Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

My MRI is 4pm tomorrow I will be thinking of you tomorrow morning. Keep me posted when you hear something after it. 
I hate that I feel Xmas and new year are just inconvenient days that no one will be working this year, I wish I could get a bit more excited. Very hopeful to hear soon, although actually maybe not as perhaps that’s not good news.
I am in the north of Scotland, we don’t get such a thing as an NHS login, I haven’t seen one letter or anything that’s been written, only one phone call from a gynae surgeon saying she had had a referral and needed a new MRi to see properly. I don’t know if that’s better or worse, I would do exactly the same and google every word written. I do feel very in the dark though. I am going to call the gynae secretary on Xmas eve and just ask if I am likely going to waiting until the new year.
I had new bloods but no one has been in touch since then.
fingers crossed for us tomorrow and that we manage to enjoy the festivities x  

I'll keep you posted. Make sure you let me know how you get on. Christmas is just this vague thing that's happening in a few days time. I'm not remotely interested in it and I'm lucky that my kids are both grown up and not expecting all the magic and excitement that they did when they were little. I'm keeping absolutely everything crossed for us both...including my stupid cyst!!! X

PS - Have you looked up something called Patient Hub? It's a portal where patients can get access to their medical notes and appointments etc. As far as I know, it's something you can join and securely log into to keep track of stuff. Could be wrong, but maybe have a look. X

Thank you I downloaded patient hub and it turns out my doctors isn’t registered so nothing there! 
how did you get on today? I am just out, I ended up getting a contrast too. It just didn’t say on my letter. 
she said a few weeks for results but I’ll call probably before the new year to ask next steps anyway. 
glad that’s over I really hate an MRI I am so claustrophobic! 45 mins though and done. Hope we get some speedy answers x 

Hey, how you doing? I was told to arrive at 10:20am but got there 10 minutes early and at 10:45 I was still waiting! Eventually a nurse came to say they were running late and took me to another waiting area because they were going to do the scan in a mobile unit they have outside! Anyway, it was done within about 25 minutes. I wasn't give any indication of when I'd get my results, but according to the NHS website it's usually within 1-2 weeks. Fingers crossed it won't be too long. It's one of those weird situations where you want answers but you're also scared to get the answers. Keep in touch and I hope Christmas brings us the distractions that we both need. X

Hello! I just found this chat as I'm in a similar-ish place. I was in hospital due to a gallstone and the CT scan showed a mysterious cystic mass near my left ovary. I also had my gynae appointment on 23rd Dec!! It's only 3cm but even with a CT they cannot tell what it is. I've had cervical cancer before which makes it a more scary waiting period. They've booked me in for a PET scan to be fully sure if it is or isn't cancer and I'm booked in for surgery on 8th Jan to remove the beast. I've had loads of simple and hemorrhagic cysts before but this one is seemingly not that. I'm swinging between feeling numb and panicking like a pro here! 

How strange we all had appointments on the 23rd. Do you think your appointment to get your surgery is so quick because of your previous cancer? I was told I might be waiting months for surgery as the waiting list is so long even if they suspect something sinister. 
I cannot wait to get this mass out. 
have you had bloods? When are you likely to find out? When is your pet scan? Why not MRI? I wonder if it won’t be until after the surgery and the my test the mass that you will know? Sorry for all the questions, I do wonder why we have some differences in our care when it’s similar stories. 
hope you are doing ok. I think myself and Jembers are both still in the waiting game. The amount of public holidays and weekends seems crazy at the moment, usually I would enjoy that, now I just feel like the waiting is endless! 
good luck for your surgery and getting some answers. 

They tend not to give PET scans to people who haven't had a definite diagnosis of cancer I think because it's avoidable radiation. It's not normally a diagnostic tool per se but more to decide treatment management. It doesn't mean jeh's cancer has spread but will be more informative for treatment plans if it has. There's so many variables in what decisions they make that it's really individual. I sat a metre and a half from my partner during some of his PET scans because it's so radioactive I had a geiger counter on me. One isn't a huge issue but it's like having too many X rays at once. They'd rather you not.

I'm sorry you've had cancer and are in this boat Jeh. I hope it's just a nuisance cyst.

My timeline is just a bit weird as I had the CT already before even speaking with a gynae consultant! My previous history (2013 stage one cervical cancer) has meant they've moved fast as they can't tell if it's an ovarian cyst or a recurrence. So I'm a bit different to you both there. They want to get it out quickly so they can biopsy it and decided to run the PET scan concurrently rather than he me have surgery, wait weeks for results then wait for a scan date if it is a recurrence. The PET scan will hopefully be in place before the surgery so if it does show active cancer they can just biopsy the cyst to determine treatment. All a bit of a random order but I'm just going along with it .

Thank you! I'm hoping for a really weird cyst with teeth and hair and nails haha. And if it is cancer, then I can always be thankful my gallstone picked it up as I have had zero symptoms!!

I've had bloods done and my ca-125 was 17 but the consultant said it's a terrible test so don't read too much into it either way.

Thank you! I'm hoping for a really weird cyst with teeth and hair and nails haha. And if it is cancer, then I can always be thankful my gallstone picked it up as I have had zero symptoms!!

I've had bloods done and my ca-125 was 17 but the consultant said it's a terrible test so don't read too much into it either way.

Thank you for answering all my endless questions, I’m a first timer here and so interested in people’s stories. I am so glad for you that everything is moving so quickly. It seems you will have answers pretty soon. Is it minor surgery you will need to get it out? Outpatient? 
hope it goes smoothly, keep in touch when you know more and good luck for your scans x 

I'm going in for key hole outpatient surgery but with a possibility that it could turn in to open / inpatient surgery if the cyst is in an awkward place. Because I had a radical hysterectomy in 2013 it might not be straightforward as I kept my ovaries but everything else will have moved around and the ovaries tend to get 'stuck' over the years after the hysterectomy.

So, I'm hoping the planned minor op will go ahead but preparing myself it might end up being a longer operation with an open incision.

Lots of unknowns and variables and I won't know until I wake up!

Something like 9/10 complex cysts are benign so I'm trying to stay positive and give myself a 'worry hour' every day to panic in. Then I get on with stuff

It is the hardest period dealing with the uncertainties. A rollercoaster of emotions and appointments and reactions to deal with. We will all feel so much better once we have a plan and know for certain that I can assure you of x

I'm wishing you all the very best. Glad you know a bit more about what's happening, but yes, the unknown bits are horrendous. X

A worry hour is such a great idea. Honestly I am going to steal this and implement it into my life. I don’t know why I haven’t thought of it, instead of just worrying all day, just set myself 1 hour to google and worry and panic and then it will all need to wait until the next day. 
Hopefully if you work they are going to be ok with you being off for an unknown period of time, I think the open surgery recovery is longer. 
isn’t it funny how we are all hopeful for a wee hairy gremlin dermoid cyst, so hoping all of us on here are in those 9/10 good odds! X 

"wee hairy gremlin," makes it sound like they could sprout legs and run away. And I had two of them!

I miss Scotland. Down here new people either talk to me about whiskey or deep fried mars bars. I'm not partial to the former and the latter I've never tasted  

Agreed that’s the NHS care in Scotland seems a little more lacking than in the big cities down south. I feel jealous we don’t have a login to view our NHS letters etc. I have looked into going private, I actually made an appointment in a panic but then received a phone call to go for an MRI on the NhS a few days before. I don’t have the funds to spare, however if someone tells me I’ve to wait months then I’ll find them! 
my gremlin analogy comes from stupidly googling pictures of a dermoid, what horrid things they are. 
I also hate whiskey, but I do love a fried mars bar! 

If the timescale seems to stretch out before you kick up a fuss. My mum was too passive believing in the power of prayer and the wisdom of doctors. She's okay though but it was only 2.5 years ago so I nag her all the time to keep an eye on things and chase the doctor.

There's a different culture here with the NHS. The docs are more cautious and the service users are more plaintive. Well, I've been down here a long time so I don't really know if the culture has changed much in Scotland but the stories friends and family tell me make me think it's not changed enough. Still very medically paternal.

Have you had any word or updates since your MRI? Just checking in! I called yesterday, no one has looked at my updated MRI yet. To call back in a week. She said they would write out when have result but I’m too impatient as my last call I received the letter 3 weeks later so I’d rather keep calling. Hope you are ok. This waiting is very draining! 

Hi there. Nothing yet! I had assumed 1 to 2 weeks and on Monday it will be exactly 2 weeks. I've been checking my emails constantly and jumping every time my phone rings. It says on previous correspondence that they will write to me with the results, but I'm not sure whether that's how I'll hear back from them or not. It's exhausting and scary not knowing what's going on. How have you been feeling? I have good days and bad days. I've been reasonably calm the last couple of days, but have episodes where I'm literally shaky and feel sick. I've been lucky that my husband has been at home for the whole of Christmas, but he's back at work on Monday and it will just be me and the dog again! I keep trying to remind myself that apart from my mental state right now, I do not feel physically unwell. I still have no symptoms, I was oblivious to the existence of this cyst before I had my scan and I'm just going through the same process as everyone else in the same situation as me. At first I was terrified by the fact I'd been sent for an MRI, but from reading other people's posts, it seems they have had them too. I'm still concerned about my raised CA125, but again, it's not sky high and it's often raised in situations like this. I'm just trying to keep my head together as best I can. I hope you are too. X

Oh do let me know when you hear something. I am worried my letter will say something like come in for an appointment in a month or something with no answers. This waiting game has been endless. 
I am mostly ok and calm, I also go back to work on Monday so I am a little anxious about that. Mostly getting a call whilst I’m in work, hence why I keep calling them. 
I feel like I have recently put two and two together and come up with 100. I’ve had so many symptoms for a long time and now pinning them all on this cyst. Probably nothing to do with it but the cyst is now getting the blame for the sore back and GI problems etc! Hoping one operation sorts my whole life. Haha. I have to go for an endoscopy for my GI issues on the 20th and I am dreading that bit too. Stomach and ovarian cysts can be related but because they are not right next to each other have have said to still go. But then so can cancers so that sends me in a spiral too. 
I had bloods taken again before my MRI but haven’t asked about my updated ca125. I feel to anxious to know! 
hopefully your dog is good company and keep you out on walks etc to keep your mind off things while we wait!