. It's just too much to comprehend properly. I wish we could just conquer it for everyone.

These pesky ovarian cysts are a nightmare aren't they! Fingers crossed for all of us that they'll just be something that needs taking out and that will be it. I'm still waiting for results and this whole situation has consumed every minute of every day since I found out about it. I've had no symptoms, although now I know about it, I keep getting little aches and twinges that are probably psychological. My blood test was elevated which makes me even more worried and I'm constantly trying to tell myself that it doesn't necessarily mean anything sinister, but it's so hard not to think the worst. I imagine that given your circumstances, your concern is high. It's good to hear though that these things are taking seriously and the NHS will sweep in a get things organised in a timely manner to keep people safe. X

These pesky ovarian cysts are a nightmare aren't they! Fingers crossed for all of us that they'll just be something that needs taking out and that will be it. I'm still waiting for results and this whole situation has consumed every minute of every day since I found out about it. I've had no symptoms, although now I know about it, I keep getting little aches and twinges that are probably psychological. My blood test was elevated which makes me even more worried and I'm constantly trying to tell myself that it doesn't necessarily mean anything sinister, but it's so hard not to think the worst. I imagine that given your circumstances, your concern is high. It's good to hear though that these things are taking seriously and the NHS will sweep in a get things organised in a timely manner to keep people safe. X

Hello Jembers, still waiting results over here too. Doesn’t it feel like forever ago all this started? And it’s only a few weeks. Were you given any idea when you are likely to hear anything? The gynae secretary told me I was welcome to call on Friday 3rd and see if my scans had been looked at yet. She told me there were 3 pathways I could be allocated to:

1 - cancer (app within 4 weeks)

2 - needs further investigation, possible cancer (app within 3 months)

3 - urgent but benign (app within 12 months) 

4 - routine (app within 18 months) 

I won’t know until they have reviewed but I can’t believe how long it will be either way! 

With the exception of the 1st time frame, all the others are ridiculous!!! I cannot believe possible cancer could take 3 months. I really hope that's not true. I'm aware that you're in Scotland, so things might be slightly different to England, but even so... I've got it in my head that I'll hear something this week. I want to know, but I feel sick just thinking about it. How are you feeling?

My mum's in Scotland and her endometrial cancer took months for her hysterectomy then there's been no decent follow up. They need targets like in England but I've found that there's more medically trained professionals here as I'm an hour away from London so I think it makes things run smoother when you can attract the personnel.

Aren’t they. I even thought someone telling me I had 100% cancer, then having to wait a month to see someone seems just such a long time. All of those timescales are just so long. I will be so anxious to be on any of them with that time frame! 
yes I’m in Scotland, and hopeful to hear something on Friday too. Really hoping this is our last week in the dark. It’s been a long wait to get this far. 
the secretary also told me it could be a phone call, a letter or a request to contact my GP for results. My anxiety was through the roof not knowing how I’ll hear or what that meant so she said I could call on Friday next week for an update so it was a little more in my hands. I still don’t think she will tell me much over the phone, either it’s been looked at or has not. 
im still anxious, just desperate for this bit of waiting to be over. I don’t want to be told it’s something sinister of course, but I certainly feel this not knowing and having no control or plan is awful too. I wonder if in some months I will look back and wish to be back where I am now with not knowing for certain! X